Do coping styles mediate the relationship between disability status and psychosocial loss in people with relapsing remitting multiple sclerosis?

Gedik, Zümrüt; Sorıas, Oya; İdıman, Egemen

doi:10.1177/1359105315611958

Cited by 8 publications

(6 citation statements)

References 39 publications

(46 reference statements)

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“…Although evidence shows that coping strategies are stable [20], specific factors, such as the impact of a chronic illness, may change the preferred coping strategy, and consequently, the behavior. In the case of MS, coping has been shown to mediate the interaction between illness beliefs, mental and physical well-being [21], executive function and psychosocial adjustment [22], fatigue and the quality of life [23], disability and psychosocial loss [24], or perception of disease control and mental health [25]. However, the mediation role of coping in determining self-management behaviors has not yet been investigated.…”

Section: Introductionmentioning

confidence: 99%

The perceived impact of multiple sclerosis and self-management: The mediating role of coping strategies

Wilski¹,

Brola

Łuniewska³

et al. 2021

PLoS ONE

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Low level of self-management in people with multiple sclerosis (MS) is considered to be a predominant factor that leads to poor rehabilitation efficacy. Studies focusing on the relationship between self-management and psychological variables that can be modified could contribute to expanding the knowledge needed to propose interventional programs aiming at patient activation. This study aimed to analyze whether coping strategies play a mediating role in the association between the perceived impact of MS and level of self-management in people with MS. The cross-sectional study included 382 people with MS. The participants completed the Multiple Sclerosis Self-Management Scale—Revised, Multiple Sclerosis Impact Scale-29, and Coping Inventory for Stressful Situations. The study hypothesis was evaluated using mediation analysis. The STROBE checklist specifically prepared for cross-sectional research was applied in this study for reporting. Results indicate that the emotion- and problem-focused strategies of coping can be treated as mediating the association between the MS impact and level of self-management in people with MS. A negative relationship was found between the perceived MS impact and problem-oriented coping, while a positive relationship was found between problem-oriented coping and self-management. Furthermore, a positive relationship was found between the MS impact and emotion-oriented coping, while a negative relationship was found between emotion-oriented coping and self-management. The indirect role of avoidance-oriented coping was not significant. Our study confirms the role played by coping strategies in individuals’ self-management. In MS, self-management determined by perceived MS impact can be controlled by decreasing emotional-coping while increasing problem-coping strategies. Our study imparts new knowledge regarding the potential interventions for improving the level of self-management in people with MS. It indicates that recognition of individuals’ illness perceptions as well as maladaptive coping strategies can help health professionals identify those who might be having lower level of self-management.

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Section: Introductionmentioning

confidence: 99%

The perceived impact of multiple sclerosis and self-management: The mediating role of coping strategies

Wilski¹,

Brola

Łuniewska³

et al. 2021

PLoS ONE

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“…Along with social well-being, physical and mental aspects are crucial for health (World Health Organization (WHO), 1946). MS patients report their health-related quality of life (HRQoL) as worse compared to the general population in both the physical (Physical Component Summary (PCS)) and the mental (Mental Component Summary (MCS)) domains (Gedik et al, 2015; Klevan et al, 2014; Senders et al, 2014).…”

Section: Introductionmentioning

confidence: 99%

Self-esteem, social participation, and quality of life in patients with multiple sclerosis

et al. 2016

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The aim of this study is to explore whether self-esteem and social participation are associated with the physical and mental quality of life (Physical Component Summary, Mental Component Summary) and whether self-esteem can mediate the association between these variables. We collected information from 118 consecutive multiple sclerosis patients. Age, gender, disease duration, disability status, and participation were significant predictors of Physical Component Summary, explaining 55.4 percent of the total variance. Self-esteem fully mediated the association between social participation and Mental Component Summary (estimate/standard error = -4.872; p < 0.001) and along with disability status explained 48.3 percent of the variance in Mental Component Summary. These results can be used in intervention and educational programs.

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“…MS has been described not just as a journey of feelings, but a journey of feelings that change over time (Lysandropoulos et al, 2015). Adding to the burden is that people with neurological disability may be more likely to resort to ineffective ways of coping with emotions, which adds additional strain (Gedik et al, 2017).…”

Section: Sarah Boswellmentioning

confidence: 99%

“…For several years after her diagnosis, Susan struggled with managing her feelings around RRMS, often taking two steps forward and one step back and never feeling emotionally in control as life when on around her. Loss in MS goes beyond loss of ambulation and function and also incorporates the loss of future plans and dreams, pre-morbid roles and significant relationships (Gedik et al, 2017). Thoughts of death and self-harm are prevalent in MS, with data suggesting that over a quarter of PwMS (type not specified) contemplate suicide (Feinstein et al, 2012) and that young males in the first five years of diagnosis are the most at risk (Feinstein, 2011).…”

Section: Face To Face With Despair and Hopelessnessmentioning

confidence: 99%

“Taming the Beast”: Exploring the Lived Experience of Relapsing Remitting Multiple Sclerosis Using a Life History Approach

Burke

Vucic

Patching

2019

Res Theory Nurs Pract

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Background and PurposeThe aim of this study was to gain insights and understanding into the lived experience of relapsing remitting multiple sclerosis (RRMS) in order to better inform patient-centerd nursing and healthcare.MethodsThis qualitative study used life history methodology, a form of focused ethnography, to explore the life history of 13 study participants living with RRMS. Semi-structured interviews were transcribed and analysed using thematic analysis.FindingsA total of eight key themes emerged, explaining the journey of living with RRMS. Commencing with “Piecing Together the Puzzle” of symptoms at the beginning of the RRMS journey, followed by “(Re)defining ME now that I have RRMS,” “Battling the Demons,” the experiences of “Surplus Suffering,” negotiating “High Invisibility,” gaining control by “Taming the Beast,” learning “The DMT Dance,” and ultimately “Holding Hands with Hope,” expressing hope and practising purposeful positivity.Implications for PracticeThe eight key themes of living with RRMS were reflective of the ebbs and flows of life. By gaining these insights into the world of people living with RRMS, it is anticipated that clinical nursing care and quality of life for people living with this chronic neurological disease may be improved.

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Do coping styles mediate the relationship between disability status and psychosocial loss in people with relapsing remitting multiple sclerosis?

Cited by 8 publications

References 39 publications

The perceived impact of multiple sclerosis and self-management: The mediating role of coping strategies

The perceived impact of multiple sclerosis and self-management: The mediating role of coping strategies

Self-esteem, social participation, and quality of life in patients with multiple sclerosis

“Taming the Beast”: Exploring the Lived Experience of Relapsing Remitting Multiple Sclerosis Using a Life History Approach

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