Do breast cancer survivors' post-surgery difficulties with recreational activities persist over time?

Miedema, Baukje; Hamilton, Ryan; Tatemichi, Sue; Thomas-MacLean, Roanne; Hack, Thomas F.; Quinlan, Elizabeth; Towers, Anna; Tilley, Andrea; Kwan, Winkle

doi:10.1007/s11764-011-0190-x

Cited by 14 publications

(16 citation statements)

References 22 publications

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“…Illness takes a toll upon the time and energy that caregivers have to pursue leisure activities 40 . Feelings of guilt or shame may also influence a caregivers’ willingness to engage in pleasurable activities when a loved one is unable to do so due to illness.…”

Section: Social Implications For Caregiving Throughout the Life Spanmentioning

confidence: 99%

Enhancing the Social Well-Being of Family Caregivers

Otis‐Green¹,

Juárez²

2012

Seminars in Oncology Nursing

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Objectives To provide an overview of key issues and resources useful for oncology professionals to support the social-well being of patients and their families. A caregiver narrative highlights examples of the importance of addressing the social impact of illness. Data Sources Review of the literature and websites related to social well-being of oncology patients and families. Conclusions Culture influences social well-being and impacts caregiving across the life span. Coping with cancer creates a myriad of social implications with potentially significant impacts upon communication; sexuality, intimacy and sexual expression; education, finances, work, and leisure. Implications for Nursing Practice Nurses spend the greatest amount of time with patients and their families and therefore have an especially important role in identifying and addressing social needs. An interdisciplinary approach to care that includes the assessment of those at high risk and family meetings increases opportunities to address the complex multidimensional social concerns associated with oncology care.

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Section: Social Implications For Caregiving Throughout the Life Spanmentioning

confidence: 99%

Enhancing the Social Well-Being of Family Caregivers

Otis‐Green¹,

Juárez²

2012

Seminars in Oncology Nursing

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“…Psychosocial sequellae may manifest as a result of reduced ability to engage in leisure activities, (Edelman & Mandle, 2006;Pedersen, Sawatzky, & Hack, 2010) alongside disruptions to other meaningful roles in work and family life Radina & Fu, 2011). Many breast cancer survivors either cease or decrease participation in leisurely activities because of the discomforts of arm morbidity (Karki, Simonen, Mälkiä, & Selfe, 2005;Miedema et al, 2008Miedema et al, , 2011. However, maintaining participation in leisurely activities may improve quality of life, as well as physical and mental health, among cancer survivors (Burnham & Wilcox 2002;Kendall, MahueGiangreco, Carpenter, Ganz, & Bernstein, 2005;McNeely et al, 2006).…”

Section: Introductionmentioning

confidence: 99%

Loss, adaptation and new directions: The impact of arm morbidity on leisure activities following breast cancer

Thomas

Hack

Quinlan

et al. 2015

CONJ

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“…This loss remains invisible because of the lack of attention to the impact of SLC and what it means for peoples’ sense of identity. Similarly, while a negative impact on leisure and activity as a result of SLC has been explored in the literature (Miedema et al, 2008, Miedema et al, 2011), the impact of this loss is often rendered invisible.…”

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confidence: 99%

Illustrating the (in)visible: Understanding the impact of loss in adults living with secondary lymphedema after cancer

Thomas

Hamilton

2014

International Journal of Qualitative Studies on Health and Well

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Life with a disability is often riddled with paradoxes, one of which is being visibly marked, while personal experiences, losses, and challenges remain hidden. Our article draws attention to this paradox among people who live with secondary lymphedema after cancer (SLC). SLC is a relatively unfamiliar chronic condition within medical and lay discourses of cancer, which proves challenging for the many cancer survivors who are in search of information and understanding. Thirteen men and women with SLC were recruited from two research sites (Fredericton, NB, and Ottawa, ON, Canada) to participate in semi-structured interviews about the physical and psychosocial aspects of SLC. Using a methodology of interpretive description, our analysis of participant interviews reveals the complex ways in which men and women felt both visible and invisible within various contexts. We discuss three majors themes: (in)visibility and appearance related to material losses; (in)visibility and action connected to visible losses in function, as well as invisible struggles to care for oneself; and the loss of present and future well-being, as SLC renders some limitations visible while potentially obscuring a hopeful future indefinitely. Our research indicates that timely diagnosis of SLC would be an immediate first step in recognizing the physical and emotional dimensions of the condition. To accomplish this, increased awareness is needed. To enhance quality of life for those living with SLC, the development of new resources and psychosocial supports is also required.

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Do breast cancer survivors' post-surgery difficulties with recreational activities persist over time?

Abstract: Pain and ROM restrictions may prohibit participation in recreational activity and targeted intervention should be sought.

Cited by 14 publications

References 22 publications

Enhancing the Social Well-Being of Family Caregivers

Enhancing the Social Well-Being of Family Caregivers

Loss, adaptation and new directions: The impact of arm morbidity on leisure activities following breast cancer

Illustrating the (in)visible: Understanding the impact of loss in adults living with secondary lymphedema after cancer

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