Disembodied social life: the ongoing social presence of the born-still on Facebook

Hayman, Janet; Chamberlain, Kerry; Hopner, Veronica

doi:10.1080/13576275.2017.1304367

Cited by 4 publications

(5 citation statements)

References 31 publications

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“…Most records included in this review were conducted by researchers based in North America (n = 51; 57%), Europe (n = 22; 25%) [20,46,[59][60][61][62][63][64][65][66][67][68][69][70][71][72][73][74][75][76][77], and Oceania (n = 8; 9%) [78][79][80][81][82][83][84] (Table 1). All included records were published between 2000 and 2021, and each record reported on a distinct study.…”

Section: Resultsmentioning

confidence: 99%

“…would add depth to the results of this review. Authors have described that their objectives involved the investigation of the ongoing engagement of survivors with the online presence of the deceased [74,87,92,93,102,136,137], the understanding of how people use SM to make sense of death [87,90,112,136], the role of virtual interaction in mourning [46,62,109,110], as well as the role of social support in online mourning [79]. Researchers have also been motivated by the opportunity to gain insight into people's reasons for mourning online [129], as well as the phenomenon of mourning among strangers [61,78].…”

Section: Plos Onementioning

confidence: 99%

“…Of the 18 (20%) [69,71,74,77,79,83,87,90,95,114,117,119,121,131] records that obtained ethics approval, 16 were published after 2012, the year that the Association of Internet Researchers (AoIR) published updated recommendations for ethical conduct of online research [30]. Sixteen of these 18 records were qualitative in nature, and two were quantitative [114,116].…”

Section: Reporting Of Ethical Considerationsmentioning

confidence: 99%

See 2 more Smart Citations

How social media data are being used to research the experience of mourning: A scoping review

Spiti

Davies²,

McLiesh³

et al. 2022

PLoS ONE

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Background Increasingly, people are using social media (SM) to express grief, and researchers are using this data to investigate the phenomenon of mourning. As this research progresses, it is important to understand how studies are being conducted and how authors are approaching ethical challenges related to SM data. Objective The aim of this review was to explore how SM data are being used to research experiences of mourning through the following questions: a) ‘Which topics related to mourning are being studied?’; b) ‘What study designs have been used to analyse SM data’; c) ‘What type of data (natural or generated) have been used?’; and d) ‘How are ethical decisions being considered?’. Methods The JBI Scoping Review methodology guided this review. Eligibility criteria were determined using the PCC framework, and relevant key words and phrases derived from these criteria were used to search eight databases in September 2021 (CINAHL, Embase, LILACS, OpenGrey, ProQuest, PsycINFO, PubMed and Scopus). The Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews (PRISMA-ScR) guidelines were used to report the results of this review. Results Database searches resulted in 3418 records, of which, 89 met eligibility criteria. Four categories of grief and mourning were identified. Most records were qualitative in nature and used natural data. Only 20% of records reported ethics approval by an Institutional Review Board, with several including measures to protect participants, for example, using pseudonyms. Conclusions This unique review mapped the diverse range of mourning-related topics that have been investigated using SM data and highlighted the variability in approaches to data analysis. Ethical concerns relating to SM data collection are identified and discussed. This is an emerging and rapidly changing field of research that offers new opportunities and challenges for exploring the phenomenon of mourning.

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Section: Resultsmentioning

confidence: 99%

Section: Plos Onementioning

confidence: 99%

Section: Reporting Of Ethical Considerationsmentioning

confidence: 99%

See 1 more Smart Citation

How social media data are being used to research the experience of mourning: A scoping review

Spiti

Davies²,

McLiesh³

et al. 2022

PLoS ONE

View full text Add to dashboard Cite

show abstract

“…Social death occurs when a person ceases to be “an active agent in others” lives’ (Mulkay & Ernst, 1991). In most deaths, one’s biological death and social death are distinct from one another (Hayman, Chamberlain, & Hopner, 2018). Furthermore, recent literature demonstrates the lack of social death through the conceptual understanding of the “continuing bonds” (for strategies of avoiding social death, see, for example, Odom, Harper, Sellen, Kirk, & Banks, 2010; Walter, Hourizi, Moncur, & Pitsillides, 2012).…”

Section: Discussionmentioning

confidence: 99%

Body Perception and Organ Donation: Bereaved Parents’ Perspectives

2019

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The view of the body in sociological, psychological, and gender studies may be broadly summarized to three metaphors: (a) the body as a machine, (b) the body as Self, and (c) the body as sacred and sanctified entity. Each of these philosophical views has an impact on organ donation. The current study aimed at revealing body perception of bereaved Israeli parents who agreed to donate organs of their deceased child. A deductive and inductive thematic analysis captured an ongoing perceptual change that bereaved donor parents experienced in their view of the child’s body. Parents’ ability to move between two positions (the body as Self, the body as a machine) allowed them to agree with and protect their decision to donate as well as to maintain an ongoing bond with their deceased child. The view of the body as scared entity was not evident in the bereaved parents’ narratives.

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“…The making of memories for families of stillborns begins in the hospital with the rituals parents choose to practice following the birth ( Layne, 2000 ; Kobler et al, 2007 ; Crawley et al, 2013 ). Items like footprints and photographs, and rituals such as holding and talking about the baby or posting to memorial sites on social media (e.g., Facebook; Hayman et al, 2018 ), serve to facilitate the grief process, create memories and an identity for the baby as well as validating their experience as parents ( Bleyen, 2010 ; Basile and Thorsteinsson, 2015 ). No research in Australia appears to have investigated people’s perceptions of the appropriateness of such practices by parents of stillborns or the extent to which they are shared with others.…”

Section: Introductionmentioning

confidence: 99%

Empathy and the Public Perception of Stillbirth and Memory Sharing: An Australian Case

2018

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Objective: Stillbirth devastates families and leaves them struggling to grieve the death of their baby in a society that expects grief symptoms to decrease over time. Previous research has suggested that increased memory sharing opportunities can lead to positive mental health outcomes. The aim of the current study was to examine people’s perceptions of stillbirth as well as the perceived appropriateness of affected parents sharing memories of their child. In addition, we examined whether manipulating empathy would have an effect on people’s perceptions of stillbirth.Method: Participants included 200 Australian men and women 18 to 74 years of age (M = 36.76, SD = 12.59) randomly allocated to one of three experimental conditions (i.e., low empathy, high empathy, and control). The high empathy group watched a video about stillbirth and was instructed to imagine how the people portrayed felt; the low empathy group watched the same video but was instructed to remain detached; and the control group watched an unrelated video. Participants were then asked how much money they would be willing to donate to a fictional stillbirth organization, followed by the completion of questionnaires measuring (a) perceptions of stillbirth, (b) empathy, and (c) the appropriateness of parents sharing memories of a stillborn child with different groups of people over time.Results: The empathy manipulation had an effect on empathy and the willingness to help effected parents (high empathy vs. control). However, empathy did not have an effect on participants’ perceptions toward stillbirth nor appropriateness of sharing memories. The appropriateness of sharing memories decreased as time passed and social distance increased.Discussion: Individuals who have experienced stillbirth need to be aware that societal expectations and their own expectations in relation to sharing memories may not correspond to each other and that they may need to educate their social group about their need to share memories. Removing the taboo surrounding stillbirth is vital for both parents and those to whom they would wish to communicate.

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Disembodied social life: the ongoing social presence of the born-still on Facebook

Cited by 4 publications

References 31 publications

How social media data are being used to research the experience of mourning: A scoping review

How social media data are being used to research the experience of mourning: A scoping review

Body Perception and Organ Donation: Bereaved Parents’ Perspectives

Empathy and the Public Perception of Stillbirth and Memory Sharing: An Australian Case

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