Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment

McManus, Vicki; Michelsen, Susan Ishøy; Parkinson, Kathryn; Colver, Allan; Beckung, Eva; Pez, O.; Caravale, Barbara

doi:10.1111/j.1365-2214.2006.00601.x

Cited by 45 publications

(36 citation statements)

References 10 publications

(11 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Five major themes contributing to feeding-related QoL were identified: parent–child interaction, delivery of services, physical well-being, emotional well-being, and socialisation. These themes are consistent with the findings of previous studies 10 13 – 17 19 31 32…”

Section: Discussionsupporting

confidence: 92%

Different priorities: a comparison of parents’ and health professionals’ perceptions of quality of life in quadriplegic cerebral palsy

et al. 2007

View full text Add to dashboard Cite

Disparities between parents' and health professionals' perceptions provide useful insight into communication between the two, identify the range of issues important to families, and highlight the parents' expert role in assessing the child's emotional and social well-being. The five themes identified provide a framework for a comprehensive evaluation of the health status of children with quadriplegic CP and feeding difficulties.

show abstract

Section: Discussionsupporting

confidence: 92%

Different priorities: a comparison of parents’ and health professionals’ perceptions of quality of life in quadriplegic cerebral palsy

et al. 2007

View full text Add to dashboard Cite

show abstract

“…Plots of standardised residuals in 10 groups ordered by the level of the latent trait showed a trend across groups for many items: for children with low access as estimated by the underlying latent trait, access to a specific item was predicted to be higher than observed and conversely for children with high access. Three domains (Physical -school, Transport, Attitudes -classmates) showed little evidence of such an item-trait interaction; but several items (items 2,20,21,26,29) in other domains did so, indicating that they discriminated between children more sharply than other items in the same domain [31].…”

Section: Goodness-of-fitmentioning

confidence: 99%

“…A number of preliminary qualitative studies were undertaken to ascertain the EFs relevant and important to families of children with cerebral palsy. These were a literature review [18] and a qualitative study [19] followed by focus group work in each country participating in SPARCLE [20]. Parents of children with cerebral palsy were asked which EFs promoted their child's participation and whether the absence of any EFs hindered it.…”

Section: Introductionmentioning

confidence: 99%

Quantifying the physical, social and attitudinal environment of children with cerebral palsy

Dickinson

Colver

2010

Disability and Rehabilitation

View full text Add to dashboard Cite

show abstract

“…Yapılan çalışmalar bu bulguyu desteklemektedir 17,[23][24][25][26][27][28] . Çalışmamız literatürdeki araştırma sonuçları ile uyumlu bulunmuştur.…”

Section: Beck Depresyon öLçeği (Bdö)unclassified

Otistik çocukların anne-babalarının depresyon ve kaygı düzeyleri

Fırat¹

2016

Cukurova Medical Journal (Çukurova Üniversitesi Tıp Fakültesi Dergisi)

View full text Add to dashboard Cite

AbstractÖz Purpose: When a disabled child joins a family as a new member, various problems may be observed in intrafamily relations and the functioning of the family. Many families with autistic children experience anxiety because they do not know how to behave towards their children or how this will affect heir lives. Parents of children with developmental disorders such as autism may start having self-confidence issues. Material and Methods: This study was conducted with the participation of the parents of 40 autistic children randomly selected from among 100 children who were diagnosed with autism spectrum disorder and attending a special education center. Results: Participants in the study were parents of 26 male (65%) and 14 female (35%) autistic children. The average age of the children was 62.9±16.6 months. .Mothers had higher levels of depression and anxiety scores. Mothers of autistic children who participated in the study received higher scores on depression, state anxiety and trait anxiety compared to fathers. Among mothers, a significant relationship was found between level of education and level of state anxiety. Conclusion:The findings of this study show that mothers have higher levels of depression and anxiety compared to fathers. This finding might be explained with reference to customs and traditions of the Turkish society in which the study was conducted, which require women to take more responsiblity for family matters. It is recommended that special education and rehabilitation centers provide counseling to parents about the effects of having an autistic children on their lives, and advise them on seeking psychological help if necessary.Amaç: Aileye katılan birey özürlü bir çocuk olduğunda aile içi ilişkiler ve aile fonksiyonunda bazı sorunlar ortaya çıkabilmektedir. Otistik çocuğu olan birçok aile çocuklarına karşı neler yapacaklarını ya da çocuğun kendi yaşantılarını ne yönde etkileyeceğini bilmemenin endişesini taşırlar. Genellikle çok özel gereksinimleri olan bu çocukların aile yaşantısına uyumunun sağlanabilmesinde bazı sıkıntılar yaşanmaktadır. Otizm gibi gelişimsel bozukluğu olan çocuğa sahip anne babalar zaman zaman kendilerine olan güvenlerini yitirdiklerini hisseder. Gereç ve Yöntem: Araştırma bir özel eğitim merkezine devam eden 100 otizm spektrum bozukluğu tanısı almış ve eğitimlerine devam eden çocuklardan tesadüfi olarak seçilen 40 otistik çocuğun annesi ve babası ile yapılmıştır. Bulgular: Çalışmamıza 26'sı (%65) erkek, 14'ü (%35) kız toplam 40 otistik çocuğun anne ve babası katılmıştır. Çocukların yaş ortalaması 62.9±16.6 ay olarak saptanmıştır. .Otistik çocukların annelerinde babalara göre depresyon ve kaygı puanları daha yüksekti. Otistik çocukların annelerinin eğitim düzeyleri ile durumluk kaygı düzeyleri arasında anlamlı bir fark bulunmuştur. Sonuç: Bu araştırmanın sonuçlarına göre, annelerde depresyon, anksiyete, babalara göre daha yüksek bulunmuştur. Bulunan bu sonucun, araştırmanın yapıldığı toplumun ve Türk toplumunun gelenek ve göreneklerine göre aile içinde annenin a...

show abstract

Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment

Abstract: The environmental factors that cause concern to parents of children with CP are similar across Europe. A prototype environmental questionnaire has been developed based on these findings. The environmental questionnaire is in use in a study in nine European centres.

Cited by 45 publications

References 10 publications

Different priorities: a comparison of parents’ and health professionals’ perceptions of quality of life in quadriplegic cerebral palsy

Different priorities: a comparison of parents’ and health professionals’ perceptions of quality of life in quadriplegic cerebral palsy

Quantifying the physical, social and attitudinal environment of children with cerebral palsy

Otistik çocukların anne-babalarının depresyon ve kaygı düzeyleri

Contact Info

Product

Resources

About