Dilemmas when talking about Huntington's disease: A qualitative study of offspring and caregiver experiences in Norway

Abstract

Severe genetic disease does not only affect one individual; it can affect a whole family, particularly the offspring. To help offspring adapt to and cope with having a caregiver who suffers from severe disease, research strongly suggests that they should be included in honest conversations about their life situation (Dalton et al., 2019). However, caregivers often find it hard to talk about the disease with