Development of the Assessment of Burden of COPD tool: an integrated tool to measure the burden of COPD

Slok, Annerika; Veen, J.C.C.M. in ’t; Chavannes, Niels H.; Molen, Thys van der; Mölken, Maureen P.M.H. Rutten-van; Kerstjens, Huib A. M.; Salomé, P.; Holverda, Sebastiaan; Dekhuijzen, PN Richard; Schuiten, Denise; Asijee, Guus M.; Schayck, Onno C. P. van

doi:10.1038/npjpcrm.2014.21

Cited by 28 publications

(44 citation statements)

References 9 publications

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“…In the first phase, requirements were formulated that a questionnaire for the burden of asthma and DM2 should meet. These requirements were based on the requirements that were established during the development of the ABC-scale, and were adapted if needed based on consensus in the research group [6]. The research group consisted of four researchers, including a professor in primary health care (OS), an epidemiologist (EB), a health scientist (AG), and a medical doctor (DC).…”

Section: Methodsmentioning

confidence: 99%

“…This conversation is based on the principles of shared decision making. The tool consists of several components, namely the ABC-scale that measures the experienced burden of COPD, objective parameters and risk factors; a visualisation of the outcomes based on cut-off points; and treatment advice [6]. Outcomes of the ABC-scale are visualised using balloons, such as displayed in Fig.…”

Section: Introductionmentioning

confidence: 99%

“…2. Based on the discussion following the treatment advice, personal care plans can be determined and -where applicable -treatment advice can be operationalised [6]. The ABC-tool has shown to be valid, reliable and effective in improving QoL and perceived quality of care [7,8].…”

Section: Introductionmentioning

confidence: 99%

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ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions

et al. 2020

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Background: Numerous instruments have been developed to assess patient reported outcomes; most approaches however focus on a single condition. With the increasing prevalence of multimorbidity, this might no longer be appropriate. Moreover, a more comprehensive approach that facilitates shared decision making and stimulates selfmanagement is most likely more valuable for clinical practice than a questionnaire alone. This study aims to transform the Assessment of Burden of Chronic Obstructive Pulmonary Disease (COPD) (ABC)-tool into the Assessment of Burden of Chronic Conditions (ABCC)-tool for COPD, asthma, and diabetes mellitus type 2 (DM2). The tool consists of a scale, a visualisation of the outcomes, and treatment advice. Methods: Requirements for the tool were formulated. Questionnaires were developed based on a literature study of existing questionnaires, clinical guidelines, interviews with patients and healthcare providers, and input from an expert group. Cut-off points and treatment advice were determined to display the results and to provide practical recommendations.Results: The ABCC-scale consists of a generic questionnaire and disease-specific questionnaires, which can be combined into a single individualized questionnaire for each patient. Results are displayed in one balloon chart, and each domain includes practical recommendations. Conclusions: The ABCC-tool is expected to facilitate conversations between a patient and a healthcare provider, and to help formulate treatment plans and care plans with personalised goals. By facilitating an integrated approach, this instrument can be applied in a variety of circumstances and disease combinations.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions

et al. 2020

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“…The ABC tool then visualises this integrated health status by means of a balloon diagram (Figure 1). 17 The scores of the current assessment are shown with the coloured balloons, and the scores of the previous visit are shown with grey balloons, which aids in monitoring any changes in the patients’ status. The balloon diagram facilitates communication between the healthcare provider and patient on health-related topics that affect the patient’s COPD burden.…”

Section: Introductionmentioning

confidence: 99%

‘To use or not to use’: a qualitative study to evaluate experiences of healthcare providers and patients with the assessment of burden of COPD (ABC) tool

Slok

Twellaar

Jutbo

et al. 2016

npj Prim Care Resp Med

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In the management of chronic conditions, such as chronic obstructive pulmonary disease (COPD), there is a shift from doctor-driven care to patient-centred integrated care with active involvement of and self-management by the patient. A recently developed tool, the assessment of burden of COPD (ABC) tool, can be used in this transition to facilitate self-management support and shared decision-making. We performed a qualitative study, in which we collected and analysed the data using the methods of conventional content analyses. We performed in-depth interviews consisting of mainly open questions. Fifteen healthcare providers and 21 patients were interviewed who had worked with the ABC tool in daily care. In general, participants responded positively to the tool. Healthcare providers felt the visual representation provided was effective and comprehensible for patients and provided them with insight into their disease, a finding that patients confirmed. If patients were allowed to choose between a consultation with or without the ABC tool, the majority would prefer using the tool: it provides them with an overview and insight, which makes it easier to discuss all relevant topics related to COPD. The tool can provide structure in consultations, and is compatible with the concepts of ‘motivational interviewing’ and ‘individualised care-planning’. Suggestions for improvement related to content and layout. So far, the tool has only been available as a stand-alone online program, that is not connected to the electronic medical record systems. It was therefore suggested that the tool be integrated into the systems to enhance its usability and its uptake by healthcare providers.

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“…In 2014, the Assessment of Burden of COPD (ABC) tool was developed combining the patient-reported ABC scale (based on the Clinical COPD Questionnaire [17], consisting of five domains: symptoms, functional state, mental state, emotions and fatigue) with smoking status, exacerbations, dyspnoea, body mass index, lung function and self-reported physical activity [18]. The ABC tool is a computer program visualising these outcomes using coloured balloons (figure 1) [19].…”

Section: Assessment Of Burden Of Copd (Abc) Toolmentioning

confidence: 99%

Assessment of Burden of COPD (ABC) tool: perceptionversusevidence

Houben-Wilke¹,

Franssen

Kok

et al. 2017

Eur Respir J

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Development of the Assessment of Burden of COPD tool: an integrated tool to measure the burden of COPD

Cited by 28 publications

References 9 publications

ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions

ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions

‘To use or not to use’: a qualitative study to evaluate experiences of healthcare providers and patients with the assessment of burden of COPD (ABC) tool

Assessment of Burden of COPD (ABC) tool: perceptionversusevidence

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