‘To use or not to use’: a qualitative study to evaluate experiences of healthcare providers and patients with the assessment of burden of COPD (ABC) tool

Slok, Annerika; Twellaar, Mascha; Jutbo, Leslie; Kotz, Daniel; Chavannes, Niels H.; Holverda, Sebastiaan; Salomé, P.; Dekhuijzen, P.N.R.; Mölken, Maureen P. M. H. Rutten-van; Schuiten, Denise; Veen, J.C.C.M. in ’t; Schayck, Onno C. P. van

doi:10.1038/npjpcrm.2016.74

Cited by 9 publications

(11 citation statements)

References 40 publications

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“…HOUBEN-WILKE et al [1] suggest that the simplicity of the balloons masks the lack of scientific and clinical evidence. However, we believe that simplicity is, if anything, the strength of the tool, confirmed by patients and healthcare providers participating in the trial [4], and by the significant positive results of the trial: the use of the ABC tool significantly increased health status and quality of care [5]. The ease of use of the ABC tool makes it attractive and practical as an instrument for shared decision making.…”

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confidence: 81%

“…The ABC tool was developed by a nationwide, multidisciplinary working group and has been proven to have an impact on care [2][3][4][5]. The ABC tool goes beyond assessing health status.…”

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confidence: 99%

“…The added value of the ABC tool is the combination of these characteristics in one simple tool. In our qualitative evaluation of the ABC tool [4], we described that patients and healthcare providers evaluate the ABC tool as a very useful instrument that has important added value in daily care. HOUBEN-WILKE et al [1] suggest that the simplicity of the balloons masks the lack of scientific and clinical evidence.…”

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confidence: 99%

“…On one thing we do agree, however: our ABC tool is simple to use. It was intended to be, it is supposed to be, and we have provided evidence that its use has an effect on quality of primary and secondary care [2][3][4][5]. HOUBEN-WILKE et al [1] are all affiliated with tertiary referral centres for home rehabilitation.…”

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confidence: 99%

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Assessment of Burden of COPD tool: evidence not perception

et al. 2017

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We thank HOUBEN-WILKE et al. [1] for their comments on the Assessment of Burden of COPD (ABC) tool. They raised questions about the purpose of the ABC tool. The aims of ABC were clarified before its development, in the study protocol [2]. The ABC tool is multifaceted and was developed to measure burden of disease, facilitating shared decision making and formulation of a personal treatment plan [2-5]. All of these purposes relate to increasing self-management and stimulating behavioural change, which are, most often, important components of individual treatment plans. The goal of most treatment plans is to increase health status. Health status was therefore the primary outcome of our study [2-5]. We agree with HOUBEN-WILKE et al. [1] that comorbidities play a major role in the burden and management of COPD. Both in the study protocol [2] and the article describing the effectiveness study [5], we describe that comorbidity is part of this tool.

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mentioning

confidence: 81%

“…The ABC tool was developed by a nationwide, multidisciplinary working group and has been proven to have an impact on care [2][3][4][5]. The ABC tool goes beyond assessing health status.…”

mentioning

confidence: 99%

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confidence: 99%

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confidence: 99%

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Assessment of Burden of COPD tool: evidence not perception

et al. 2017

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“…The ABC-tool has shown to be valid, reliable and effective in improving QoL and perceived quality of care [7,8]. In general, patients and healthcare providers respond positively to the tool [9]. Based on these positive outcomes, the ABC-tool is currently being implemented in daily primary care in the Netherlands.…”

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confidence: 99%

ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions

et al. 2020

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Background: Numerous instruments have been developed to assess patient reported outcomes; most approaches however focus on a single condition. With the increasing prevalence of multimorbidity, this might no longer be appropriate. Moreover, a more comprehensive approach that facilitates shared decision making and stimulates selfmanagement is most likely more valuable for clinical practice than a questionnaire alone. This study aims to transform the Assessment of Burden of Chronic Obstructive Pulmonary Disease (COPD) (ABC)-tool into the Assessment of Burden of Chronic Conditions (ABCC)-tool for COPD, asthma, and diabetes mellitus type 2 (DM2). The tool consists of a scale, a visualisation of the outcomes, and treatment advice. Methods: Requirements for the tool were formulated. Questionnaires were developed based on a literature study of existing questionnaires, clinical guidelines, interviews with patients and healthcare providers, and input from an expert group. Cut-off points and treatment advice were determined to display the results and to provide practical recommendations.Results: The ABCC-scale consists of a generic questionnaire and disease-specific questionnaires, which can be combined into a single individualized questionnaire for each patient. Results are displayed in one balloon chart, and each domain includes practical recommendations. Conclusions: The ABCC-tool is expected to facilitate conversations between a patient and a healthcare provider, and to help formulate treatment plans and care plans with personalised goals. By facilitating an integrated approach, this instrument can be applied in a variety of circumstances and disease combinations.

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