Development of palliative care services in Turkey

Göksel, Fatih; Şenel, Gülçin; Oğuz, Gonca; Özdemir, Tarkan; Aksakal, Hurişah; Türkkanı, Mustafa Hamidullah; Küçük, Aziz; Eğin, Muhammed Ertuğrul; Gültekin, Murat; Silbermann, Michael

doi:10.1111/ecc.13285

Cited by 13 publications

(8 citation statements)

References 20 publications

(25 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Mortality rate reaches to 55% in 5 years in PPC settings (31). Mortality rates at adult PC units were reported to be between 23% and 78% in the literature, and the general mortality rate was expected to be ≤60-75% (25). The overall pattern of prolonged survival of patients who received PPC, and their multiple readmissions to hospital, show that PPC centers will provide health care service not only to new patients but also to a large group of established patients who have long surviving.…”

Section: Discussionmentioning

confidence: 98%

“…Despite the lack of ambulant palliative care centers in Turkey we could discharge to home 86.5% of our patients with a median 7 days of hospital stay. In a multicenter adult study from our country, the rate of discharge to home was determined as 56.6% in inpatient palliative care setting (25). Since prognosis, life expectancy and functional outcome often less clear in PPC compared to adult palliative care setting (26), our parents prefer to be at home despite high burden of care work.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Pediatric palliative care: data of the first 13 months of operation

Çelebi

Şahin

2021

Journal of Health Sciences and Medicine

View full text Add to dashboard Cite

Aim: Children with complex chronic conditions are main candidates for pediatric palliative care (PPC). Despite the proven advantages of palliative care for these children, the literature lacks on the adequate description of the pediatric population receiving this care. The aim of this study was to describe demographic characteristics of the patients, to examine the patient survival and the factors affecting patient survival. To our knowledge, this is the first description of the cohort of children and adolescents on PPC in Turkey. Material and Method: This retrospective chart review study examined patients receiving palliative care at Health Sciences University, Dr. Sami Ulus Maternity and Children's Training and Research Hospital and Children's Training and Research Hospital between 2.12.2019 and 31.12.2020. The data of demographics, underlying diagnosis, medical technology dependence, symptoms at admission, number of hospitalizations, number of emergency department (ED) admissions were collected. Results: 70 male and 66 female patients were admitted 259 times during the observation period. The median length of hospital stay was 7 days. Median age at referral was 44 months (range:2.7-215). Fifty-one patients (37.5%) were younger than 2 years of age. Neurological diseases were the most prevalent disease group. 56 of our patients (41%) had a tracheostomy. 82 patients (60.3%) needed respiratory support. Fifty of them were ventilated through home-type mechanical ventilator. Only 28 patients (20.6%) could be fed through oral route. Nasogastric tube (n=84, 61.8%) was the main device used by children who needed nutritional support. 52% of patients were referred from ED. Most prevalent symptoms of the patients at admission were dyspnea and tachypnea. 151 of the patients (58.3%) were diagnosed with infection, the most common infection was lower respiratory tract infection (n=103, 39.8%). Of 259 PPC center admissions 224 (86.5%) were discharged to home. Twenty-seven children (20%) died during study period. Nineteen of deceased patients died in intensive care unit (70%). The 1-year survival rate of the patients was 78.1%. In logistic regression analysis the risk of death was 3.4 times higher in patients ≤2 years of age (CI: 1.4-8.8, p=0.01) and in patients with respiratory support (CI: 1.1-11.0, p=0.04). Conclusion:Describing the cohort of patients on PPC provides important information on the complexity of their disease process, types of their illnesses, medical technology dependence, re-admission rates, mortality status and factors affecting mortality. Important research has been done but pediatric palliative care is still in infancy in Turkey. Future prospective research is needed to understand the unique challenges of PPC.

show abstract

Section: Discussionmentioning

confidence: 98%

Section: Discussionmentioning

confidence: 99%

Pediatric palliative care: data of the first 13 months of operation

Çelebi

Şahin

2021

Journal of Health Sciences and Medicine

View full text Add to dashboard Cite

show abstract

“…Ağrı %25'lik oranla en sık görülen semptomdur. Malnütrisyon, dispne, dekübit ülserleri, bulantı-kusma ve ateş diğer semptomlardır (31) .…”

Section: Ankara Onkoloji Hastanesinde 2007 Yılında Açılanunclassified

Palliative Care in Turkish Medical History

Koç¹

2021

Jarss

View full text Add to dashboard Cite

From the moment that human beings begin perceiving the value of life, they have also started to strive for the continuation of life. It would not be wrong to divide Turkish societies into three parts as sociological history. Turkish social life before Islam, the differences in the social structure with Islam, and Europe's social structure with the westernization influx with the end of the 19th century can be examined. Health system and patient care was also greatly affected by these processes. Health care, which was carried on with Shamanism and Herbalism in the old Turkish states and continued with bimarhanes and darüssifas, and health professionals have been mobilized to serve the society with the opportunities of modern medicine today. Acute and chronic diseases that occur with the continuation of life make it difficult to lead a quality life. This process can sometimes be painful. Palliative care is also useful in chronic diseases whose mortality has decreased with successful treatment methods recently applied, but which impairs the quality of life due to the disease. Thus, this process, which puts the patient's relatives psychologically, socially, and financially difficult, and the patient, can be managed more easily. Although it started with reducing and caring for cancer patients' pain, palliative care has now become a necessity in all areas of clinical practice. Our aim in this review is to examine the development process of the concept of palliative care in Turkish medical history.

show abstract

“…In the study conducted by Kirkpatrick et al 20 with nursing students, it was stated that having knowledge about palliative care plays an important role in improving the quality of care. In Turkey, palliative care is a new consideration and started to rise up by 2010s with the first organized palliative care system by the Cancer Control Department of the Turkish Ministry of Health and the Pallia‐Turk project 21,22 . Furthermore, the national core curriculum for nursing in Turkey does not include palliative care as a part of the mandatory basic nursing courses 23 .…”

Section: Introductionmentioning

confidence: 99%

“…In Turkey, palliative care is a new consideration and started to rise up by 2010s with the first organized palliative care system by the Cancer Control Department of the Turkish Ministry of Health and the Pallia-Turk project. 21,22 Furthermore, the national core curriculum for nursing in Turkey does not include palliative care as a part of the mandatory basic nursing courses. 23 However, palliative care education is included as an elective course in the nursing education curriculum of some universities.…”

mentioning

confidence: 99%

The palliative care difficulty levels of the nursing students during clinical practices

Ünver

Özkan

Gi̇rgi̇n

2020

Perspect Psychiatr Care

View full text Add to dashboard Cite

Purpose: This study aimed to determine the palliative care difficulties experienced by nursing students during their clinical practice.Design and Methods: This descriptive and cross-sectional study was conducted with 305 nursing students at a university in Turkey. Data were collected using a student identification form and the palliative care difficulties scale.Findings: Nursing students experience a moderate level of difficulty in providing care for palliative care patients and receiving expert support facilitates their care initiatives.Practice Implications: It is important to support nursing students during their nursing education courses and clinical training, along with psychiatric nursing skills. K E Y W O R D Snursing students, palliative care, palliative care difficulties | INTRODUCTIONPalliative care is a specialized care that aims to improve the quality of life of the individuals and their families in chronic illness conditions (e.g., cardiovascular diseases, cancer, respiratory diseases) that are life-restricting and incurable. 1,2 According to the World Health Organization (WHO), 3 palliative care is an approach used to address the problems experienced by patients (children and adults) with lifethreatening illnesses and their families and emphasizes that it is important for the early diagnosis and treatment of the symptoms (physical, psychological, communicative, etc.).Although the life span of humans has increased in line with the technological developments in the healthcare field, the rise in the frequency of chronic illnesses with age remains. 4 In a projection study involving England and Wales, it was reported that 75% of the people who were at the end-of-life stage would need palliative care. 5 A study conducted in Saudi Arabia with males over 55 years of age showed that the rate of chronic illnesses increased in line with age. 6 Of them, 31% had at least one chronic illness, and 34.5% at least two or more chronic illnesses. In an extensive study titled the Irish Longitudinal Study On Ageing-Wave 4, conducted in Ireland, chronic diseases were found to be more frequent in those aged 75 and over. 7 According to the results of the National Household Health Survey carried out in Turkey, the conditions requiring chronic care, such as a stroke due to cardiac disease, increased with age and the rate of chronic care was reported to be 1.3% in those between the ages of 15 and 29, while it was 18.8% in those who were 70 and over. 8 How to cite this article: Ünver S, Kızılcık Özkan Z, Giṙgiṅ BN.The palliative care difficulty levels of the nursing students during clinical practices.

show abstract

Development of palliative care services in Turkey

Cited by 13 publications

References 20 publications

Pediatric palliative care: data of the first 13 months of operation

Pediatric palliative care: data of the first 13 months of operation

Palliative Care in Turkish Medical History

The palliative care difficulty levels of the nursing students during clinical practices

Contact Info

Product

Resources

About