Development of a Web-Based Health Care Intervention for Patients With Heart Disease: Lessons Learned From a Participatory Design Study

Nørgaard, Birgitte; Sandvei, Marianne; Rottmann, Nina; Johannessen, Helle; Wiil, Uffe Kock; Schmidt, Thomas; Pedersen, Susanne S.

doi:10.2196/resprot.7084

Cited by 32 publications

(38 citation statements)

References 16 publications

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“…Patient involvement during the designing phase of an intervention is essential, followed by end user participation and evaluation of an intervention to further improve customization [ 32 , 33 ]. Consequently, the main strength of this study is the involvement of several end users of our mHealth platform (ie, participants of the Smarter Pregnancy RCT), including the participation of men.…”

Section: Discussionmentioning

confidence: 99%

Opportunities of mHealth in Preconception Care: Preferences and Experiences of Patients and Health Care Providers and Other Involved Professionals

Dijk

Koster

Rosman

et al. 2017

JMIR Mhealth Uhealth

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BackgroundThe importance of the preconception period and preconception care (PCC) are broadly acknowledged and the potential benefits regarding health promotion have been studied extensively. PCC provides the opportunity to identify, prevent, and treat modifiable and nonmodifiable risk factors to optimize the health of couples trying to become pregnant. The prevalence of modifiable and nonmodifiable risk factors in these couples is high, but the uptake of PCC remains low.ObjectiveThe aim of this study is to identify the preferences and experiences of women and men (patients) trying to become pregnant and of health care providers and other involved professionals regarding mobile health (mHealth), in particular the coaching platform Smarter Pregnancy, and its potential role in PCC.MethodsPatients who participated in the Smarter Pregnancy randomized controlled trial (RCT) and health care providers and professionals also involved in PCC were invited to participate in a qualitative study. The barriers, benefits, and opportunities of big data collection by mHealth were discussed in focus group sessions, prompted with statements regarding PCC.ResultsWe composed five focus groups, consisting of 27 patients in total (23 women and 4 men), who participated in the RCT, and nine health care providers and other professionals. Of the patients, 67% (18/27) were familiar with the concept of PCC, but only 15% (4/27) received any form of PCC. A majority of 56% (combined percentages of statements 1 [n=18], 2 [n=11], and 3 [n=16]) of the patients believed in the benefit of receiving PCC, and all agreed that men should be involved in PCC as well. Patients did not have a problem using anonymized data obtained from mHealth tools for scientific purposes. Patients and health care providers and other professionals both acknowledged the lack of awareness regarding the importance of PCC and stated that mHealth provides several opportunities to support clinical PCC.ConclusionsOur findings substantiate previous studies addressing the low uptake of PCC due to unawareness or lack of perception of its relevance by couples who are trying to become pregnant. The positive judgment and experiences with mHealth, in particular Smarter Pregnancy, will stimulate future research and further development of effective and cost-effective personalized mHealth apps for patients, health care providers, and other professionals as an add-on to clinical PCC.

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Section: Discussionmentioning

confidence: 99%

Opportunities of mHealth in Preconception Care: Preferences and Experiences of Patients and Health Care Providers and Other Involved Professionals

Dijk

Koster

Rosman

et al. 2017

JMIR Mhealth Uhealth

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“…Participatory approaches and exemplars of the reluctant participant in a healthcare setting is a key concern in a PD project carried out by Noergaard et al (2017), and the designers' roles in PD projects are discussed in several papers (e.g. Crilly, 2015;McDonnell, 2016).…”

Section: Nurses' Transformations Towards Genuine Participation: Lessomentioning

confidence: 99%

“…Establishing awareness of the initial relational dynamics caused by latent tensions among the participants, for example, contributing to an 'us versus them' sentiment, was important for the nurses to establish an authentic meeting as a result of the participants letting down their guard. Noergaard et al (2017) mention the challenge of engaging healthcare staff in a design project involving both patients and healthcare staff, however, they do not elaborate or reflect on this issue, and rather state the challenge as a lesson learned: it is difficult to engage healthcare staff in PD. In our case, the relations between the ICU and the general wards (the ICU being the 'strongest'), and between the nurse-researcher and the other nurses (the nurse-researcher being in charge of the project and its agenda and potentially allied with management), had to be reflected on for these dynamics to change into a 'collaborative us'.…”

Section: Participating As Themselvesmentioning

confidence: 99%

Examining situated design practices: Nurses' transformations towards genuine participation

2018

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2018) Examining situated design practices: Nurses' transformations towards genuine participation. Design Studies, vol. X, no. X, pp. X-X. AbstractWe scrutinise the concrete practices of participants' engagement in participatory design through an empirical case in which nurses from different hospital wards began as reluctant users, but gradually engaged in processes approaching genuine participation. We expand a newly proposed, psychologically inspired perspective into a conceptual frame to investigate transformations towards genuine participation. This analytical lens elucidates how participants engage in becoming authentic, credible, attentive and present in participatory endeavours, and how this affects reflection and learning. The case includes the designer's process of becoming a genuine participant during the project. By offering a new take on the concept of genuine participation using a dimension characterised by a genuine, focused presence, we offer our lessons learned from applying the framework.The concepts, meanings and practices associated with participation vary enormously. In the field of participatory design (PD), the idea of 'genuine participation' continues to attract attention from researchers (e.g. Hägerfors, 1994;Luck, 2007;. Scholars understand that the direct involvement of users in the design of the artefact they will use is desirable (Simonsen

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“…One method to engage users in the design and development process is to use participatory design [ 21 ]. Thus, participatory design is increasingly being used in the development of new technological solutions in different areas of healthcare with promising results [ 22 , 23 , 24 , 25 , 26 ].…”

Section: Introductionmentioning

confidence: 99%

Development of an mHealth Application for Women Newly Diagnosed with Osteoporosis without Preceding Fractures: A Participatory Design Approach

Jakobsen

Hermann

Søndergaard

et al. 2018

IJERPH

Self Cite

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mHealth is a useful tool to improve health outcome within chronic disease management. However, mHealth is not implemented in the field of postmenopausal osteoporosis even though it is a major worldwide health challenge. Therefore, this study aims to design and develop an mHealth app to support women in self-management of osteoporosis when they are diagnosed without preceding fractures. Participatory design is conducted in three phases. Based on identified needs in the first phase, a prototype is designed and developed in an iterative process in the second phase before the mHealth app is tested in the third phase. This paper focuses on the user activities in phase two and describes how a team of researchers, women, physicians, healthcare professionals, and app designers are involved in the participatory design process. The study shows that participatory design is a viable approach when developing an mHealth app for women with asymptomatic osteoporosis. Results obtained from the workshops and laboratory tests demonstrate the importance of feedback from users in the iterative process, as well as the participation of users and app designers in workshops and laboratory tests to enable mutual learning when developing new mHealth solutions. The regular member-checks and involvement of users helped to identify challenges associated with providing healthcare services through an app.

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Development of a Web-Based Health Care Intervention for Patients With Heart Disease: Lessons Learned From a Participatory Design Study

Cited by 32 publications

References 16 publications

Opportunities of mHealth in Preconception Care: Preferences and Experiences of Patients and Health Care Providers and Other Involved Professionals

Opportunities of mHealth in Preconception Care: Preferences and Experiences of Patients and Health Care Providers and Other Involved Professionals

Examining situated design practices: Nurses' transformations towards genuine participation

Development of an mHealth Application for Women Newly Diagnosed with Osteoporosis without Preceding Fractures: A Participatory Design Approach

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