Development of a discussion tool to enable well-being by providing choices for people with dementia: a qualitative study incorporating codesign and participatory action research

Goeman, Dianne; Dickins, Marissa; Iliffe, Steve; Pond, Dimity; O'Keefe, Fleur

doi:10.1136/bmjopen-2017-017672

Cited by 7 publications

(17 citation statements)

References 16 publications

(11 reference statements)

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“…Research has shown that the active participation of all stakeholders throughout the design of technical systems and services helps ensure that the end product meets the needs of its intended user base, improves usability, and increases engagement of all individuals [27][28][29]. Importantly, there is an emerging evidence base reflecting the benefits of co-design with older adults, including those with dementia, and their family and caregivers, to enable strengths-based, person-centered care [30,31]. Our research team's established co-design methodologies explicitly position users as empowered participants in all stages from design and development through to implementation and impact evaluation [28,29,32,33].…”

Section: Participatory Designmentioning

confidence: 99%

Understanding Technology Preferences and Requirements for Health Information Technologies Designed to Improve and Maintain the Mental Health and Well-Being of Older Adults: Participatory Design Study

LaMonica¹,

Davenport²,

Roberts³

et al. 2021

JMIR Aging

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Background Worldwide, the population is aging rapidly; therefore, there is a growing interest in strategies to support and maintain health and well-being in later life. Although familiarity with technology and digital literacy are increasing among this group, some older adults still lack confidence in their ability to use web-based technologies. In addition, age-related changes in cognition, vision, hearing, and perception may be barriers to adoption and highlight the need for digital tools developed specifically to meet the unique needs of older adults. Objective The aim of this study is to understand the use of technology by older adults in general and identify the potential barriers to and facilitators of the adoption of health information technologies (HITs) to support the health and well-being of older adults to facilitate implementation and promote user uptake. In addition, this study aims to co-design and configure the InnoWell Platform, a digital tool designed to facilitate better outcomes for people seeking mental health services, to meet the needs of adults 50 years and older and their supportive others (eg, family members, caregivers) to ensure the accessibility, engagement, and appropriateness of the technology. Methods Participants were adults 50 years and older and those who self-identified as a supportive other (eg, family member, caregiver). Participants were invited to participate in a 3-hour participatory design workshop using a variety of methods, including prompted discussion, creation of descriptive artifacts, and group-based development of user journeys. Results Four participatory design workshops were conducted, including a total of 21 participants, each attending a single workshop. Technology use was prevalent, with a preference indicated for smartphones and computers. Factors facilitating the adoption of HITs included personalization of content and functionality to meet and be responsive to a consumer’s needs, access to up-to-date information from reputable sources, and integration with standard care practices to support the relationship with health professionals. Concerns regarding data privacy and security were the primary barriers to the use of technology to support mental health and well-being. Conclusions Although HITs have the potential to improve access to cost-effective and low-intensity interventions at scale for improving and maintaining mental health and well-being, several strategies may improve the uptake and efficacy of technologies by the older adult community, including the use of co-design methodologies to ensure usability, acceptability, and appropriateness of the technology; support in using and understanding the clinical applications of the technology by a digital navigator; and ready availability of education and training materials.

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Section: Participatory Designmentioning

confidence: 99%

Understanding Technology Preferences and Requirements for Health Information Technologies Designed to Improve and Maintain the Mental Health and Well-Being of Older Adults: Participatory Design Study

LaMonica¹,

Davenport²,

Roberts³

et al. 2021

JMIR Aging

View full text Add to dashboard Cite

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“…This paper describes the process of developing a mobile-enabled mHealth application for family caregivers of people with dementia to address needs related to functional disability care. Consistent with the previous health intervention studies 46,49,50,60 , a co-design process guided the development of the application. To our knowledge, this is the first reported mHealth application development study based on the co-design process that addresses the functional disability care needs of family caregivers of people with dementia.…”

Section: Discussionmentioning

confidence: 99%

“…46 In recent history, this method has been widely used to develop health interventions. 46,49,50 This paper reports on the co-design, specifically the development process, of an mHealth application for family caregivers of people with dementia to address functional disability care needs.…”

Section: Co-design Processmentioning

confidence: 99%

Co-design of an mHealth application for family caregivers of people with dementia to address functional disability care needs

Rathnayake

Moyle

Jones

et al. 2020

Informatics for Health and Social Care

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The co-design of a mobile health (mHealth) application for family caregivers of people with dementia to address functional disability care needs is presented. ParticipantsParticipants included family caregivers of people with dementia, aged care nurses, physicians, occupational therapists and information technology (IT) experts. MethodsThe co-design process involved two phases: (1) needs assessment phase (an online survey and in-depth interviews with family caregivers and expert consultation); and (2) development of an mHealth application (content and prototype development). Data triangulation from phase one informed the content of the application. ResultsData triangulation resulted in three content modules: "an overview of dementia and care", "management of daily living activities", and "caregivers' health and well-being". The content was based on contemporary literature, and care guidelines with input from family caregivers and dementia care experts. IT engineers developed the mHealth application. ConclusionAn Android-based mHealth application was designed to address the functional care needs of family caregivers. The co-design process ensured the incorporation of end-users' real-world experiences and the opinions and expertise of key stakeholders in the development of the application prototype. It is to be noted that before releasing the application into the app store, testing its feasibility and effectiveness is essential.

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“…In the context of community care, negotiating risk in activities of daily living can follow this approach depending on the level of cognitive impairment, needs, and preferences ( Dickins et al, 2018 ). In line with this, a risk negotiation discussion tool was codesigned with people with dementia, informal carers, and community aged care staff, with 12 areas of activities of daily living with potential risks consolidated from 59 original items ( Goeman et al, 2017 ). This “ Enabling Choices ” tool was developed and deemed acceptable for identifying and addressing concerns, supportive of the dignity and autonomy of the person with dementia ( Goeman et al., 2017 ).…”

Section: Introductionmentioning

confidence: 99%

“…In line with this, a risk negotiation discussion tool was codesigned with people with dementia, informal carers, and community aged care staff, with 12 areas of activities of daily living with potential risks consolidated from 59 original items ( Goeman et al, 2017 ). This “ Enabling Choices ” tool was developed and deemed acceptable for identifying and addressing concerns, supportive of the dignity and autonomy of the person with dementia ( Goeman et al., 2017 ). To ensure uptake of such a tool into practice, implementation science principles are of value to embed it within the community aged care context.…”

Section: Introductionmentioning

confidence: 99%

Risk Negotiation With People With Dementia: From Co-designed Paper Version to Implementation Preparation of an Electronic Conversation Tool

Meyer

Dickins

O'Keefe

et al. 2023

Gerontology and Geriatric Medicine

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The home care workforce provides essential support for older people with dementia to live a life of fulfillment. “ Enabling Choices,” an evidence-informed conversation tool, aims to negotiate risk around everyday activities between home care workers, people with dementia and their informal carers. This paper describes tool conversion into electronic format and preparation for implementation throughout a large Australian health and aged care service provider, utilizing the Implementation Framework for Aged Care (IFAC). Using codesign principles, the tool was converted from paper-based to electronic format involving frontline, operational and Information Management Services staff, and people with dementia/carers. Focus groups and interviews identified tool acceptability, feasibility, and appropriateness. For implementation preparation, the wider socio-cultural-political context was mapped, and key questions of the IFAC addressed. Environment, workflow, and training requirements were determined, and strategies for behavior change ascertained. Numerous opportunities and challenges exist for the widespread upscale of an evidence-informed tool into practice.

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Development of a discussion tool to enable well-being by providing choices for people with dementia: a qualitative study incorporating codesign and participatory action research

Cited by 7 publications

References 16 publications

Understanding Technology Preferences and Requirements for Health Information Technologies Designed to Improve and Maintain the Mental Health and Well-Being of Older Adults: Participatory Design Study

Understanding Technology Preferences and Requirements for Health Information Technologies Designed to Improve and Maintain the Mental Health and Well-Being of Older Adults: Participatory Design Study

Co-design of an mHealth application for family caregivers of people with dementia to address functional disability care needs

Risk Negotiation With People With Dementia: From Co-designed Paper Version to Implementation Preparation of an Electronic Conversation Tool

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