Development and Validation of a Nutritional Education Pamphlet for Low Literacy Pediatric Oncology Caregivers in Central America

Garcia, Melissa; Chismark, Elisabeth; Mosby, Terezie T.; Day, Sara W.

doi:10.1007/s13187-010-0080-3

Cited by 15 publications

(11 citation statements)

References 16 publications

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“…For example, Shah et al (2018) tested a pamphlet on health and mood addressing people older than 55 years, in order to increase their will to be screened for depression. Garcia et al (2010) developed an educational pamphlet to increase knowledge on oncological children’s nutrition addressed to low-literacy caregivers. Other researchers found that a pamphlet on proper antibiotic use was more efficacious for increasing knowledge of parents who consulted it compared to a control group who did not consult any material, although it was less efficacious than an animated video ( Schnellinger et al, 2010 ).…”

Section: Background and Rationalementioning

confidence: 99%

Development and Early Implementation of a Public Communication Campaign to Help Adults to Support Children and Adolescents to Cope With Coronavirus-Related Emotions: A Community Case Study

et al. 2020

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Epidemics and pandemics can traumatically impact the emotional wellbeing of adults, children, and adolescents in diverse ways. This impact can be reduced by applying a range of evidence-based coping strategies. Based on previous research, we created a pamphlet-based communication campaign designed to assist adults to provide support for young people confronted with emotional distress associated with the pandemic caused by the novel coronavirus [severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2)] and the related disease [coronavirus disease (COVID-19)] in 2020. We developed a pamphlet describing the common emotions children and adolescents report feeling in the face of disasters and the coping strategies that have proven effective in mitigating them. The target population was adults who interact with children and adolescents in both formal and informal settings. The pamphlet included basic information on this specific emergency, emotions that might be commonly experienced, and coping strategies for dealing with negative emotions. The aim of this paper is to describe the planning, development, and implementation of the campaign. First, we monitored how the media gave visibility to the campaign during the 40 days following the release of the pamphlet: it potentially reached a large audience at a national and international level through at least 216 media channels included the HEMOT ® (Helmet for EMOTions) website. Second, Google Analytics ™ data from the HEMOT ® website enabled us to examine the characteristics of the visitors to the website and the behavior of those who viewed the pamphlet. More than 6,000 visitors, most from Europe followed by the Americas, visited the website in the first 40 days after the pamphlet publication. The webpage including the pamphlet obtained over 6,200 views, most directly or via other websites. A cluster analysis suggested that the access to the webpage did not mirror the trend concerning the new cases of COVID-19 in Italy (which increased during the central phase of the campaign) or worldwide Raccanello et al.

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Section: Background and Rationalementioning

confidence: 99%

Development and Early Implementation of a Public Communication Campaign to Help Adults to Support Children and Adolescents to Cope With Coronavirus-Related Emotions: A Community Case Study

et al. 2020

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“…Interview guides were developed on the basis of a literature review of previously conducted assessments including parental education needs and parent experiences after learning their child’s diagnosis. 14-16 Interviews were audio recorded using a mobile application, and notes were taken during the interview. Interviews were translated and transcribed into a master document, and specific quotes and common messages were categorized into broad themes.…”

Section: Methodsmentioning

confidence: 99%

“…13 This is helpful for pediatric oncology programs, but research conducted in LMICs has highlighted certain additional factors to consider when developing educational programs, including the socioeconomic level of the parents, cultural or language barriers, and the availability of qualified personnel or resources to create informational materials. 14…”

Section: Introductionmentioning

confidence: 99%

Identifying and Prioritizing Family Education Needs at Pediatric Oncology Centers in Central America and Mexico

McCann

Fuentes‐Alabi

Antillón

et al. 2019

JGO

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PURPOSE The educational needs of parents at the time of their child’s cancer diagnosis are often unclear, and research on this topic in low- and middle-income countries is limited. This study evaluated the educational needs of families at major pediatric oncology centers in Central America and Mexico. METHODS A qualitative study involving 72 in-person interviews and 4 focus groups was conducted using a semistructured interview guide. Key informants included family members, physicians, nurses, psychosocial providers, foundation leadership, volunteers, and communication professionals. The study sites included pediatric oncology centers in El Salvador, Guatemala, Mexico, and Panama. NVivo was used for thematic analysis. RESULTS Across all sites, parents had common questions and educational needs. Questions from families focused on their child’s likelihood of dying from cancer and feelings of guilt that were based on their perception that they caused the disease. The origin of cancer, nutrition, and psychosocial support were the most important educational themes. However, the prioritization of different educational themes varied on the basis of cultural or social influences unique to each site. Some of these differences included a need for education surrounding amputations, sibling support, and alternative or traditional healers. CONCLUSION This study demonstrates that although many educational needs were consistent across hospitals, some of the educational priorities differed by site despite geographic proximity and shared language. Developing an educational program in resource-limited settings can be challenging, but it is an important contributor to improving childhood cancer outcomes that should be tailored to the specific needs of a site. This study can be used as a guide for other programs with limited resources wanting to develop relevant educational materials for families.

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“…Diet education for patients and families in LMICs is complicated by low literacy, limited availability of trained personnel, and a lack of materials ( 81 ). To provide successful education for low-literacy patients and caregivers, culturally appropriate instruments and pictorial-based material must be developed; this has been successfully done in several LMICs ( 82–84 ). To ensure that food provision and nutrition education are prioritized in LMIC cancer centers, research should be conducted to demonstrate if these low-cost and low-resource measures can effectively improve body composition and clinical outcomes.…”

Section: Current Status Of Knowledgementioning

confidence: 99%

Perspective: Creating the Evidence Base for Nutritional Support in Childhood Cancer in Low- and Middle-Income Countries: Priorities for Body Composition Research

Murphy‐Alford

Prasad

Slone

et al. 2020

Advances in Nutrition

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There is a striking disparity in survival rates for children in low- and middle-income countries (LMICs) compared with high-income countries (HICs). Many of the contributing factors are preventable, including the comorbidity of malnutrition. There are emerging data that malnutrition, as reflected in body composition changes, impacts survival of cancer. However, not enough priority is given to nutrition management of children with cancer, particularly in LMICs. The primary purpose of this article is to review the current knowledge on childhood cancer and body composition in LMICs and identify priorities for future research into the interlinking associations between cancer, body composition, and clinical outcomes for childhood cancer patients. Evidence will ensure feasible and effective nutrition management is prioritized in childhood cancer centers in LMICs and contribute to improving outcomes for children with cancer.

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Development and Validation of a Nutritional Education Pamphlet for Low Literacy Pediatric Oncology Caregivers in Central America

Cited by 15 publications

References 16 publications

Development and Early Implementation of a Public Communication Campaign to Help Adults to Support Children and Adolescents to Cope With Coronavirus-Related Emotions: A Community Case Study

Development and Early Implementation of a Public Communication Campaign to Help Adults to Support Children and Adolescents to Cope With Coronavirus-Related Emotions: A Community Case Study

Identifying and Prioritizing Family Education Needs at Pediatric Oncology Centers in Central America and Mexico

Perspective: Creating the Evidence Base for Nutritional Support in Childhood Cancer in Low- and Middle-Income Countries: Priorities for Body Composition Research

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