Development and Pilot-Test of Blockchain-Based MyHealthData Platform

Abstract

The concept of MyData emerged as a paradigm shift in personal data management and the process of seeking to transform the current organization-centered system. MyData enables the utilization of one’s own personal information that is scattered among various institutions as a system for data subjects to exercise rights of self-determination. We aimed to develop and demonstrate a MyData platform (MyHealthData) that allows data subjects to download and manage health-related personal data stored in various medical institutions. The platform consists of a mobile app for users, API (application–program interface) for data conversion and exchange installed in the hospital information system (HIS), and a relay server connected to the blockchain to ensure data integrity. User surveys were conducted to explore perceived usefulness, perceived ease of use, and satisfaction. We provided four services to users through the platform developed in this study: inquiring about medical and health checkup records, health coaching, checking conditions of participation in clinical research, and claims, all by using an app. A total of 1228 participants signed up for the service and the overall user satisfaction was high, especially with ‘inquire about medical and health checkup records’. MyData brings a user-centered paradigm in which data subjects can directly participate in the use of their own data. MyData will improve healthcare data interoperability, allowing it to be used not only in research areas but also in other areas by sharing and integrating various healthcare data.

Technical and Economic Models for a Global Patient co-Owned Cloud (GPOC)

“…These ranged from blockchain technologies to other distributed graph-based ecosystems. [17][18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33][34][35][36] In our GPOC systematic review and meta-analysis, we also looked specifically at the technical requirements for the construction of a Global Patient co-Owned Cloud (GPOC), i.e., with a focus on the infrastructures used discussed below. A sandbox environment enables research into these and other emerging infrastructures.…”

“…The model is designed to improve PHR interoperability and sharing. 19 Bhattacharya and team conclude that blockchain-based PHR systems are now the most popular in healthcare, given their way of upholding privacy and security. 20 They suggested a model called Blockchain-Based Deep Learning as-a-Service (BinDaaS), which is a combination of blockchain and a deep-learning platform with clinical prediction features embedded.…”

“…Our approach leverages a modular protocol architecture to serve as a way of unifying emerging technologies from across the globe with the intention of facilitating the development of new tools to support co-ownership. [17][18][19][20][21][22][23][24][25][26][27][28][29][30][31][32] The reason for a modular architecture is that stakeholders; patients, their families, clinicians, organisations, and governments have different regulatory requirements or preferences and can remove or add elements to support their respective needs. Such needs could be modelled as a consensus-based optimisation construct allowing the patient to be at the centre of the conversation with all stakeholder input through their personal health record.…”

Blockchain for Healthcare Management Systems: A Survey on Interoperability and Security

“…Also, seamless synchronization and secure communication for interoperability between various healthcare institutions is an issue that needs to be addressed, as it is crucial to ensure the quality of healthcare services and modern research [85]. Standardization and international cooperation for the dissemination of standards are indispensable to improve the interoperability of e-health services [74].…”

“…Moreover, an application programming interface (API) (in Figure 11) is used to support the integration of hospital and clinic HMS systems online [55], and offline data (IT4). They are also used for data conversion and translation (IT1) installed in the HMS and a relay server connected to the BC to ensure data integrity [74].…”