2018
DOI: 10.1136/bmjopen-2017-018987
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Developing a UK registry to investigate the role of cardiovascular magnetic resonance (CMR) in patients who activate the primary percutaneous coronary intervention (PPCI) pathway: a multicentre, feasibility study linking routinely collected electronic patient data

Abstract: ObjectivesTo determine whether it is feasible to set up a national registry, linking routinely collected data from hospital information systems (HIS), to investigate the role of cardiovascular magnetic resonance (CMR) in patients who activate the primary percutaneous coronary intervention (PPCI) pathway.DesignFeasibility prospective cohort study, to establish whether: (1) consent can be implemented; (2) data linkage and extraction from multiple HIS can be achieved for >90% of consented patients; (3) local data… Show more

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Cited by 6 publications
(13 citation statements)
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“…exposure to tests) and consent (e.g. conventional ways of obtaining consent are too time consuming for a registry with no primary data collection [9]). However, this does not invalidate the concept of creating a composite outcome that reflects changes in management as a result of having an imaging test.…”
Section: Discussionmentioning
confidence: 99%
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“…exposure to tests) and consent (e.g. conventional ways of obtaining consent are too time consuming for a registry with no primary data collection [9]). However, this does not invalidate the concept of creating a composite outcome that reflects changes in management as a result of having an imaging test.…”
Section: Discussionmentioning
confidence: 99%
“…hospitals without access to a local dedicated CMR service. Patient identification, recruitment and consent have been described previously [9]. Patients entered the cohort at the point they activated the PPCI pathway (i.e.…”
Section: Methodsmentioning
confidence: 99%
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“…Opportunities to involve children in research today are much greater [1], yet recruiting paediatric research participants remains challenging. Speci c challenges include ethical and practical concerns about overburdening parents in acute and emergency healthcare contexts where families may be experiencing intense emotional or psychological stress [3]. Recruiting insu cient research participants can be a barrier to conducting research and result in waste of research resources [4][5][6].…”
Section: Introductionmentioning
confidence: 99%
“…In this paper, we present a health economic analysis based on a study that was designed to establish the feasibility of setting up a UK multicentre registry to document CMR use in patients who activate the PPCI pathway and determine its prognostic value and impact on patient management 23. Here, we present the results of two economic decision models which we designed to compare the cost-effectiveness of introducing CMR in two patient subgroups: patients with multivessel disease and those with unobstructed coronary arteries.…”
Section: Introductionmentioning
confidence: 99%