Determinants of caregiver burden of persons with disabilities in a rural district in Egypt

Abstract

Background: Family caregivers are critical partners in the plan of care of people with disabilities. The study aims to demonstrate the factor structure and internal consistency of the Caregiver Burden Inventory (CBI) among the studied caregivers of disabled persons and to determine the effects of patients' and caregivers' characteristics on the burden and its dimensions. Methods: A cross-sectional study among 260 family caregivers of disabled patients was carried out in a randomly chosen rural area, Minia, Egypt, 2019. Exploratory factor analysis (EFA) was conducted to determine the factorial validity of the CBI. Multiple linear regression was used to identify the significant factors affecting the burden. Results: Factor analysis resulted in a five-factor solution using 20 items (four for each dimension) accounting for 72.7% of the total variance. The CBI and its dimensions showed high internal consistency (Cronbach's alpha value > 0.70). Education of caregiver, family income, mental impairments, and mixed disabilities were significant predictors of total CBI burden. Conclusions: CBI is an effective multidimensional measure of the caregiver burden of disabled subjects. Caregivers experienced a distinct level of burden that is determined by caregiver and care recipient characteristics. Therefore, support and individualized counseling services should be optimized.

Exploring role strain and experiences of caregivers of children living with disabilities

“…Due to juggling caregiving responsibilities and work, the caregivers reported they could not meet their objectives due to fatigue and spending most time away, especially due to frequent medical check-ups needed by their children. The findings are supported byFast (2015) in a study that revealed working caregivers have decreased productivity at their jobs especially public sector employees. They miss most days at work due to their caregiving responsibilities, which consequently affects their productivity negatively and posing a risk of getting fired.…”

“…According to Ghazawy et al ( 2020 ), as the strain of caring for a child living with a disability increases, caregivers can face exposure to mental and physical health difficulties, which may affect their quality of life if they cannot receive support. In this study, the participants described the overall health of the caregiver as one of the challenges they experience as they care for their children living with disabilities.…”

Effect of a tailored multidimensional intervention on the care burden among family caregivers of stroke survivors: a randomised controlled trial

“…Additionally, all of the stroke survivors in our study had high levels of dependence, most were older adults, and more than two-thirds had other chronic illnesses—factors that also determine the care burden 26 54 82–87. These findings reflect the social conditions of Egyptian family caregivers and the growing care demands of stroke survivors that are inherent to the concept of care burden and other negative stressors 32 88 89…”

Violence in rural areas against disabled people from the perspective of their families

“…In this way, family members need to mobilize all available resources to face critical economic conditions, seeking, for example, to produce food and raise animals for consumption. Thus, a cross-sectional study carried out in a rural area of Egypt, with 260 family caregivers of DP, revealed that 37% (n = 90) reported worsening in their economic level ( 38 ) . Financial difficulties prevent, among others, the purchase of medicines and the use of transport to seek health care ( 13 - 14 , 31 ) .…”