Desire to institutionalize in Alzheimer's caregivers: An empirical analysis on Italian data

Colucci, Luisa; Molino, Ivana; Amenta, Francesco; Gaeta, Giuseppe Lucio

doi:10.1016/j.archger.2017.12.009

Cited by 2 publications

(4 citation statements)

References 30 publications

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“…Besides these limitations, important strengths of this study can be addressed as well. First of all, the sample size of this study is substantially larger than in previous studies focusing on DTI [4, 5, 8, 14, 15]. Second, the focus is strictly on informal CG of PWD while others often only included them as a subsample [8, 32].…”

Section: Discussionmentioning

confidence: 86%

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Factors Associated with the Caregivers’ Desire to Institutionalize Persons with Dementia: A Cross-Sectional Study

Vandepitte

Putman

Noortgate

et al. 2018

Dement Geriatr Cogn Disord

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Background/Aims: Dementia is one of the main reasons for institutionalization among the elderly. Few studies have explored factors associated with the caregivers’ (CG) desire to institutionalize (DTI) a person with dementia (PWD). The objective of this study is to identify modifiable and non-modifiable psychosocial and sociodemographic factors associated with a caregiver’s DTI. Methods: Cross-sectional data of 355 informal CG of community-dwelling PWD were analyzed. Several characteristics were identified in CG and PWD to be included in a multivariable regression model based on the purposeful selection method. Results: Positively modifiable associated factors were: higher CG burden, being affected by behavioral problems, and respite care use. Positively associated non-modifiable factors were: CG older age, being professionally active, and CG higher educational level. Cohabitation and change of professional situation were negatively associated. Conclusion: Although no causality can be assumed, several practical recommendations can be suggested. First of all, these results reconfirm the importance of multicomponent strategies, especially support aimed at decreasing burden and in learning coping strategies. Also, CG might benefit from information about support options, such as respite care services. Finally, special attention should be given to older and working CG. In the latter, flexible and adaptive working conditions might alleviate burden and therefore reduce the DTI of the PWD.

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Section: Discussionmentioning

confidence: 86%

“…Finally, a recent trial ( n = 171) revealed some counterintuitive results. The study concluded that being a housewife primary caregiver was positively associated with DTI, and being a female PWD was negatively associated with DTI [15]. …”

Section: Introductionmentioning

confidence: 99%

Factors Associated with the Caregivers’ Desire to Institutionalize Persons with Dementia: A Cross-Sectional Study

Vandepitte

Putman

Noortgate

et al. 2018

Dement Geriatr Cogn Disord

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“…Positively associated factors related to PwD included the severity of neuropsychiatric symptoms also observed by Kapoor et al ( 14 ) and Vandepitte et al ( 15 ) but not the level of functional independence [contrasting with conclusions by Colucci et al ( 13 ) and Kapoor et al ( 14 )]. This finding, however, was not at odds with previous literature ( 18 , 19 ), including research showing that dementia stages and activities of daily living have indirect effects on caregiver burden through behavioral and psychological symptoms of dementia, which exert a mediating effect ( 54 ).…”

Section: Discussionmentioning

confidence: 72%

“…The desire to institutionalize is significantly less researched than actual institutionalization, but it is suggested that it shares similar predictors (4). This thesis is supported by recent research on predicting the desire to institutionalize, which has found that the most consistent predictors of actual institutionalization, such as poor autonomy and frequency of BPSD in PwD, as well as caregivers' burden, also serve as predictors of the desire to institutionalize (13)(14)(15).…”

Section: Introductionmentioning

confidence: 60%

Willingness to institutionalize a relative with dementia: a web-platform assessment with the Portuguese adapted version of the Desire-to-Institutionalize Scale

Teles,

Napolskij,

Ribeiro

et al. 2024

Front. Med.

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IntroductionOlder persons with dementia (PwD) are more likely to be institutionalized than their counterparts without dementia. The caregiver’s desire to institutionalize has been suggested as the most important predictor of actual institutionalization. This cross-sectional study aimed to culturally adapt the Desire to Institutionalize Scale (DIS) to a country with a high prevalence of dementia (Portugal) and examine its psychometric properties.MethodsThe reliability, structural validity, and criterion validity of the DIS-PT were assessed by applying the scale using a remote measurement web platform. A sample of 105 dementia caregivers completed the DIS-PT and several psychosocial measures, including caregiver burden, anxiety, depression, quality of life, PwD functional independence, and neuropsychiatric symptoms.ResultsThe DIS-PT demonstrated good structural validity, with one factor explaining 75% of the total variance. The internal consistency of the scale was high (α = 0.802). Most caregivers (65.7%) endorsed at least one item on the DIS-PT (Mdn 2). The caregiver’s desire to institutionalize was significantly associated with the caregiver, care recipient, and contextual variables previously known to affect institutional placement. These included the caregivers’ occupational status, perceived burden, anxiety (but not depression), physical and psychological quality of life, care recipient education, severity of neuropsychiatric symptoms, and cohabitation with the caregiver.DiscussionThis study offers preliminary support for the psychometric quality of the DIS-PT. The scale has practical applications in the early identification of caregivers considering nursing home placement, providing room for intervention in modifiable risk factors that may otherwise lead to the institutionalization of PwD. Remote measurement tools may hold value in assessing caregiving dyads non-intrusively and inexpensively.

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Desire to institutionalize in Alzheimer's caregivers: An empirical analysis on Italian data

Cited by 2 publications

References 30 publications

Factors Associated with the Caregivers’ Desire to Institutionalize Persons with Dementia: A Cross-Sectional Study

Factors Associated with the Caregivers’ Desire to Institutionalize Persons with Dementia: A Cross-Sectional Study

Willingness to institutionalize a relative with dementia: a web-platform assessment with the Portuguese adapted version of the Desire-to-Institutionalize Scale

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