Factors Associated with the Caregivers’ Desire to Institutionalize Persons with Dementia: A Cross-Sectional Study

Vandepitte, Sophie; Putman, Koen; Noortgate, Nele Van Den; Verhaeghe, Sofie; Mormont, Eric; Wilder, Lisa Van; Smedt, Delphine De; Annemans, Lieven

doi:10.1159/000494023

Cited by 20 publications

(34 citation statements)

References 37 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Research has proven also that lower DIS is associated with lower burden, and with being able to better cope with the behavioral problems of the dementia patient. 39 However, our trial did not reveal a significantly reduced caregiver burden nor improved coping with behavioral problems.…”

Section: Discussioncontrasting

confidence: 59%

Effectiveness of an in‐home respite care program to support informal dementia caregivers: A comparative study

Vandepitte

Putman

Noortgate

et al. 2019

Int J Geriat Psychiatry

Self Cite

View full text Add to dashboard Cite

Objectives Dementia is a major public health problem with important physical, psychosocial, emotional, and financial consequences for patients, their caregivers, and society. Since patients prefer to be managed at home, extensive research has been conducted into effectiveness of psychosocial interventions to support informal caregivers. The aim of this study was to assess the effectiveness of an in‐home respite care program. Methods In a prospective quasi‐experimental study, 99 dyads who received an in‐home respite care program were compared at 6 months post‐baseline, with 99 matched dyads receiving standard dementia care. Additionally, the short‐term effect of the program was evaluated 14 to 15 days post‐intervention. The primary outcome was caregiver burden. The secondary outcomes were: desire to institutionalize the patient, caregiver quality of life, and frequency and impact of behavioral problems. Mixed model analyses were performed to evaluate the impact of the intervention. Results After 6 months, no significant difference on caregiver burden was observed, but intervention group caregivers had a significant lower desire to institutionalize the patient compared with control group caregivers (adj.diff = −0.51; p = .02). Shortly after the program, intervention group caregivers also had a significant lower role strain (adj.diff = 0.75; p = .05), and a lower burden on social and family life (adj.diff = 0.55; p = .05) compared with baseline. Conclusions This study was the first comparative study to investigate effectiveness of an in‐home respite care program to support informal caregivers of persons with dementia. The results partly confirm earlier positive findings from explorative studies.

show abstract

Section: Discussioncontrasting

confidence: 59%

Effectiveness of an in‐home respite care program to support informal dementia caregivers: A comparative study

Vandepitte

Putman

Noortgate

et al. 2019

Int J Geriat Psychiatry

Self Cite

View full text Add to dashboard Cite

show abstract

“…In the second phase of the analysis, we ran a multiple logistic regression model, as the decision about care choice arrangement is often a combination of many factors [3,22]. We suspected that some of the demographic variables were likely to be highly correlated (for example, family structure and number of dependents), and the correlation would result in confounding effects in the multiple logistic regression results.…”

Section: Discussionmentioning

confidence: 99%

“…Extant research regarding the choice of care arrangements mostly focuses on the characteristics associated with the decision to institutionalise the elderly [14,21], with a segment of related research focussing on the decision to institutionalise PWD [3,22]. Related research mainly focuses on the dynamics that paid home caregivers introduce in familial caregiving settings [4,[23][24][25][26].…”

Section: Introductionmentioning

confidence: 99%

Demographic Characteristics Associated with the Likelihood to Use Paid Home Care for People with Dementia among South African Muslims

Ramaboa

Fredericks

2019

Dement Geriatr Cogn Disord

View full text Add to dashboard Cite

Background: In societies where the value of filial piety is observed, a preference for caregiving to take place at home exists. In fact, institutional and paid home care for people with dementia (PWD) are still taboo in some Muslim societies. However, economic development and globalisation have resulted in intergenerational separation, thus impacting the ability by young adults to provide care for the elderly at home. Objective: We establish the demographic characteristics most likely to be associated with the use of paid home care -age, gender, education level, marital status, family structure, experience with dementia care in the family, and number of dependents -for PWD among South African Muslims. Methods: A survey, administered in the form of an online questionnaire, of Muslim families across each of the 9 provinces of South Africa was conducted. Multiple logistic regression was used to test the effects of the demographic variables on the type of care choice arrangement (family as primary caregiver vs. paid home caregiving). Results: 422 responses were analysed, 28% of which indicated the respondents' desire to use paid home caregivers. The multiple logistic regression results indicate that South African Muslim families are more likely to use paid home care if they are older (that is, over 40 years; OR = 1.972, 95% CI: 1.445-2.695), are female (OR = 1.637, 95% CI: 1.089-2.457), and have high levels of education (OR = 1.828, 95% CI: 1.070-3.125). Conclusion: Home-based care is touted as the next dementia care model. Given that intergenerational mobility is likely to increase as future generations continue to participate more in the labour market, minority groups with a disposition to the same familial social values will require appropriate support in order to cope with the demands of caring for PWD. Suitable interventions for Muslim families who are not open to using external assistance, as well as those who are, need to be administered to enable the caregiver and care recipient to thrive at home.

show abstract

“…Formal care may not currently represent socially acceptable and expressive attitudes for Muslims in South Africa. However, given the burden on families as dementia progresses, and the high costs associated with informal care for PWD [2,4,8,13,14], the government needs to put more resources into increasing facilities to cater to the needs of PWD and deliver effective culturally congruent care. Family support typically continues in formal-care settings, with the burden on the family said to decrease compared to when caregiving takes place at home [15,43].…”

Section: Discussionmentioning

confidence: 99%

“…of caregiving responsibilities, and/or not deriving any benefits from providing care [2,4,8,13,14,17]. For Muslims, value incongruence, due to the adaptation that has being brought about by economic development and globalisation may have developed across the different family structures, and also as a result of experiencing the challenges associated with caring for PWD.…”

mentioning

confidence: 99%

Muslims’ Affective and Cognitive Attitudes towards Formal Dementia Care in South Africa: Do They Vary according to Family Structure and the Experience of Familial Caregiving?

Ramaboa

Fredericks

2019

Dement Geriatr Cogn Disord

View full text Add to dashboard Cite

Background: The feelings and beliefs of some social groups sharing the same values about formal care institutions impacts their likelihood of using such services. Socialisation theory posits that there should not be any difference in attitudes towards formal care in the Muslim community, as they are influenced by the principles of Confucianism. However, demographic, epistemological, and socio-economic trends, as well as globalisation, may be impacting the efficacy of caring for people with dementia (PWD) at home. Objective: This study examines the affective and cognitive attitudes of South African Muslims towards formal care, and whether they vary according to family structure and experience with informal dementia care. Methods: We conducted a survey, administered in the form of an online questionnaire, of Muslim families across each of the 9 provinces of South Africa. The topics addressed included the demographics of the respondents, whether they had experience with informal dementia care, the structure of their family, and affective and cognitive attitudinal variables. Results: 422 responses were analysed, with the results demonstrating negative attitudes across family structures and experience with informal dementia care. This indicates that the changes brought about by economic development and globalisation are not impacting the social influence of the Islam religion towards caregiving. Conclusion: With up to 90% of PWD moving into formal care before they die in some countries, governments and other service providers of formal care need to provide culturally congruent care. There is also a need to build rela-

show abstract

Factors Associated with the Caregivers’ Desire to Institutionalize Persons with Dementia: A Cross-Sectional Study

Cited by 20 publications

References 37 publications

Effectiveness of an in‐home respite care program to support informal dementia caregivers: A comparative study

Effectiveness of an in‐home respite care program to support informal dementia caregivers: A comparative study

Demographic Characteristics Associated with the Likelihood to Use Paid Home Care for People with Dementia among South African Muslims

Muslims’ Affective and Cognitive Attitudes towards Formal Dementia Care in South Africa: Do They Vary according to Family Structure and the Experience of Familial Caregiving?

Contact Info

Product

Resources

About