Delaktig (även) på äldre dar : Åldrande och delaktighet bland personer med intellektuell funktionsnedsättning som bor i gruppbostad

Kåhlin, Ida

doi:10.3384/diss.diva-113336

Cited by 7 publications

(11 citation statements)

References 58 publications

(118 reference statements)

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“…Particularly apparent is the absence of participation that occurs when staff lack working methods to enable participation. This was also shown in similar studies, concerning staff working with older people with ID in group homes (Kåhlin, 2015;Jormfeldt, 2016;Johansson, 2017). Absence of participation, due to a lack of working methods and, not least, a lack of evidence-based working methods can be perceived as a threat to participation (National Board of Health and Welfare, 2019).…”

Section: Marginalization In Societysupporting

confidence: 66%

“…Intellectual disability is thereby constructed by social interactions between individuals (Kjellberg, 2002;Hammel et al 2008;Hedlund, 2009). Disability is not solely an attribute of an individual, rather it is a complex combination of various conditions in the environment (Renblad, 2003;Kåhlin 2015). Notably, Hedlund (2009) points out that both the medical and social models have been criticized for associating limitations exclusively to either the individual´s diagnosis or to the environment.…”

Section: Models To Define Disabilitymentioning

confidence: 99%

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Experiences of everyday life and participation for people with intellectual disabilities : from four perspectives

Hallrup¹

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People with intellectual disabilities are dependent in many ways on the support of others if they are to have access to social life, services and support in society. In order to participate in various activities, they need intellectual and social support. This means that participation for them, depends in several ways on other people´s willingness to facilitate and promote participation. This imposes high demands on those professionals providing formal support for them. Hence, the overall aim of this thesis was to explore and describe from four perspectives the experiences of everyday life and participation for people with intellectual disabilities. The thesis contains four qualitatively oriented studies, which have evolved over time. Studies I-II, including participant observations and interviews, and were conducted in group homes with staff and adults with intellectual disabilities. Furthermore, it emerged that adults with intellectual disabilities experienced different limitations in their everyday life, which indicates a lack of opportunity for participation (Study II). From the findings of these two studies, it became clear that participation is a central focus and that leadership is of particular significance for how participation is implemented; therefore, interviews were conducted with service managers (Study III). Lastly, within the framework of this thesis, the aim was directed at focus groups with significant others as the fourth perspective to provide a broad framing of what participation can mean for people with intellectual disabilities. Despite the fact that the disability policy has contributed to improvements for this target group, there are currently extensive shortcomings. This study has revealed deficiencies such as the lack of working methods to help staff facilitate participation (Study I); the lack of care worker´ continuity and the existence of many routines and rules in the group homes (Study II); more overarchingly, the financial situation was not adequate to promote participation (Studies III and IV). Consequently, there were also strengths and opportunities for a good everyday IV. Berlin Hallrup L., Kumlien C., Carlson E. (2019) Participation in Everyday Life for People with Intellectual Disabilities in Sweden. The Experiences of Significant Others'. Manuscript submitted to the Journal of Applied Research in Intellectual Disabilities.

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Section: Marginalization In Societysupporting

confidence: 66%

Section: Models To Define Disabilitymentioning

confidence: 99%

Experiences of everyday life and participation for people with intellectual disabilities : from four perspectives

Hallrup¹

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“…In group homes, participation can be described as different kinds of 'doing': doing with others, doing for others and being part of someone else's doing. In addition, group home staff may perceive that residents' participation and agency are limited by residents' impairments, and that knowledge about residents' own needs and desires may be insufficient (Bigby et al 2015;Kåhlin 2015). Since support staff play a vital role in providing support and individual assistance to residents in group homes, it is not uncommon for services and support to be influenced by staffs' personal values and attitudes.…”

Section: Group Homesmentioning

confidence: 99%

“…A home is a fundamental aspect of constructions of identity, social relationships, independence and participation (Annison 2000;Sixsmith 1986;Tideman 2000). Research on group homes for people with intellectual disability labels has often focused on residents' living conditions, on the content of the provided services and on support staffs' management and promotion of residents' autonomy and decision-making (see Kåhlin 2015;Talman 2018;Tideman 2000). Due to their intellectual disability labels, residents in group homes have been viewed as unable to make well-founded choices (Hellzen, Haugenes, and € Ostby 2018; Talman et al 2019).…”

Section: Introductionmentioning

confidence: 99%

An observation study of power practices and participation in group homes for people with intellectual disability

Svanelöv

2019

Disability & Society

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“…Ett queert perspektiv på livsloppet destabiliserar med andra ord idéer om vad det innebär att vara "i och ur fas" eller miss/lyckad i relation till ålder, men ifrågsätter också själva logikerna som miss/lyckande bygger på. Dessa resultat ligger också i linje med Ida Kåhlins avhandling om äldre personer med intellektuell funktionsnedsättning där hon visar hur de upplever sig som mer normala eller vanliga när de blir äldre, då funktionsnedsättningar är mer normaliserade (Kåhlin, 2015).…”

Section: Posthumanistiska Perspektiv På äLdre Och åLdrandeunclassified

Queera livslopp : Att leva och åldras som lhbtq-person i en heteronormativ värld

Siverskog¹

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Delaktig (även) på äldre dar : Åldrande och delaktighet bland personer med intellektuell funktionsnedsättning som bor i gruppbostad

Cited by 7 publications

References 58 publications

Experiences of everyday life and participation for people with intellectual disabilities : from four perspectives

Experiences of everyday life and participation for people with intellectual disabilities : from four perspectives

An observation study of power practices and participation in group homes for people with intellectual disability

Queera livslopp : Att leva och åldras som lhbtq-person i en heteronormativ värld

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