An observation study of power practices and participation in group homes for people with intellectual disability

Svanelöv, Eric

doi:10.1080/09687599.2019.1691978

Cited by 17 publications

(22 citation statements)

References 23 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The examples presented suggest that at times the agendas of people with severe intellectual disability and staff members do not align. Svanelöv (2019) acknowledges that there are unequal power relations between people with intellectual disabilities and those staff who support them (see also Jingree et al, 2006). He describes what he calls ‘a scheduled must’, which is the idea that because an activity (such as eating) has been institutionally scheduled at a certain time, this is the time it must occur.…”

Section: Discussionmentioning

confidence: 99%

“…Eric's rationale suggests that institutional schedules take precedence over the preference of the individual. Svanelöv (2019) suggests that institutional ideas of what is good for a person with disabilities are often imposed upon them in services, while Altermark (2017) points out that staff members tend to teach capabilities they think are necessary so that the person with intellectual disabilities can live as ‘normal’ a life as possible (Björne, 2020; Hellzen, Haugenes & Östby, 2018). However, this can leave little room for the person using the service to make decisions about how they spend their time.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Forms of resistance in people with severe and profound intellectual disabilities

Nicholson

Finlay

Stagg

2021

Sociology Health & Illness

View full text Add to dashboard Cite

Government policy in the UK emphasises that people with intellectual disabilities should have the opportunity to make choices and exert control over their own lives as much as possible. The ability of a person to resist activities and offers is therefore important, particularly for people with severe and profound intellectual disabilities, who are likely to have language impairments and need to communicate their choices non‐verbally. Video and ethnographic data were collected from two services for people with severe and profound intellectual disabilities. Examples of resistance by people with severe and profound intellectual disabilities and responses to that resistance by support workers were collected and examined using conversation analysis and ethnographic description. A range of non‐verbal resistance behaviours are described, and the difficulty for support workers in identifying resistance when behaviour is ambiguous is discussed. The importance of understanding these behaviours as examples of decision‐making is stressed.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Forms of resistance in people with severe and profound intellectual disabilities

Nicholson

Finlay

Stagg

2021

Sociology Health & Illness

View full text Add to dashboard Cite

show abstract

“…During his past and present life, Ted has been subject to the attention and interventions of diverse health and social care professionals who possess power. For most people with learning disabilities that require support, and reside in staffed accommodation, the choices and opportunities accessible to them in their everyday lives depend on the benevolence of care staff (Dowson, 1997; Svanelov, 2019). Research has investigated the balance of power in the context of therapeutic interactions with individuals with learning disabilities, through a process of interactional analysis.…”

Section: Discussionmentioning

confidence: 99%

Narrating personal experience of living with learning disabilities and mental health issues in institutional and community settings: A case study

Sutton

Gates

2020

Brit J Learn Disabil

View full text Add to dashboard Cite

Accessible summary This is a case study about a man with learning disabilities who has mental health issues. The case study describes the way that he told a researcher about his life. Thirty years of his earlier life were spent in a long‐stay hospital in England, UK and more recently he has lived in a community setting with five other people. This research is important as it assists us to understand the experiences of people with learning disabilities who have mental health needs. Abstract BackgroundHistorically, the emotional lives and mental health needs of adults with learning disabilities received scant attention, especially when the policy of institutionalisation was at its zenith in the UK. Materials and MethodsThis case study employed biographical narrative interviews based on a psychosocial approach. The main sources of data production were two loosely structured, audio‐taped, interviews with a man with learning disabilities. This approach uses free association to elicit an individual's stories about his lived experiences. Additional information was acquired from consultations with key care staff and clinical records maintained by the man's service provider. ResultsData revealed insights into the biography of this man who had a diagnosed mental health disorder. These data recall his personal journey through the care system which took place during an important historical period encompassing both long‐term institutionalisation in segregated settings, and the subsequent implementation of the policy of community care in the UK. He recalls positive and negative experiences while residing in a long‐stay hospital, and the related thoughts and feelings about his life in a community setting in more recent years. ConclusionThis case study contributes to an increasing body of studies that perceive the use of in‐depth interviewing of individuals with learning disabilities as having high ecological validity in the development of authentic knowledge, not readily available through other methods used in the co‐production of data.

show abstract

“…People living in group homes may experience barriers to accessibility in their own homes because of DOI: 10.4324/9781003120452-14 normalising codes of conduct that guide residents to that which is considered right and appropriate behaviour. Group homes in Sweden are not institutions, however, they can have institutional characteristics, with organisational scheduled social care and ideas of fostering residents towards doing what one should do to be 'normal' (Svanelöv, 2019). The Swedish legislation concerning Support and Service for Persons with Certain Functional Impairments (LSS), which aims to facilitate equal living conditions, societal community participation and accessibility, has the support service of housing with special services, so-called group homes, available for people with intellectual disability (SFS, 1993: 387, §9).…”

Section: Group Homesmentioning

confidence: 99%

Accessibility Denied. Understanding Inaccessibility and Everyday Resistance to Inclusion for Persons with Disabilities

Egard¹,

Hansson²,

Wästerfors³

2021

View full text Add to dashboard Cite

This book explores the societal resistance to accessibility for persons with disabilities, and tries to set an example of how to study exclusion in a time when numerous policies promise inclusion.With 12 chapters organised in three parts, the book takes a comprehensive approach to accessibility, covering transport and communication, knowledge and education, law and organisation. Topics within a wide cross-disciplinary field are covered, including disability studies, social work, sociology, ethnology, social anthropology, and history. The main example is Sweden, with its implementation of the United Nations Convention on the Rights of Persons with Disabilities within the context of the Nordic welfare state. By identifying and discussing persistent social and cultural conditions as well as recurring situations and interactions that nurture resistance to advancing accessibility, despite various strong laws promoting it, the book's conclusions are widely transferable. It argues for the value of alternating between methods, theoretical perspectives, and datasets to explore how new arenas, resources and technologies cause new accessibility concernsand possibilitiesfor persons living with impairments. We need to be able to follow actors closely to uncover how they feel, act, and argue, but also to connect to wider discursive and institutional patterns and systems. This book will be of interest to scholars and students of disability studies, social work, sociology, ethnology, social anthropology, political science, and organisation studies.

show abstract

An observation study of power practices and participation in group homes for people with intellectual disability

Abstract: To cite this article: Eric Svanelöv (2019): An observation study of power practices and participation in group homes for people with intellectual disability, Disability & Society,

Cited by 17 publications

References 23 publications

Forms of resistance in people with severe and profound intellectual disabilities

Forms of resistance in people with severe and profound intellectual disabilities

Narrating personal experience of living with learning disabilities and mental health issues in institutional and community settings: A case study

Accessibility Denied. Understanding Inaccessibility and Everyday Resistance to Inclusion for Persons with Disabilities

Contact Info

Product

Resources

About