Definitions, instruments and correlates of patient empowerment: A descriptive review

Mora, Mariela Acuña; Sparud-Lundin, Carina; Moons, Philip; Bratt, Ewa‐Lena

doi:10.1016/j.pec.2021.06.014

Cited by 41 publications

(27 citation statements)

References 34 publications

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“…In the criteria validity assessment, the total score and scores for each factor of the 37-item PES-J were correlated with the HLC, SE, SOC-13, RSES, and PGC. Self-efficacy, self-esteem, locus of control, and sense of coherence have been clearly conceptualized and used as important means of measuring patient empowerment [ 11 , 24 , 25 , 48 ]. Furthermore, patient empowerment has been found to relate strongly to subjective satisfaction and improvement in quality of life [ 49 ].…”

Section: Discussionmentioning

confidence: 99%

Reliability and Validation of the Japanese Version of the Patient Empowerment Scale

Tsubouchi

Tainosho²,

Shimomura³

et al. 2022

Healthcare

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Empowerment scales for inpatients have been developed worldwide, but their validity and reliability have not been adequately tested and applied to the health promotion and care among older adults during hospitalization. In this study, the Patient Empowerment Scale developed by Faulkner was translated into Japanese, and Japanese patients were surveyed to test its clinical applicability. To test its applicability, 151 patients in rehabilitation wards were surveyed in four municipalities. After considering ceiling/floor effects and validating the structure, the Patient Empowerment Scale—Japanese comprised 37 items and six factors: subject–staff interaction, environmental adjustment through collaboration, necessary information gathering and problem awareness, proactive behavioral practices, self-disclosure, and self-management of activities. Criteria-related validity assessment confirmed the scale’s correlation with the Health Locus of Control Scale, General Self-Efficacy Scale, 13-item Sense of Coherence Scale, Rosenberg Self-Esteem Scale, and Philadelphia Geriatric Center Morale Scale. Regarding internal consistency, the Cronbach’s alpha was 0.93 for all 37 items. The Cronbach’s alphas for the six factors were 0.93, 0.91, 0.92, 0.92, 0.91, and 0.75, respectively. In our test/re-test of reliability, Spearman’s rank correlation coefficient between the first and second total scores was ρ = 0.96, p < 0.01. These results confirm the scale’s validity and reliability, and its applicability to older hospitalized patients.

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Section: Discussionmentioning

confidence: 99%

Reliability and Validation of the Japanese Version of the Patient Empowerment Scale

Tsubouchi

Tainosho²,

Shimomura³

et al. 2022

Healthcare

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“…Even when there is literature suggesting patient empowerment is associated with other variables in the long-term [ 8 , 49 ], there is still a lack of longitudinal research [ 50 ], meaning the available evidence supporting current models on patient empowerment is relatively low. This study is one of the first ones in providing longitudinal evidence that informs the potential predictive value of patient empowerment.…”

Section: Discussionmentioning

confidence: 99%

The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?

Mora

Sparud-Lundin²,

Fernlund³

et al. 2022

PLoS ONE

Self Cite

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Background Theoretical literature and cross-sectional studies suggest empowerment is associated with other patient-reported outcomes (PROs). However, it is not known if patient empowerment is leading to improvements in other PROs or vice versa. Aims The present study aimed to examine the direction of effects between patient empowerment and PROs in young persons with congenital heart disease (CHD). Methods As part of the STEPSTONES-CHD trial, adolescents with CHD from seven pediatric cardiology centers in Sweden were included in a longitudinal observational study (n = 132). Data were collected when patients were 16 (T0), 17 (T1) and 18 ½ years old (T2). The Gothenburg Young Persons Empowerment Scale (GYPES) was used to measure patient empowerment. Random intercepts cross-lagged panel models between patient empowerment and PROs (communication skills; patient-reported health; quality of life; and transition readiness) were undertaken. Results We found a significant cross-lagged effect of transition readiness over patient empowerment between T1 and T2, signifying that a higher level of transition readiness predicted a higher level of patient empowerment. No other significant cross-lagged relationships were found. Conclusion Feeling confident before the transition to adult care is necessary before young persons with CHD can feel in control to manage their health and their lives. Clinicians interested in improving patient empowerment during the transitional period should consider targeting transition readiness.

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“…Recent research highlights the need to improve and evaluate patient empowerment in persons with CCs [ 4 ]. However, the availability of instruments with a strong theoretical background and/or acceptable psychometric properties is limited [ 6 ].…”

Section: Discussionmentioning

confidence: 99%

“…There is a considerable amount of research on patient empowerment, both theoretically and empirically [ 4 ]. However, to date, there is no consensus on how to define patient empowerment or which instrument is best at capturing this construct.…”

Section: Introductionmentioning

confidence: 99%

“…However, to date, there is no consensus on how to define patient empowerment or which instrument is best at capturing this construct. There are approximately 30 different definitions available and more than 40 instruments [ 4 ]. Moreover, a detailed assessment of current instruments has indicated that a vast majority lack a clear theoretical ground and have poor validity and reliability [ 5 , 6 ].…”

Section: Introductionmentioning

confidence: 99%

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Gothenburg Empowerment Scale (GES): psychometric properties and measurement invariance in adults with congenital heart disease from Belgium, Norway and South Korea

Mora

Raymaekers

Bulck

et al. 2022

Health Qual Life Outcomes

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Background Patient empowerment is associated with improvements in different patient-reported and clinical outcomes. However, despite being widely researched, high quality and theoretically substantiated disease-generic measures of patient empowerment are lacking. The few good instruments that are available have not reported important psychometric properties, including measurement invariance. The aim of this study was to assess the psychometric properties of the 15-item Gothenburg Empowerment Scale (GES), with a particular focus on measurement invariance of the GES across individuals from three countries. Methods Adults with congenital heart disease from Belgium, Norway and South Korea completed the GES and other patient-reported outcomes as part of an international, cross-sectional, descriptive study called APPROACH-IS II. The scale’s content (missing data) and factorial validity (confirmatory factor analyses), measurement invariance (multi-group confirmatory factor analyses), responsiveness (floor and ceiling effects) and reliability (internal consistency) were assessed. Results Content validity, responsiveness and reliability were confirmed. Nonetheless, metric but not scalar measurement invariance was supported when including the three countries, possibly because the scale performed differently in the sample from South Korea. A second set of analyses supported partial scalar invariance for a sample that was limited to Norway and Belgium. Conclusion Our study offers preliminary evidence that GES is a valid and reliable measure of patient empowerment in adults with congenital heart disease. However, cross-country comparisons must be made with caution, given the scale did not perform equivalently across the three countries.

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Definitions, instruments and correlates of patient empowerment: A descriptive review

Cited by 41 publications

References 34 publications

Reliability and Validation of the Japanese Version of the Patient Empowerment Scale

Reliability and Validation of the Japanese Version of the Patient Empowerment Scale

The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?

Gothenburg Empowerment Scale (GES): psychometric properties and measurement invariance in adults with congenital heart disease from Belgium, Norway and South Korea

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