Danish translation, adaptation and validation of the ABILHAND-Kids questionnaire for children with cerebral palsy

Hansen, Alice Ørts; Poulsen, Helle S.; Kristensen, Hanne Kaae; Lauridsen, Henrik Hein

doi:10.1080/09638288.2020.1780482

Cited by 5 publications

(7 citation statements)

References 48 publications

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“…Regarding reliability, we reported test-retest values (ICC = 0.99) that revealed excellent stability over a one week time interval, consistent with reports from such other countries as Saudi Arabia (0.98; Alnahdi et al., 2020), Iran (0.96; Mohammadkhani-Pordanjani et al., 2020), Brazil (0.97; Kamonseki et al., 2017), Turkey (0.98; Şahin et al., 2020), Denmark (0.97; Hansen et al., 2020) and Belgium (0.91; Arnould et al., 2004).…”

Section: Discussionsupporting

confidence: 88%

“…We also demonstrated very good internal consistency of the scale with a Cronbach’s Alpha of 0.98, consistent with the Persian version’s internal consistency of 0.96 (Mohammadkhani-Pordanjani et al., 2020), the Brazilian version’s value of 0.99 (Kamonseki et al., 2017), the Turkish version of 0.94 (Şahin et al., 2020) and the Danish version of 0.96 (Hansen et al., 2020). The Omega value (0.98) also revealed good internal consistency, but it was not possible to directly compare this value across other studies.…”

Section: Discussionsupporting

confidence: 76%

“…For each item, parents are asked to provide their perceived child’s difficulty on a three-level scale: Impossible (score 0), Difficult (score 1), or Easy (score 2) (Arnould et al., 2004). As measures of manual ability, versions of the ABILHAND-Kids are widely used in such different countries as Saudi Arabia (Alnahdi et al., 2020), Iran (Mohammadkhani-Pordanjani et al., 2020), Turkey (Şahin et al., 2020), Brazil (Kamonseki et al., 2017), Denmark (Hansen et al., 2020), and Ukraine (Hasiuk et al., 2021). Studies of the instrument’s psychometric properties in these different countries revealed ABILHAND-Kids as a valid, reliable and responsive measure for evaluating hand functioning in children with CP.…”

Section: Introductionmentioning

confidence: 99%

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An Italian Validation of ABILHAND-Kids for Children With Cerebral Palsy

Tofani

Blasetti

Lucibello³

et al. 2021

Percept Mot Skills

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Limitations in hand function are common among children with cerebral palsy (CP), with almost 50% presenting an arm–hand dysfunction. However, there is no standardized assessment tool available in Italian for evaluating bimanual performance for this population. Our objective in this study was to evaluate the psychometric properties of an Italian translation of the ABILHAND-Kids (ABILHAND-Kids-IT) among children with CP. We examined internal consistency using Cronbach’s Alpha and Omega coefficients, and we investigated test-retest reliability with intraclass correlation coefficients (ICC). We performed explorative factor analysis (EFA) to investigate structural validity. We calculated Pearson’s correlation coefficients between the ABILAND-Kids IT and the Manual Ability Classification System (MACS) to assess criterion validity; and, to demonstrate the score variability of the ABILHAND-Kids-IT, we used analyses of variance (ANOVAs) to compare the 181 children with CP in this sample with their levels on the MACS. We enrolled 181 children with CP in the study. EFA confirmed a uni-dimensional scale. We obtained internal consistency on both Cronbach’s Alpha and Omega coefficient of 0.98, and a one-week test-retest reliability analysis revealed an ICC with 95% of confidence interval of .992. The ANOVA revealed significant score variability ( p < 0.01) and the Pearson correlation coefficient comparing the ABILHAND-Kids-It score with the MACS was –0.929 ( p < 0.01). We conclude that the ABILHAND-Kids-IT is valid and reliable for use with Italian children with CP.

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Section: Discussionsupporting

confidence: 88%

Section: Discussionsupporting

confidence: 76%

Section: Introductionmentioning

confidence: 99%

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An Italian Validation of ABILHAND-Kids for Children With Cerebral Palsy

Tofani

Blasetti

Lucibello³

et al. 2021

Percept Mot Skills

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“… ABILHAND-Kids (Ukrainian version) Hasiuk et al [ 27 ] Structural validity Adequate – Internal consistency Very good ? Cross-cultural validity Doubtful – ABILHAND-Kids (Danish version) Hansen et al [ 28 ] Structural validity Adequate – Internal consistency Very good ? Measurement invariance Adequate – Reliability Very good + Measurement error Very good ?…”

Section: Resultsmentioning

confidence: 99%

“… ABILHAND-Kids (Ukrainian version) [ 27 ] Structural validity Standardized residuals range = -2.19–1.58 – Moderate Internal consistency Person separation index = 0.95 ? Cross-cultural validity 3 major DIF’s were observed across countries (Ukrainian versus Belgian cohort) – Moderate ABILHAND-Kids (Danish version) [ 28 ] Structural validity TLI = 0.98; CFI = 0.98; RMSEA = 0.07; SRMR = 0.07 Fit residuals (z) range = -2.178–2.170 – Moderate Internal consistency Cronbach’s alpha = 0.96 ? Measurement invariance 1 non-uniform DIF was observed across age groups – Moderate Reliability ICC2.1 = 0.97 (95% CI 0.95–0.98) + High Measurement error SE = 0.5; LOAs range: –4.8–5.5; SDC = 5.15 points ?…”

Section: Resultsmentioning

confidence: 99%

Quality of patient- and proxy-reported outcomes for children with impairment of the upper extremity: a systematic review using the COSMIN methodology

Kalle

Saris

Sierevelt

et al. 2022

J Patient Rep Outcomes

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Background As patient-reported outcome measures (PROMs) have become of significant importance in patient evaluation, adequately selecting the appropriate instrument is an integral part of pediatric orthopedic research and clinical practice. This systematic review provides a comprehensive overview of PROMs targeted at children with impairment of the upper limb, and critically appraises and summarizes the quality of their measurement properties by applying the COnsensus-based Standards for selection of health Measurement INstruments (COSMIN) methodology. Methods A systematic search of the MEDLINE and EMBASE databases was performed to identify relevant publications reporting on the development and/or validation of PROMs used for evaluating children with impairment of the upper extremity. Data extraction and quality assessment (including a risk of bias evaluation) of the included studies was undertaken by two reviewers independently and in accordance with COSMIN guidelines. Results Out of 6423 screened publications, 32 original articles were eligible for inclusion in this review, reporting evidence on the measurement properties of 22 self- and/or proxy-reported questionnaires (including seven cultural adaptations) for various pediatric orthopedic conditions, including cerebral palsy (CP) and obstetric brachial plexus palsy (OBPP). The measurement property most frequently evaluated was construct validity. No studies evaluating content validity and only four PROM development studies were included. The methodological quality of these development studies was either ‘doubtful’ or ‘inadequate’. The quantity and quality of the evidence on the other measurement properties of the included questionnaires varied substantially with insufficient sample sizes and/or poor methodological quality resulting in significant downgrading of evidence quality. Conclusion This review provides a comprehensive overview of currently available PROMs for evaluation of the pediatric upper limb. Based on our findings, none of the PROMs demonstrated sufficient evidence on their measurement properties to justify recommending the use of these instruments. These findings provide room for validation studies on existing pediatric orthopedic upper limb PROMs (especially on content validity), and/or the development of new instruments.

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