Cultural meaning of quality of life: perspectives of Brazilian burn patients

Abstract

For burn patients, quality of life is associated with the concept of normality, the satisfactory performance of social roles in the context of family life and the social world. The results showed the importance of the sociocultural dimension in the concept of quality of life for persons undergoing burn rehabilitation.

Adult burn survivors’ personal experiences of rehabilitation: An integrative review

“…One of Rossi et al's [14] participants indicated that family support provided a better quality of life that facilitated with coping:…”

“…Of the included 14 papers, there were 184 participants involved in studies conducted across eight different countries including Australia [20], Brazil [12][13][14]19], China [17], United States of America [7,9], Norway [15,18], Sweden [8,16], Germany [10] and the United Kingdom [11]. Among the studies that reported the participants' age and TBSA, the mean age was 41 years with a mean TBSA burned of 34%.…”

“…Four papers [9,13,14,19] focused on spirituality and religion as a coping mechanism that provided strength and support. However, religion and spirituality was also used as a form of rationalising that made the process of acceptance difficult as the participant from Williams et al's [9] study found:…”

“…The review incorporated a broad perspective on adults' perceptions and experiences of burn rehabilitation addressing peer support [7][8][9], adherence to therapy [10], the return to work [8,11], psychosocial implications [12], quality of life [13,14], adaption and coping [15][16][17] and regaining independence and the reintegration into society [9,[18][19][20]. Of the included 14 papers, there were 184 participants involved in studies conducted across eight different countries including Australia [20], Brazil [12][13][14]19], China [17], United States of America [7,9], Norway [15,18], Sweden [8,16], Germany [10] and the United Kingdom [11].…”

Translation and cultural adaptation of the Perceived Stigmatization Questionnaire for burn victims in Brazil

“…This is an important point, because it can influence the understanding of the Brazilian population adapted instruments from another culture. Study conducted in a burn unit identified that the majority of individuals refers to a low level of education, which has proven to be a common feature of patients hospitalized to the burn unit in Brazil (21) .…”