Cultural adaptation of The End-Stage Renal Disease Adherence Questionnaire for hemodialysis patients

Abstract

Objective: To describe the stages in the cultural adaptation of "The End-Stage Renal Disease Adherence Questionnaire" for use in Brazil. Method: A descriptive, transversal study with a quantitative approach. The cultural adaptation followed the steps of translation, professional committee, back translation, panel of patients and pretest. Results: the translation stage created a version in Portuguese that was analyzed by specialists, who suggested alterations in the title, seven sentences in the questions and three sets of answers. In the panel of patients phase, two questions were altered. The back translation considered the original characteristics of the instrument were maintained, likewise there were no modifications in the pretest phase. The third version written in Portuguese was considered to be the final version of the questionnaire. Conclusion: this instrument should facilitate nursing care management in hemodialysis, enabling the monitoring of adherence among these patients and also contribute to improving the indicators of morbidity and mortality. Descriptors: Patient Cooperation; Adherence to Medication; Chronic Renal Insufficiency; Hemodialysis; Nephrology Nursing. RESUMO Objetivo: Descrever as etapas da adaptação cultural do The End-Stage Renal Disease Adherence Questionnaire para uso no Brasil. Método: Estudo descritivo, transversal, com abordagem quantitativa. A adaptação cultural seguiu as etapas de tradução, comitê de especialistas, retrotradução, painel de pacientes e pré-teste. Resultados: A etapa de tradução gerou uma versão em português, analisada por especialistas, que sugeriram alterações no título, em sete sentenças de perguntas e em três conjuntos de respostas. Na fase de painel de pacientes, duas perguntas sofreram alterações. A retrotradução considerou a manutenção das características originais do instrumento, assim como não houve modificação na fase de pré-teste. A terceira versão produzida em português foi considerada a versão final do questionário. Conclusão: Este instrumento deverá facilitar o gerenciamento do cuidado de enfermagem na hemodiálise, permitindo a monitorização da prática de adesão dos pacientes e ainda contribuindo para a melhoria de indicadores de morbidade e mortalidade. Descritores: Cooperação do Paciente; Adesão à Medicação; Insuficiência Renal Crônica; Diálise Renal; Enfermagem em Nefrologia. RESUMENObjetivo: Describir las etapas de la adaptación cultural de The End-Stage Renal DiseaseAdherenceQuestionnaire para uso en Brasil. Método: Estudio descriptivo, transversal, con abordaje cuantitativa. La adaptación cultural siguió las etapas de traducción, comité de especialistas, retrotraducción, panel de pacientes y pre pruesta. Resultados: La etapa de traducción generó una versión en portugués, analizada por especialistas, que sugirieron alteraciones en el título, en siete sentencias de preguntas y en tres conjuntos de respuestas. En la fase de panel de pacientes, dos preguntas sufrieron alteraciones. La retrotraducción consideró la manutención de las caract...

Percepções de pacientes submetidos a tratamento dialítico substitutivo sobre a sexualidade

“…Wondering when they were happy with their sex life, most reported the following: Yes I am happy. ( Interviewee 1,4,5,7,8,14,20,22,23,24,25,27,32,38,) It is said that when asked about what he used to minimize or try to solve his problems about sexuality, most reported that he does nothing; others reported the use of drugs.…”

“…Anything. ( Interviewees 1,3,5,7,8,14,20,21,22,23,24,25,27,32,38,39) The little blue. ( Interviewees 26,33) The following accounts were alleged by other subjects.…”

“…It is emphasized that the support of the spouse is extremely relevant at this time for helping to accept their condition, to become participatory in self-care and prevention of injuries, as well as in the verbalization of their feelings. 8 It assists in the recovery and maintenance of a useful and productive life by the patient's adherence to hemodialysis; however, the psychosocial problems are evidenced by a decrease in family coexistence, withdrawal from employment, fear of dying, lack of information about illness, emotional dependence, refusal to observe diet, perceived changes in appearance, selfconcept, and feelings of sadness and abandonment experienced. Patients are encouraged to make the adjustment as traumatic as possible after receiving the diagnosis of the condition, with information about the many changes that the treatment would entail in their work routine, financial condition and life rhythm.…”

Translation and cultural adaptation of Patient Perceptions of Hemodialysis Scale in Brazil

“…CKD requires changes in daily habits that influence the patient's quality of life. The patient's pro-activity in facing the new condition is paramount (3) , considering its social, physical, psychological, and emotional nature, as well as its implications over habits, sex life, independence, and autonomy.…”