Crowdsourcing Designathon: A New Model for Multisectoral
                        Collaboration

Tucker, Jim B.; Tang, Weiming; Li, H.; Liu, C.; Fu, Rui; Tang, Songyuan; Cao, Binggang; Wei, Chongyi; Tangthanasu, T.

doi:10.1016//j.aogh.2017.03.373

Cited by 5 publications

(12 citation statements)

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“…Moreover, participants were aware selected finalists would be allowed to not only design an HIVST strategy but implement it in their local areas. It is possible that this designathon encouraged a sense of community ownership among participants, which has been observed in a previous HIV-related designathon [ 24 ].…”

Section: Discussionmentioning

confidence: 99%

“…It provides space for people with diverse backgrounds to work together and share their solutions with local communities. One form of crowdsourcing is a designathon, a problem-solving event, typically held over a few days, in which participants work together to create, design, and present their proposed solutions to a panel of judges [ 24 ]. Designathons have been previously used to solve problems in education, technology, and public health.…”

Section: Introductionmentioning

confidence: 99%

“…Designathons have been previously used to solve problems in education, technology, and public health. Designathons foster multi-disciplinary collaboration and can result in innovative solutions [ 24 – 26 ].…”

Section: Introductionmentioning

confidence: 99%

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A designathon to co-create community-driven HIV self-testing services for Nigerian youth: findings from a participatory event

et al. 2021

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Background Youth are at high risk for HIV, but are often left out of designing interventions, including those focused on adolescents. We organized a designathon for Nigerian youth to develop HIV self-testing (HIVST) strategies for potential implementation in their local communities. A designathon is a problem-focused event where participants work together over a short period to create and present solutions to a judging panel. Methods We organized a 72-h designathon for youth (14–24 years old) in Nigeria to design strategies to increase youth HIVST uptake. Proposals included details about HIVST kit service delivery, method of distribution, promotional strategy, and youth audience. Teams pitched their proposals to a diverse seven-member judging panel who scored proposals based on desirability, feasibility, potential impact and teamwork. We examined participants’ socio-demographic characteristics and summarized themes from their HIVST proposals. Results Forty-two youth on 13 teams participated in the designathon. The median team size was 3 participants (IQR: 2–4). The median age was 22.5 years (IQR: 21–24), 66.7% were male, 47.4% completed tertiary education, and 50% lived in Lagos State. Themes from proposals included HIVST integration with other health services, digital marketing and distribution approaches, and engaging students. Judges identified seven teams with exceptional HIVST proposals and five teams were supported for further training. Conclusions The designathon provided a structured method for incorporating youth ideas into HIV service delivery. This approach could differentiate HIV services to be more youth-friendly in Nigeria and other settings.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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A designathon to co-create community-driven HIV self-testing services for Nigerian youth: findings from a participatory event

et al. 2021

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“…Crowdsourcing is an approach that involves an open call for members of the public to come together as a group to solve a problem, and then publicly sharing selected solutions that emerge. 16 It has been successfully used to engage community members in health-related research, including studies to design HIV testing campaigns 17,18 and to investigate the meaning of HIV cure for local lay community members. 19 However, few studies have used crowdsourcing to inform community engagement in clinical trials, 20 resulting in a lack of literature to guide the implementation of crowdsourcing engagement activities for community feedback on clinical trials.…”

Section: Introductionmentioning

confidence: 99%

Broadening community engagement in clinical research: Designing and assessing a pilot crowdsourcing project to obtain community feedback on an HIV clinical trial

et al. 2020

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Background/Aims Community engagement is widely acknowledged as an important step in clinical trials. One underexplored method for engagement in clinical trials is crowdsourcing. Crowdsourcing involves having community members attempt to solve a problem and then publicly sharing innovative solutions. We designed and conducted a pilot using a crowdsourcing approach to obtain community feedback on an HIV clinical trial, called the Acceptability of Combined Community Engagement Strategies Study. In this work, we describe and assess the Acceptability of Combined Community Engagement Strategies Study’s crowdsourcing activities in order to examine the opportunities of crowdsourcing as a clinical trial community engagement strategy. Methods The crowdsourcing engagement activities involved in the Acceptability of Combined Community Engagement Strategies Study were conducted in the context of a phase 1 HIV antibody trial (ClinicalTrials.gov identifier: NCT03803605). We designed a series of crowdsourcing activities to collect feedback on three aspects of this clinical trial: the informed consent process, the experience of participating in the trial, and fairness/reciprocity in HIV clinical trials. All crowdsourcing activities were open to members of the general public 18 years of age or older, and participation was solicited from the local community. A group discussion was held with representatives of the clinical trial team to obtain feedback on the utility of crowdsourcing as a community engagement strategy for informing future clinical trials. Results Crowdsourcing activities made use of innovative tools and a combination of in-person and online participation opportunities to engage community members in the clinical trial feedback process. Community feedback on informed consent was collected by transforming the clinical trial’s informed consent form into a series of interactive video modules, which were screened at an open public discussion. Feedback on the experience of trial participation involved designing three fictional vignettes which were then transformed into animated videos and screened at an open public discussion. Finally, feedback on fairness/reciprocity in HIV clinical trials was collected using a crowdsourcing idea contest with online and in-person submission opportunities. Our public discussion events were attended by 38 participants in total; our idea contest received 43 submissions (27 in-person, 16 online). Facebook and Twitter metrics demonstrated substantial engagement in the project. The clinical team found crowdsourcing primarily useful for enhancing informed consent and trial recruitment. Conclusion There is sufficient lay community interest in open calls for feedback on the design and conduct of clinical trials, making crowdsourcing both a novel and feasible engagement strategy. Clinical trial researchers are encouraged to consider the opportunities of implementing crowdsourcing to inform trial processes from a community perspective.

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“…A hackathon or designathon is a sprint-like event that brings together individuals with diverse backgrounds to solve a problem. 25 A hackathon can tap into participants' experiences and expertise to generate high quality outputs in a transparent and systematic way. 26 The purpose of this sexual health hackathon was to harmonise entries received during the open call and deliberate on key items to be included in the survey, aiming to assemble a draft brief sexual health survey at the end of the hackathon .…”

Section: Methodsmentioning

confidence: 99%

Development of an international sexual and reproductive health survey instrument: results from a pilot WHO/HRP consultative Delphi process

Kpokiri

Srinivas

et al. 2021

Sex Transm Infect

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Population health surveys are rarely comprehensive in addressing sexual health, and population-representative surveys often lack standardised measures for collecting comparable data across countries. We present a sexual health survey instrument and implementation considerations for population-level sexual health research. The brief, comprehensive sexual health survey and consensus statement was developed via a multi-step process (an open call, a hackathon, and a modified Delphi process). The survey items, domains, entire instruments, and implementation considerations to develop a sexual health survey were solicited via a global crowdsourcing open call. The open call received 175 contributions from 49 countries. Following review of submissions from the open call, 18 finalists and eight facilitators with expertise in sexual health research, especially in low- and middle-income countries (LMICs), were invited to a 3-day hackathon to harmonise a survey instrument. Consensus was achieved through an iterative, modified Delphi process that included three rounds of online surveys. The entire process resulted in a 19-item consensus statement and a brief sexual health survey instrument. This is the first global consensus on a sexual and reproductive health survey instrument that can be used to generate cross-national comparative data in both high-income and LMICs. The inclusive process identified priority domains for improvement and can inform the design of sexual and reproductive health programs and contextually relevant data for comparable research across countries.

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Crowdsourcing Designathon: A New Model for Multisectoral Collaboration

Cited by 5 publications

References 0 publications

A designathon to co-create community-driven HIV self-testing services for Nigerian youth: findings from a participatory event

A designathon to co-create community-driven HIV self-testing services for Nigerian youth: findings from a participatory event

Broadening community engagement in clinical research: Designing and assessing a pilot crowdsourcing project to obtain community feedback on an HIV clinical trial

Development of an international sexual and reproductive health survey instrument: results from a pilot WHO/HRP consultative Delphi process

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