Crossing a Line: A narrative of risk-taking by older women serving as caregivers

Womack, Jennifer L.; Lilja, Margareta; Isaksson, Gunilla

doi:10.1016/j.jaging.2017.04.002

Cited by 9 publications

(8 citation statements)

References 28 publications

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“…Our findings and others’ 36,37 suggest that an advocacy role is common for caregivers of adults with chronic conditions. While both spousal and adult child caregivers described advocating for their loved ones, adult child caregivers shared needing to step in and assist more when their parent experienced a change in health status.…”

Section: Discussionsupporting

confidence: 75%

Caregiver role development in chronic disease: A qualitative study of informal caregiving for veterans with diabetes

et al. 2020

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Objective Support for chronic conditions such as diabetes from friends and family positively influences health management and outcomes, but limited data exist on how and why caregivers assume specific support roles for otherwise independent aging adults. We conducted a qualitative study to examine the nature of caregivers’ roles in supporting Veterans’ management of a chronic condition and caregivers’ reasons for assuming those roles, using Type 2 diabetes as an example. Methods Thirty-two interviews were conducted with Veterans with Type 2 diabetes (n = 20) and their caregivers (n = 12). Two coders independently analyzed interview transcripts using a thematic analysis approach. Results Three central roles of caregivers in diabetes management were described: direct care support, memory support/care organizer, and advocate. Three explanations for assuming caregiving roles emerged: changes in patient health, natural evolution of family roles, and caregivers’ health care experience or training. Discussion Understanding what roles caregivers fill and why is critical to designing services to support caregivers in helping improve chronic health condition management for aging adults.

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Section: Discussionsupporting

confidence: 75%

Caregiver role development in chronic disease: A qualitative study of informal caregiving for veterans with diabetes

et al. 2020

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“…It has been argued that family members are more likely to be advocates because they have extensive knowledge of their relative and therefore notice changes in health status (Gaugler et al, 2009). Family carers of older people with dementia living in the community have also reported the need to take on an advocacy role (Fields et al, 2020; Womack et al, 2017).…”

Section: Discussionmentioning

confidence: 99%

‘You become their advocate’: The experiences of family carers as advocates for older people with dementia living in residential aged care

Fetherstonhaugh

Rayner

Solly

et al. 2021

Journal of Clinical Nursing

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Aims The aim of this study was to identify features of well‐performing residential aged care services (RACS) as experienced by family carers. Background Family carers can have an integral role in residential aged care providing social support and are well‐placed to engage with staff and monitor care. Design A qualitative descriptive design was used. Semi‐structured face‐to‐face and telephone interviews were conducted with family carers of current or past residents of Australian RACS between November 2018 and January 2019. Interview transcripts were analysed thematically. Results Rather than reporting features of well‐performing RACS, participants shared stories of sub‐standard care, dysfunctional management and poor resident–staff–family interactions. An overarching theme emerged of ‘having to be an advocate’ for residents’ needs, which covered four major categories: organisational accountability (including transparency and individualised care), good communication, connection and trust. Combined, these constitute what carers perceive are the necessary conditions for determining the features of a well‐performing RACS. Conclusion Family carers need to feel confident and trust RACS staff when they hand over the role of carer for their relative with dementia. Relevance to clinical practice This study provides insight into the needs and challenges of family carers when they relinquish the care of an older relative with dementia. Strategies to build confidence and trust between RACS and family carers are essential. Aged care nurses can play a pivotal role to support this through the development of open communication and relational connections with residents and their families.

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“…Similarly, the stakeholders indicated a lack of community awareness about programs available to help caregivers. Efforts need to be directed at improving awareness and accessibility of caregiving programs, and at facilitating communication between caregivers and stakeholders, which is often a source of tension (Womack, Lilja, & Isaksson, 2017).…”

Section: Discussionmentioning

confidence: 99%

Challenges Faced by Family Caregivers: Multiple Perspectives on Eldercare

et al. 2018

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The focus of this study was to identify challenges to family eldercare provision from the perspectives of both caregivers and community stakeholders. This qualitative study used data from 306 family caregivers and 116 stakeholders (aging, social, and health service professionals who work with older adults and their families) in North Dakota. Data sources included an American Association of Retired Persons-ND survey of 110 caregivers, a survey by the ND Family Caregiver Support Program (196 participants), and a Statewide Caregiving Stakeholder Survey (116 participants). Thematic analysis identified five themes: (a) financial burden of providing eldercare, (b) insufficient access to respite care, (c) difficulty finding and navigating available services and programs, (d) lack of knowledge and training on care provision, and (e) challenges related to environmental context of caregiving. Implications for working with family caregivers and developing policies for eldercare are discussed.

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Crossing a Line: A narrative of risk-taking by older women serving as caregivers

Cited by 9 publications

References 28 publications

Caregiver role development in chronic disease: A qualitative study of informal caregiving for veterans with diabetes

Caregiver role development in chronic disease: A qualitative study of informal caregiving for veterans with diabetes

‘You become their advocate’: The experiences of family carers as advocates for older people with dementia living in residential aged care

Challenges Faced by Family Caregivers: Multiple Perspectives on Eldercare

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