Cross‐national comparison and validation of the Alzheimer's Disease Assessment Scale: results from the European Harmonization Project for Instruments in Dementia (EURO‐HARPID)

Verhey, Frans R.J.; Houx, Peter J.; Lang, Natascha van; Huppert, Felicia A.; Stoppe, G.; Saerens, J.; Böhm, Peter; Vreese, Luc De; Nordlund, Arto; DeDeyn, Peter P.; Neri, Mirco; Peña-Casanova, Jordi; Wallin, Anders; Bollen, E.; Middelkoop, Huub A. M.; Nargeot, Marie-Christine; Puel, Michèle; Fleischmann, Ulrich M.; Jolles, J.

doi:10.1002/gps.1035

Cited by 44 publications

(34 citation statements)

References 15 publications

(11 reference statements)

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“…To address the lack of standardization and to establish comparability of the cognitive outcome data collected in different countries, projects such as the European Harmonization Project for Instruments in Dementia (EURO-HARPID) have been initiated (Verhey et al, 2004). This is an international collaborative study involving eight European countries.…”

Section: Cognitive Outcomementioning

confidence: 99%

“…These differences mainly concerned the verbal memory subtests recall and recognition, in particular the difference in imagery of the words. As 22 of the 70 points of the ADAS-Cog were awarded for these two subtests, the variation between the countries might seriously compromise the comparability of the different versions (Verhey et al, 2004).…”

Section: Cognitive Outcomementioning

confidence: 99%

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Relevance of outcome measures in different cultural groups – does one size fit all?

Chiu

Lam

2007

Int. Psychogeriatr.

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It is estimated that 24 million people currently have dementia and that two-thirds of them live in developing countries. However, most of the assessment instruments for dementia have originated in developed countries. This paper explores the relevance of outcome measures in clinical trials of dementia drugs in different cultural groups, particularly in developing countries. The challenges of assessing treatment benefits in dementia in such groups include linguistic and cultural diversity, as well as high illiteracy rates, lack of human resources and the time constraints in assessment of patients. This paper also highlights methodological issues in cross-cultural research of cognitive assessment. Improvement in neuropsychiatric outcomes may be of particular importance to people in non-Western cultures. Functional outcomes and global outcomes are potentially useful outcome measures, but more studies are required in various countries. The use of biological markers such as neuroimaging and cerebrospinal fluid studies may not be practical in developing countries due to their costs and acceptability respectively. More work is also needed in the area of quality of life measures in various countries.

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Section: Cognitive Outcomementioning

confidence: 99%

Section: Cognitive Outcomementioning

confidence: 99%

Relevance of outcome measures in different cultural groups – does one size fit all?

Chiu

Lam

2007

Int. Psychogeriatr.

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“…Si bien los instrumentos utilizados no han sido adaptados ni validados en población chilena (salvo el Mini-Mental), fueron escogidos dada su categoría de instrumentos recomendados por el European Alzheimer's Disease Consortium (EADC), para evaluar el impacto de intervenciones psicosociales en cognición y calidad de vida en pacientes con demencia (Moniz-Cook et al, 2008;Verhey et al, 2004). Se recomienda que, con el fin de generar indicadores de eficacia terapéutica más adecuados, futuras investigaciones tengan como objetivo validar en población chilena y/o latinoamericana cuestionarios y escalas actualmente utilizados a nivel global en el área de las demencias.…”

Section: Limitaciones Del Estudiounclassified

Implementación de un programa de estimulación cognitiva en personas con demencia tipo Alzheimer: un estudio piloto en chilenos de la tercera edad

Miranda‐Castillo

Tapia²,

Herrera³

et al. 2013

Univ Psychol

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“…due to differences/ ambiguity in meaning or irrelevance) are problematic (Woodburn et al, 2012), but may be avoided if cultural validity was addressed at the stage of identifying outcomes or items. Research into the cultural salience of mental health outcomes is more established and may provide guidance in considering these complex issues for core set methodology (Verhey et al 2004). Ultimately, we should ensure that interventions are evaluated using criteria that are meaningful to patients.…”

Section: Implications For Clinical Practice and Researchmentioning

confidence: 99%

Exploring the cultural validity of rheumatology outcomes

Sanderson

Hewlett²,

Calnan

et al. 2012

Br J Nurs

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In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the influence of patients' ethnic and cultural backgrounds on treatment outcomes. This pilot study identified 74 treatment outcomes from female Punjabi RA patients, including 21 new ones that were not identified in previous research with white British RA patients. The social impact of RA created significant additional burden for these Punjabi women, with ‘less stigmatisation’ and ‘improved ability to carry out family duties’ generated as important new outcomes. This study illustrates a need to address cultural validity in outcome elicitation and prioritisation, to ensure that interventions are evaluated using criteria that have meaning for people with that condition.

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Cross‐national comparison and validation of the Alzheimer's Disease Assessment Scale: results from the European Harmonization Project for Instruments in Dementia (EURO‐HARPID)

Abstract: The study underlines the need to use harmonized versions of instruments for rating dementia in multinational studies. The findings indicate that the harmonization of the ADAS-Cog was successful.

Cited by 44 publications

References 15 publications

Relevance of outcome measures in different cultural groups – does one size fit all?

Relevance of outcome measures in different cultural groups – does one size fit all?

Implementación de un programa de estimulación cognitiva en personas con demencia tipo Alzheimer: un estudio piloto en chilenos de la tercera edad

Exploring the cultural validity of rheumatology outcomes

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