Cross-Disability Experiences of Barriers to Health-Care Access

Drainoni, Mari-Lynn; Lee-Hood, Elizabeth; Tobias, Carol; Bachman, Sara S.; Andrew, Jennifer; Maisels, Lisa

doi:10.1177/10442073060170020101

Cited by 202 publications

(206 citation statements)

References 27 publications

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“…Most health care workers have neither the fundamental knowledge nor adequate experience to manage the health care needs of people with disabilities (13,84,93). Distinguishing between the different health problems of people with disabilities and understanding whether there is a relation between a particular problem and a pre-existing disability is a difficult task at which all health professionals do not succeed (94).…”

Section: Knowledge Of Health Care Professionals About People With Dismentioning

confidence: 99%

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Access to Dental Services for People Using a Wheelchair

2015

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Objectives. We investigated the perspectives of people using a wheelchair and their difficulties in accessing dental services. Methods. Our participatory research was on the basis of a partnership between people using a wheelchair, dental professionals, and academic researchers. Partners were involved in a committee that provided advice at all stages of the project. Our team adopted a qualitative descriptive design. Between October 2011 and October 2012 we conducted semistructured individual interviews with 13 adults who lived in Montreal, Québec, Canada, and used a wheelchair full time. We audio-recorded and transcribed verbatim interviews, and we interpreted data using an inductive thematic analysis. Results. Oral health is of heightened importance to this group of people, who tend to use their mouth as a “third hand.” We identified successive challenges in accessing dental services: finding a dentist and being accepted, organizing transportation, entering the building and circulating inside, interacting with the dental staff, transferring and overcoming discomfort on the dental chair, and paying for the treatments. Conclusions. Governments, dental professional bodies, dental schools, and researchers should work with groups representing wheelchair users to improve access to dental services.

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Section: Knowledge Of Health Care Professionals About People With Dismentioning

confidence: 99%

“…Generally people using a wheelchair have good health conditions (11); however, their disability or the use of adaptive devices may cause complications. These conditions may call for the use of more complex treatments and maintenance services (12,13) to prevent the progress of an impairment or to prevent secondary health conditions (14,15).…”

Section: Introductionmentioning

confidence: 99%

Access to Dental Services for People Using a Wheelchair

2015

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“…The term 'abuse' is used to embrace the concept 'maltreatment' which has been defined as harm via health providers, with or without intention (Hassouneh-Phillips et al 2005). 'Diagnostic overshadowing', the process whereby medical personnel are so overwhelmed by the clients' 'disabled' identity along with the accompanying negative mind set (Mason and Scior 2004), becomes an additional barrier to healthcare when it is required by disabled people (Drainoni et al 2006). Failure to provide healthcare when required is itself a form of abuse.…”

Section: Invalidation and Abusementioning

confidence: 99%

Models of disability: their influence in nursing and potential role in challenging discrimination

Scullion

2010

Journal of Advanced Nursing

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scullion p.a. (2010) Models of disability: their influence in nursing and potential role in challenging discrimination. Journal of Advanced Nursing66(3), 697–707. Abstract Aim. This paper presents a discussion of medical and social models of disability associated with experiences of disabled people as citizens and patients. Background. Disability is fairly universally a negative concept. Disabled people have frequent contact with health services, however much of this experience is viewed as discriminatory. Data sources. Literature was obtained using the Psych‐INFO, Medline and CINAHL databases for the years 1989–2009, using derivatives of the concept ‘disability’ and associated ‘models’, and then these terms combined with ‘nursing’. Discussion. Nursing as a profession embraces the need to avoid discrimination, yet disability as an equal opportunity issue is relatively neglected in nursing. Nursing has a moral, professional and, in some countries, a legal responsibility to promote disability equality in the provision of nursing services. Insights offered by the social model of disability may be instrumental in empowering nurses to respond to this obligation. While some groups may not be well‐represented in this model and there is risk in embracing the social model of exposing a policy‐practice divide, it nevertheless represents a powerful tool for strengthening nurses’ advocacy role. In particular, ‘social advocacy’ may be enhanced by a paradigm shift away from the medical model of disability. Implications for nursing. Nurses have an obligation to promote disability equality in relation to the provision of health care. Adoption of the social model of disability in nursing practice, education and research as a strategy to challenge discrimination should be seriously considered. Conclusion. The utility value of the social model of disability in strengthening the social advocacy role of nurses should be investigated.

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“…Addressing these issues may require a critical examination of current training standards for medical staff members in dealing with patients with disabilities. 25,26 Promotion of "disability literacy" for all medical staff, which includes mandatory training and professional development activities on topics relevant to the health care needs of patients with disabilities, has been proposed as one solution. 27,28 Still, as this study highlights, any training program that focuses on health care needs of patients with disabilities must incorporate ample sensitivity training for all staff, including non-professionals.…”

Section: Discussionmentioning

confidence: 99%

“…We grouped participants into three focus groups based on age category (18)(19)(20)(21)(22)(23)(24)(25)(26)(27)(28)(29)(30)(30)(31)(32)(33)(34)(35)(36)(37)(38)(39)(40)(41)(42)(43)(44)(45)(46)(47)(48)(49), 50+ years) with the goal of enhancing participants' comfort discussing health-related information. All focus groups were conducted by H.R.P., a physician who stutters, during the NSA conference, and lasted 45-60 min.…”

Section: Data Collectionmentioning

confidence: 99%

“Not Unless It’s a Life or Death Thing”: A Qualitative Study of the Health Care Experiences of Adults Who Stutter

2015

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BACKGROUND:For adults who stutter, communication difficulties can impact many spheres of life. Previous studies have not examined how stuttering might impact patient's experiences with the medical system. OBJECTIVE: Our objective was to understand the range and depth of experiences with the medical system among adults who stutter. DESIGN: This was a qualitative study using age-stratified focus groups. PARTICIPANTS: Sixteen adults who stutter were recruited at a national conference about stuttering. APPROACH: We conducted three focus groups. Participants also completed a written questionnaire about sociodemographic characteristics, health status, and the impact of stuttering on their life [using the St. Louis Inventory of Life Perspectives Scale (SL-ILP-S) Total Effect Score]. We analyzed data using an iterative, thematic analysis, with an inductive approach, at a semantic level. KEY RESULTS: Participants were mostly (75 %) male and resided throughout the United States. The mean SL-ILP-S Total Effect Score was 27.3, indicating that stuttering caused minimal concern in participants' lives. Despite this, we identified five themes that characterize ways in which stuttering affects interactions with the medical system. Participants described (1) discomfort speaking with office staff and physicians, which resulted in (2) avoiding health care interactions because of stuttering, and (3) relying on a third party to navigate the medical system. During visits with physicians, participants felt that (4) discussing stuttering with physicians required trust and rapport, and (5) speaking assertively with physicians required selfacceptance of their stuttering. CONCLUSIONS: We identified ways in which stuttering affects medical interactions. These results highlight the need for increased awareness and training for medical staff and physicians when caring for persons who stutter. Future studies among diverse samples of stutterers can determine the effects of stuttering on medical interactions, and inform the development of interventions to provide high quality health care for adults who stutter.

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Cross-Disability Experiences of Barriers to Health-Care Access

Cited by 202 publications

References 27 publications

Access to Dental Services for People Using a Wheelchair

Access to Dental Services for People Using a Wheelchair

Models of disability: their influence in nursing and potential role in challenging discrimination

“Not Unless It’s a Life or Death Thing”: A Qualitative Study of the Health Care Experiences of Adults Who Stutter

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