Cross-cultural adaptation and validation of the Korean modified version of the QUAlity of Life Assessment in Spina bifida for Young Adults (QAULAS-YA-Km)

Yang, Seung-Hyeon; Ji, Yoonhye; Lee, Yong Seung; Kim, Sang Woon; Bae, Eunjeong; Park, Jieun; Yun, Hyeseon; Szymański, Konrad M.; Choi, Eun Kyoung

doi:10.1080/09638288.2022.2118378

Cited by 2 publications

(1 citation statement)

References 38 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…As a last point, our study found that, despite the short length of QUALAS-C, QUALAS-T and QUALAS-A, the comprehensiveness of the items was reported as good by the study participants, which strengthens their content validity [28,36]. Our initial find-ings are also similar to other studies regarding translating and evaluating QUALAS-C, QUALAS-T and QUALAS-A, indicating that condition-specific HRQoL issues in spina bifida are conceptually equivalent in countries such as Sweden, the US, Korea, Japan and Brazil [21,24,26,27,29,33,34,57].…”

Section: Discussionsupporting

confidence: 83%

Linguistic, Content and Face Validity of the Swedish Version of a Quality-of-Life Assessment for Children, Teenagers and Adults with Spina Bifida

Dellenmark-Blom,

Andersson,

Szymanski

et al. 2024

IJERPH

Self Cite

View full text Add to dashboard Cite

Spina bifida includes a spectrum of different neural tube defects. Myelomeningocele is the most serious type and is associated with a risk of paralysis and sensory dysfunction below the affected level, bladder/bowel dysfunction, brain dysmorphology, and impaired health-related quality of life (HRQoL). The aim of this study was to describe the establishment of linguistic, content and face validity of the Swedish version of a Quality-of-Life Assessment for children (QUALAS-C, n = 10 items), teenagers (QUALAS-T, n = 10 items) and adults with spina bifida (QUALAS-A, n = 15 items) based on the original US English versions. The process included close collaboration with the original instrument developer and complied with international standards on patient-reported outcome measurements. The procedure includes forward translation, expert and patient/parent review and reconciliation, back translation, back translation review and cognitive debriefing interviews with 16 people with spina bifida aged 8 to 33, providing them with the possibility of evaluating the clarity, adequacy, and comprehensiveness of QUALAS-C, QUALAS-T and QUALAS-A, respectively. The interviews lasted a median of 15 min (range 8–16) for QUALAS-C, 10 min (range 9–15) for QUALAS-T and 24 min (range 9–38) for QUALAS-A. Four main issues/topics needed attention and discussion after both the forward and back translation. Following the back translation review, all issues were resolved. The patient feedback revealed recognition of the HRQoL issues included in QUALAS, and also difficulties in understanding some questions. After the patients’ evaluation, four items were reworded for clarity. No study participant reported a wish to add to or remove questions from QUALAS. Hence, the Swedish versions of QUALAS became conceptually equivalent to the original US English versions and achieved linguistic, content and face validity. While empowering the voices of people with spina bifida, these results also enable their HRQoL to be properly assessed in research and clinical care in Sweden and in international studies.

show abstract