Couples' Coping After Stroke—A Pilot Intervention Study

Robinson-Smith, Gale; Harmer, C J; Sheeran, Robin; Vallo, Eileen Bellino

doi:10.1002/rnj.213

Cited by 29 publications

(53 citation statements)

References 35 publications

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“…To help further support caregivers' well‐being, our findings suggest that respite services should also be encouraged to give caregivers time to participate in meaningful occupations, social roles and relationships. Examples of ways respite services can do so is by combining respite with relationship counselling (Kepic, Randolph, & Hermann‐Turner, ; Robinson‐Smith, Harmer, Sheeran, & Bellino Vallo, ), increased education (Ahmed, El‐Amin, Ahmed, Alostaz, & Khalid, ; Allison, Evans, Kilbride, & Campbell, ; Danzl et al, ; Reed, Harrington, & Duggan& Wood, ) or training about accessing psychosocial support (Grant et al, ; Hart, ; Martinsen, Kirkevold & Sveen, ).…”

Section: Discussionmentioning

confidence: 99%

“Caregiving is a full‐time job” impacting stroke caregivers' health and well‐being: A qualitative meta‐synthesis

Kokorelias

Santos

et al. 2019

Health Soc Care Community

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Family caregivers contribute to the sustainability of healthcare systems. Stroke is a leading cause of adult disability and many people with stroke rely on caregiver support to return home and remain in the community. Research has demonstrated the importance of caregivers, but suggests that caregiving can have adverse consequences. Despite the body of qualitative stroke literature, there is little clarity about how to incorporate these findings into clinical practice. This review aimed to characterise stroke caregivers' experiences and the impact of these experiences on their health and well‐being. We conducted a qualitative meta‐synthesis. Four electronic databases were searched to identify original qualitative research examining stroke caregivers' experiences. In total, 4,481 citations were found, with 39 studies remaining after removing duplicates and applying inclusion and exclusions criteria. Articles were appraised for quality using the Critical Appraisal Skills Programme (CASP), coded using NVivo software, and analysed through thematic synthesis. One overarching theme, ‘caregiving is a full‐time job’ was identified, encompassing four sub‐themes: (a) restructured life, (b) altered relationships, (c) physical challenges, and (d) psychosocial challenges. Community and institution‐based clinicians should be aware of the physical and psychosocial consequences of caregiving and provide appropriate supports, such as education and respite, to optimise caregiver health and well‐being. Future research may build upon this study to identify caregivers in most need of support and the types of support needed across a broad range of health conditions.

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Section: Discussionmentioning

confidence: 99%

“Caregiving is a full‐time job” impacting stroke caregivers' health and well‐being: A qualitative meta‐synthesis

Kokorelias

Santos

et al. 2019

Health Soc Care Community

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“…Thirty-one RCTs were identified; 12 targeted stroke survivors, [20][21][22][23][24][25][26][27][28][29][30][31] 10 carers, [32][33][34][35][36][37][38][39][40][41] and 11 survivor-carer dyads. 31,39,[42][43][44][45][46][47][48][49][50] Overall, 3636 stroke survivors and 2079 carers were included between 1997-2018. Sample sizes was 20 to 1008.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…Depressive symptoms were measured in 25 trials, [20][21][22][23][24][25][27][28][29][30][32][33][34]37,[39][40][41][42][43][44][45][46][47]49,50 of which nine interventions reported significant reductions in this outcome: four of the interventions for stroke survivors, 22,[28][29][30] two for carers 33,40 and three for survivor-carer dyads. 46,47,49 Significant reductions in depressive symptoms were reported for interventions delivered to stroke survivors that utilized motivational interviewing, 29 transitional care, 30 problem solving and psycho education 22 and anti-depressant medication with behavioural support. 28 Depressive symptoms increased in one trial for stroke survivors.…”

Section: Depressive Symptomsmentioning

confidence: 99%

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Psychosocial interventions for stroke survivors, carers and survivor-carer dyads: a systematic review and meta-analysis

Minshall

Pascoe

Thompson

et al. 2019

Topics in Stroke Rehabilitation

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“…Over the last few decades, researchers have recognized the need to view cancer in a relationship context and a burgeoning literature involving psychosocial interventions to improve couples' coping and quality of life (QOL) has emerged [15][16][17][18][19][20]. Here, we use the term 'couple-based' to refer to any intervention in which the two partners are seen together by a therapist, interventionist or health educator.…”

mentioning

confidence: 99%

New frontiers in couple-based interventions in cancer care: refining the prescription for spousal communication

Badr

2016

Acta Oncologica

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Background: The diagnosis and treatment of cancer is a life-altering experience that signals profound changes in a person's life. However, most people do not experience cancer in isolation or cope alone. Despite the fact that partners (i.e. spouses, significant others) provide emotional support and play a critical role in caregiving, cancer exacts a heavy toll on them and challenges their relationship with the patient by altering established communication patterns and roles. In recognition of this, a burgeoning literature involving couple-based interventions to improve patient and partner quality of life and adaptation has emerged. However, questions remain regarding how we can improve these interventions to exact greater impact on patient and partner outcomes. Material and methods: A narrative review of the literature on couples' communication processes in cancer was conducted in order to describe knowledge gaps and directions for future research. Results: Most couple-based interventions have included a communication skills training component because communication is an important process through which couples make sense of cancer, engage in social support, negotiate role changes and coordinate coping responses. However, scholars still know very little about what they should instruct couples to talk about, how often they should talk and when talking (or not talking) is beneficial (and for whom -the patient, partner, or both). Conclusion: In order push this field forward, we need to develop a more nuanced view of couples' communication that acknowledges that there are multiple ways to talk, different aspects of the cancer experience to talk about, and preexisting communication patterns and preferences for different couples that may influence the utility of talk. Interventions that replace the unilateral and generic prescription to talk openly about cancer with targeted questions that prompt reflection on couples' unique strengths, preexisting communication patterns and support resources may thus help bolster the impact of couple-based interventions on patient and partner quality of life.

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Couples' Coping After Stroke—A Pilot Intervention Study

Cited by 29 publications

References 35 publications

“Caregiving is a full‐time job” impacting stroke caregivers' health and well‐being: A qualitative meta‐synthesis

“Caregiving is a full‐time job” impacting stroke caregivers' health and well‐being: A qualitative meta‐synthesis

Psychosocial interventions for stroke survivors, carers and survivor-carer dyads: a systematic review and meta-analysis

New frontiers in couple-based interventions in cancer care: refining the prescription for spousal communication

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