Correlates of Depressive and Anxiety Symptoms in Young Adults with Spina Bifida

Bellin, Melissa H.; Zabel, T. Andrew; Dicianno, Brad E.; Levey, Eric; Garver, Kim; Linroth, Ronna; Braun, Patricia

doi:10.1093/jpepsy/jsp094

Cited by 81 publications

(87 citation statements)

References 59 publications

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“…5 These health and social difficulties also place them at risk for psychological distress 6 and poor quality of life (QOL). 7 Consequently, young adulthood is regarded as a critical period of developmental change.…”

Section: Discussionmentioning

confidence: 99%

“…6 The data reported here focus on select transition outcomes (self-management, community integration, QOL) in a subset of 50 young adults with myelomeningocele recruited from five geographically diverse multidisciplinary specialty clinic sites in the USA. * Study eligibility criteria included the following: (1) primary diagnosis of myelomeningocele, (2) 18 to 25 years of age, (3) residence in catchment areas of participating sites, and (4) capacity to understand study instruments.…”

Section: Methodsmentioning

confidence: 99%

“…To be enrolled in the study, participants must have received a total score of 8 or higher, out of a possible score of 10, on the measure. As described in Bellin et al, 6 of the 168 eligible individuals who received medical services at the study sites, 64 (38%) agreed to participate. Three individuals failed the competence screening and 11 had a primary diagnosis other than myelomeningocele (e.g.…”

Section: Methodsmentioning

confidence: 99%

“…muscle weakness and paralysis, bladder and bowel dysfunction, orthopedic abnormalities), 3 neurocognitive, 4 and social deficits present challenges to completing the developmental outcomes associated with early adulthood including self-management and community integration. 5 These health and social difficulties also place them at risk for psychological distress 6 and poor quality of life (QOL). 7 Consequently, young adulthood is regarded as a critical period of developmental change.…”

mentioning

confidence: 99%

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Interrelationships of sex, level of lesion, and transition outcomes among young adults with myelomeningocele

Bellin

Dicianno

Levey

et al. 2011

Developmental Medicine &Amp; Child Neurology

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AIM To advance understanding of the interrelationships of sex, level of lesion (LOL), self-management, community integration (employment, independent living), and quality of life (QOL) in young adults with myelomeningocele.METHOD A multicenter convenience sample of 50 individuals with myelomeningocele, 18 to 25 years of age (mean age 21y 5mo, SD 2y), participated in a structured clinical interview on selfmanagement (Adolescent Self-Management and Independence Scale II [AMIS II]) and completed a self-report questionnaire comprising standardized measures. QOL was assessed using the World Health Organization Quality of Life (WHOQOL)-BREF instrument. A chart review yielded clinical data.RESULTS Most participants were Caucasian (78%), female (56%: 28 females, 22 males), unemployed (58%), and in supervised living environments (74%). Eighty per cent had a history of hydrocephalus requiring shunt placement. A lumbar LOL was most frequently reported (64%), followed by a sacral LOL (22%), and thoracic LOL (7%). Males were more likely to report employment (p=0.008), but females had greater success in transitioning into independent living settings (p=0.015). LOL was a significant predictor of specific dimensions of self-management, employment, and QOL (p < 0.05). Mean scores on the AMIS II reflected deficits in condition management activities and tasks of everyday life. Limited QOL was also observed. INTERPRETATIONThe overall low rates of employment and independent living suggest that individuals with myelomeningocele are experiencing great difficulty in achieving these milestones of emerging adulthood, regardless of sex. Limited success in developing self-management skills and restricted QOL also highlight vulnerability in this population.Improved health interventions have increased the survival rate of young people born with myelomeningocele over the past three decades, with data suggesting the vast majority of affected individuals can be expected to survive long into adulthood. 1 Less progress has been made to support their psychosocial functioning as these individuals transition from adolescence into young adulthood.2 However, a range of medical (e.g. muscle weakness and paralysis, bladder and bowel dysfunction, orthopedic abnormalities), 3 neurocognitive, 4 and social deficits present challenges to completing the developmental outcomes associated with early adulthood including self-management and community integration.5 These health and social difficulties also place them at risk for psychological distress 6 and poor quality of life (QOL). 7 Consequently, young adulthood is regarded as a critical period of developmental change. 8For young adults with myelomeningocele, self-management of condition-specific tasks, such as medication ordering ⁄ administration and clean intermittent self-catheterization, as well as more general activities of daily living, are considered to be essential skills for community integration and have been associated with higher QOL ratings.9 However, research suggests that independence in these t...

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

mentioning

confidence: 99%

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Interrelationships of sex, level of lesion, and transition outcomes among young adults with myelomeningocele

Bellin

Dicianno

Levey

et al. 2011

Developmental Medicine &Amp; Child Neurology

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“…Depression is recognized as the most common and disabling condition secondary to major function al impairments such as spinal cord injury (Craig, Tran, & Middleton, 2009), amputation (Singh et al, 2009, spina bifida (Bellin et al, 2010), and polio (Kahan, Mitchell, Kemp, & Adkins, 2006). Depres sion is estimated to afflict 20% to 40% of adults with various physical disabilities, much higher than the agematched general population without disability, which tends to be below 10% Singh et al, 2009).…”

Section: Personal Factors Associated With Depression In People With Dmentioning

confidence: 99%

Personal and familial predictors of depressive feelings in people with orthopedic disability

Secinti¹,

Selçuk²,

Harma³

2017

Health Psychology Report

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People with orthopedic disability experience limitations in physical ability, which can cause psychological problems such as depressive feelings. This paper investigates the role of family environment, caregiver characteristics, and personal resources in the acceptance of disability and depressive feelings of persons with orthopedic disability. participants and procedureData were collected from 161 Turkish people with orthopedic disability (mean age = 35.60 years, SD = 10.18) and their family caregivers (e.g., parent, spouse). The participants with disability completed scales for functional independence, acceptance of disability, family environment, locus of control, learned resourcefulness, and depression. The family caregivers completed measures of social support, their own depression, burden of caregiving, and acceptance-rejection of their care recipient. resultsAnalyses via multivariate statistics and SEM showed that depressive feelings of individuals with orthopedic disability and their acceptance of the disability were predicted by multiple factors, including the affected persons' learned resourcefulness and locus of control, family environment, and interactions with their family caregiver, but not by their functional independence. conclusionsOverall, a supportive family environment and acceptance of disability appear to lower the risk of having depression for individuals with orthopedic disability. Family caregivers' attitudes towards their care recipients were related to the family environment, and feelings of burden appeared to impair the affected individuals' acceptance of their condition. (Pierangelo & Giu liani, 2007). Whether congenital or acquired (traumati cally or gradually), orthopedic disability exerts a major impact on the affected individuals and their families (Keany & Gluekauf, 1993). Limitations in physical abil ity not only adversely influence the mobility of people with orthopedic disability, but can also cause social and psychological problems such as depression (Crichlow, Andres, Morrison, Haley, & Vrahas, 2006;. In order to alleviate these problems, it is important to identify factors that contribute to the depressive feelings they may experience.People with orthopedic disability can often en counter problems such as pain and a progressive decline of energy and muscle use, and may need as sistance for various daily activities such as eating, dressing, transfer, and bowel and bladder care (Rob insonWhelen & Rintala, 2003; Weitzenkamp, Ger hart, Charlifue, & Whiteneck, 1997). Therefore, there is usually a family caregiver who lives with people with orthopedic disabilities and interacts with them on a daily basis (Dreer, Elliott, Shewchuk, Berry, & Rivera, 2007). Due to such a living arrangement that requires continual interaction between the indi vidual with disability and his/her relative, the char acteristics and functioning of the caregiving family member might be among the factors affecting the emotional wellbeing of individuals with disabilities. Yet research on this topic is l...

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Medication use during pregnancy among women with congenital physical disabilities

García

Petersen

Parker

et al. 2022

Birth Defects Research

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Background Medication use during pregnancy is common, with up to 90% of pregnant women taking at least one medication. Women with congenital physical disabilities often report co‐occurring conditions during pregnancy that may warrant pharmaceutical treatment, however, research is limited. We aim to describe medication use during pregnancy including: pain, psychotropic, and antibacterial medication, among women with and without congenital physical disabilities. Methods We used data from the Slone Birth Defects Study (1976–2015), a case–control study that collected information on pre‐pregnancy health conditions and exposures among participating mothers. Women with congenital physical disabilities (n = 132) included women with spina bifida, cerebral palsy, muscular dystrophy, limb deficiencies, and other skeletal/connective tissue conditions and were matched by interview year and study site to women without congenital physical disabilities (n = 528). Proportions and difference in proportions for each medication were compared between groups. Simple proportions were also calculated for duration and multiple medication use variables. Results Women with congenital physical disabilities more frequently reported use of pain (acetaminophen and opioids), psychotropic (antidepressants), and antibacterial medications during pregnancy. Women with congenital physical disabilities used pain and psychotropic medications for longer, frequent durations, and more frequently reported haven taken multiple medications during pregnancy. Conclusion Women with congenital physical disabilities report higher medication use during pregnancy compared to women without physical disabilities. Patterns may be attributable to co‐occurring conditions or increased risk of pregnancy complications in this population. Further research is needed to describe the patterns of medication use for clinical decisions regarding treatment of pregnant women with disabilities.

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Correlates of Depressive and Anxiety Symptoms in Young Adults with Spina Bifida

Cited by 81 publications

References 59 publications

Interrelationships of sex, level of lesion, and transition outcomes among young adults with myelomeningocele

Interrelationships of sex, level of lesion, and transition outcomes among young adults with myelomeningocele

Personal and familial predictors of depressive feelings in people with orthopedic disability

Medication use during pregnancy among women with congenital physical disabilities

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