Coping with new treatments for cancer: a feasibility study of daily diary measures

Sherliker, Louise; Steptoe, Andrew

doi:10.1016/s0738-3991(99)00047-6

Cited by 42 publications

(36 citation statements)

References 41 publications

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“…Although Stone and colleagues (2003) noted high rates of noncompliance with paper diaries when the study protocol called for four assessments each day for 21 consecutive days, we assert that our participants were more likely to be compliant because of the decreased burden associated with our protocol (i.e., one assessment per day for eight days), and previous research noting the high levels of compliance with paper diaries when only one assessment per day is required (e.g., Sherliker & Steptoe, 2000). In addition, given the NAS participants' history of compliance with this longitudinal study over the past 40 years (of the survivors, over 90% are continuing participants, most of the men who are continuing participants report to the Boston VA every three years for a biomedical exam and complete a number of questionnaires either mailed a month in advance or administered the day of the exam) it is unlikely that they waited until the eighth day to complete all of their diaries.…”

Section: Limitationssupporting

confidence: 58%

The effects of the Columbia shuttle disaster on the daily lives of older adults: Findings from the VA Normative Aging Study

Neupert

Almeida

Mroczek

et al. 2006

Aging & Mental Health

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During 2002-2003 the VA Normative Aging Study conducted an eight-day diary survey of stressors and well-being. A sub-sample of 19 men and 13 women (mean age = 71.78) completed daily questionnaires before and after the Columbia shuttle exploded on 1st February 2003, presenting a unique look into peoples' daily lives before and after a tragic event. Results indicated no significant changes in negative affect or physical symptoms, but people reported significant decreases in both positive affect and memory failures on days following the shuttle explosion. Implications of these findings and directions for future research are discussed.

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Section: Limitationssupporting

confidence: 58%

The effects of the Columbia shuttle disaster on the daily lives of older adults: Findings from the VA Normative Aging Study

Neupert

Almeida

Mroczek

et al. 2006

Aging & Mental Health

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“…In contrast, some respondents used the MSSID as a tool to monitor and understand their own symptoms, supporting findings from previous diary studies [20][21][22][23]. For these respondents, the MSSID became more than just a data collection method for the researcher.…”

Section: Discussionsupporting

confidence: 72%

“…Fewer studies have considered the utility of completing a diary from the perspective of the respondent. In this respect, the process of writing a diary can provide respondents with an outlet to their emotions, and can be a useful monitoring tool that enables them to gain more insight into their condition [20][21][22][23]. Diary completion is one component of educational interventions that aim to help people with cancer to manage and cope with their pain [24].…”

Section: Advantages Of Diary Datamentioning

confidence: 99%

An assessment of the feasibility and utility of the MS Symptom and Impact Diary (MSSID)

Greenhalgh

2005

Qual Life Res

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The Multiple Sclerosis Symptom and Impact Diary (MSSID) was developed to provide a more comprehensive assessment of the impact of multiple sclerosis (MS) on HRQoL for use in clinical practice. This paper reports on an assessment of its feasibility and utility in two outpatient samples of people with MS (n = 13 and n = 63) using quantitative and qualitative methods. The response rate in study 2 was 82% and 83% of days were fully completed. Most respondents found the MSSID easy to understand and got into the habit of completing it. Missing items increased over time and those who experienced a relapse had more missing items than those who did not but there was no difference in the number of missed days. Some respondents found completing the MSSID enabled them to manage their lives more effectively and provided useful information to their neurologist. It is concluded that the MSSID is feasible for people with MS to complete and some may find the MSSID helpful as a tool to monitor their condition. Further research is needed to examine clinicians' perceptions of the feasibility and utility of the MSSID within clinical practice.

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“…Some studies have used daily assessments, but they have tended to focus on only one or a few symptoms [26,50]. Daily diaries used in cancer pain management [51,52] and clinical trials [53,54] have been found to be acceptable to participants and provide evidence of daily variability in responses.…”

Section: Ac Chemotherapymentioning

confidence: 99%

Emotional Suppression Tendencies as Predictors of Symptoms, Mood, and Coping Appraisals During AC Chemotherapy for Breast Cancer Treatment

Schlatter

Cameron

2010

ann. behav. med.

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Tendencies to suppress negative emotions have been shown to predict adjustment to cancer and cancer progression. We examined whether emotional suppression, in terms of both general and emotion-specific tendencies, predict symptom reports, mood states, and coping appraisals during adriamycin/doxorubicin, cyclophosphamide/cytoxan chemotherapy for breast cancer. Forty participants completed a measure yielding scores for anxiety suppression, anger suppression, depression suppression, and total emotional suppression. They then reported their experiences of 34 physical symptoms, mood, and coping efficacy on a daily basis for the duration of treatment (84 days). Mixed model analyses revealed that emotional suppression predicted lower reports of symptoms that are vague, well-known, and potentially embarrassing side effects of chemotherapy (e.g., fatigue and constipation). Emotional suppression and particularly anger suppression predicted higher reports of symptoms relating to immune function and cardiovascular arousal (e.g., mouth sores and heart palpitations) and with appraisals of poorer coping. The three suppression tendencies exhibited distinctive patterns of relationships with symptoms, mood, and coping appraisals, suggesting that anxiety suppression, anger suppression, and depression suppression have partially independent relationships with symptomatic and mood processes. The findings highlight the potential importance of emotional suppression for understanding symptom and coping responses during chemotherapy.

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Coping with new treatments for cancer: a feasibility study of daily diary measures

Cited by 42 publications

References 41 publications

The effects of the Columbia shuttle disaster on the daily lives of older adults: Findings from the VA Normative Aging Study

The effects of the Columbia shuttle disaster on the daily lives of older adults: Findings from the VA Normative Aging Study

An assessment of the feasibility and utility of the MS Symptom and Impact Diary (MSSID)

Emotional Suppression Tendencies as Predictors of Symptoms, Mood, and Coping Appraisals During AC Chemotherapy for Breast Cancer Treatment

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