Coping with HIV Related Stigma and Well-Being

Sanjuán, Pilar; Molero, Fernando; Fuster, María José López; Nouvilas, Encarnación

doi:10.1007/s10902-012-9350-6

Cited by 28 publications

(26 citation statements)

References 55 publications

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“…Fife and Wright (2000) emphasise the impact of HIV stigma upon the self-esteem, personal control and body image of the individual. Sanjuan et al (2012) describe wellbeing as affect balance, self-acceptance and environmental mastery. Baumgardner and Crothers (2010) concur with a number of the concepts describing wellbeing as a state of being that is subjective by nature but that bolsters quality of life, life satisfaction, a sense of wellbeing, the presence of positive affect and a relative absence of negative affect.…”

Section: Conceptualisation Of Hiv Stigmamentioning

confidence: 99%

“…Yang and Kleinman (2008) suggest changing the term stigma to social death, to emphasise the victimisation and dehumanisation associated with stigma. HIV stigma affects the psychosocial wellbeing of PLWH and PLC but conversely, psychosocial wellbeing affects stigma experiences, stigmatisation and the subjective sense of wellbeing, like the affect balance, self-acceptance, environmental mastery, active coping and even avoidant coping (Sanjuan et al 2012). Kalichman (2014) describes prejudice and stigma as a central area of social psychology and relates it to the situation where PLWH have been victims of stigmatisation ever since the epidemic began in the 1980s.…”

Section: Contextualisation Of Hiv Stigma-related Psychosocial Wellbeingmentioning

confidence: 99%

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Changeover-time in psychosocial wellbeing of people living with HIV and people living close to them after an HIV stigma reduction and wellness enhancement community intervention

Chidrawi

Greeff

Temane

et al. 2015

African Journal of AIDS Research

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HIV stigma continues to affect the psychosocial wellbeing of people living with HIV (PLWH) and people living close to them (PLC). Literature unequivocally holds the view that HIV stigma and psychosocial wellbeing interact with and have an impact on each other. This study, which is part of a larger research project funded by the South Africa Netherlands research Programme on Alternatives in Development (SANPAD), responds to the lack of interventions mitigating the impactful interaction of HIV stigma and psychosocial wellbeing and tests one such intervention. The research objectives were to test the changeover-time in the psychosocial wellbeing of PLWH and PLC in an urban and a rural setting, following a comprehensive community-based HIV stigma reduction and wellness enhancement intervention. An experimental quantitative single system research design with a pre- and four repetitive post-tests was used, conducting purposive voluntary sampling for PLWH (n = 18) and snowball sampling for PLC (n = 60). The average age of participants was 34 years old. The five measuring instruments used for both groups were the mental health continuum short-form scale, the patient health questionnaire, the satisfaction with life scale, the coping self-efficacy scale and the spirituality wellbeing scale. No significant differences were found between the urban-rural settings and data were pooled for analysis. The findings show that initial psychosocial wellbeing changes after the intervention were better sustained (over time) by the PLC than by the PLWH and seemed to be strengthened by interpersonal interaction. Recommendations included that the intervention should be re-utilised and that its tenets, content and activities be retained. A second intervention three to six months after the first should be included to achieve more sustainability and to add focused activities for the enhancement of psychosocial wellbeing. PLWH and PLC are to be encouraged to engage with innovative community mechanisms to make psychosocial wellbeing a way of life in the community at large.

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Section: Conceptualisation Of Hiv Stigmamentioning

confidence: 99%

Section: Contextualisation Of Hiv Stigma-related Psychosocial Wellbeingmentioning

confidence: 99%

Changeover-time in psychosocial wellbeing of people living with HIV and people living close to them after an HIV stigma reduction and wellness enhancement community intervention

Chidrawi

Greeff

Temane

et al. 2015

African Journal of AIDS Research

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“…More specifically, the rate of PTSD among this patient group ranges between 30 and 64% (Olley et al 2005;Sherr et al 2011). HIV-related PTSD symptoms stem mostly from an awareness of a risk of premature death, but they also result from the unpredictable course of HIV progression, side effects of treatment and social stigmatization (Breet et al 2014;Sanjuán et al 2013). Nevertheless, positive changes were also observed among PLWH, comprising the phenomenon of PTG, and these changes may entail important clinical as well as psychological advantages (Milam 2004(Milam , 2006Murphy and Hevey 2013;Rzeszutek et al 2017).…”

mentioning

confidence: 93%

Satisfaction with Life, Big-Five Personality Traits and Posttraumatic Growth Among People Living with HIV

2017

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The current study explored the level of posttraumatic growth (PTG), treated as the explained variable, and its relationship with the level of satisfaction with life (SWL) and the Big Five personality traits, while controlling for several socio-medical variables, among people living with HIV. Participants were 470 individuals with a confirmed diagnosis of HIV infection. Participants filled out the following questionnaires: the Posttraumatic Growth Inventory, the Satisfaction with Life Scale and the NEO Five-Factor Inventory. Additionally, sociodemographic as well as medical data were obtained. Extraversion and SWL were the most important correlates of the level of PTG among participants. Personality traits (neuroticism) and socio-medical variables (antiretroviral treatment, education, relationship status) were moderators of the relationship between the level of SWL and PTG intensity in this patient group. Taking into account significant health-related benefits associated with PTG among people living with HIV, it is important to further explore psychosocial and clinical factors contributing to this positive phenomenon in this patient group.

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“…This type of strategies has important costs in terms of reduction of social support (Stutterheim et al, 2011) and increase of diverse symptoms of psychological distress (Herek et al, 2009;Link, Castille, & Stuber, 2008). In contrast, active coping styles are related to better health behaviors and greater physical and psychological well-being (Moscowitz, Hult, Bussolari, & Acree, 2009;Sanjuán, Molero, Fuster, & Nouvilas, 2013). Therefore, the decrease of internalized stigma, the increase of perceived self-efficacy to cope with stigma, the increase of approach coping strategies, and the reduction of avoidant coping strategies achieved by the intervention are revealed as key variables to reduce the impact of stigma on the quality of life of people with HIV.…”

Section: Discussionmentioning

confidence: 99%

Evaluación de una intervención dirigida a reducir el impacto del estigma en las personas con VIH capacitándolas para afrontarlo

2015

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Título: Evaluación de una intervención dirigida a reducir el impacto del estigma en las personas con VIH capacitándolas para afrontarlo. Resumen: Este estudio tuvo como objetivo evaluar un programa de intervención dirigido a disminuir el impacto del estigma en las personas con VIH y a capacitarlas para afrontarlo. Se utilizó un diseño cuasiexperimental, con grupo control no equivalente, y prueba previa y posterior. Participaron 221 personas con VIH, 164 recibieron la intervención y 56 formaron parte de los grupos de control no equivalente. Las variables dependientes fueron la percepción de estigma -declarado e internalizado-, la autoestima, la percepción de autoeficacia, las estrategias de afrontamiento del estigma -control primario, secundario y de evitación-y, la calidad de vida. Se realizaron análisis de las varianzas (MANOVAS y ANOVAS) para comprobar las diferencias en el pre-test y en las puntuaciones diferenciales en ambos grupos, y análisis de la covarianza (MANCOVAS y ANCOVAS) para evaluar la eficacia del programa. Los resultados mostraron una reducción del estigma percibido y de las estrategias de evitación y, un incremento en la autoeficacia percibida para afrontar el estigma, en la disposición al uso de estrategias de aproximación y en la autoestima y la calidad de vida. Estos resultados indican que es posible capacitar a las personas con VIH para afrontar el estigma. Palabras clave: Estigma; VIH; afrontamiento; calidad de vida; evaluación intervención.Title: Assessment of an intervention to reduce the impact of stigma on people with HIV, enabling them to cope with it Abstract: The goal of this study was to assess an intervention program to reduce the impact of stigma on people with HIV and to enable them to cope with it. A quasi-experimental design, with non-equivalent control group and pre-and posttest was used. Participants were 221 people with HIV, of whom 164 received the intervention and 56 made up the nonequivalent control groups. The dependent variables were perception of stigma-enacted and internalized-, self-esteem, perception of selfefficacy, strategies used to cope with stigma-primary control, secondary control, and avoidance-and quality of life. Analysis of variance (MANO-VAS and ANOVAS) was conducted to determine pretest differences and differential scores in both groups, and analysis of covariance (MAN-COVAS and ANCOVAS) was performed to assess the efficacy of the program. The results showed reduction of perceived stigma and avoidance strategies and an increase in perceived self-efficacy to cope with stigma, disposition to use approach strategies, self-esteem, and quality of life. These results indicate that it is possible to train people with HIV to cope with stigma.

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Coping with HIV Related Stigma and Well-Being

Cited by 28 publications

References 55 publications

Changeover-time in psychosocial wellbeing of people living with HIV and people living close to them after an HIV stigma reduction and wellness enhancement community intervention

Changeover-time in psychosocial wellbeing of people living with HIV and people living close to them after an HIV stigma reduction and wellness enhancement community intervention

Satisfaction with Life, Big-Five Personality Traits and Posttraumatic Growth Among People Living with HIV

Evaluación de una intervención dirigida a reducir el impacto del estigma en las personas con VIH capacitándolas para afrontarlo

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