Coping with cognitive impairment and dementia: Rural caregivers’ perspectives

Branger, Camille; Burton, Rachel; O’Connell, Megan E; Stewart, Norma J.; Morgan, Debra

doi:10.1177/1471301214539956

Cited by 13 publications

(17 citation statements)

References 34 publications

(91 reference statements)

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“…The findings of the present study illustrated that more than one-quarter and onefifth of the caregivers respectively usually use exercises and Self-distraction to overcome stressors situations and burden of caregiving this was in agreement with the study of (73) in Canda who revealed that more than onethird and less than onethird of caregivers respectively usually used self-Physical activities and restructuring to cope with the burden.…”

Section: Discussionsupporting

confidence: 92%

Burden and Coping Mechanisms among Caregiver for Old Adult with advanced illness.

Ahmed

Saif

Hamedy

2021

NILES journal for Geriatric and Gerontology

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There were 727 million persons aged 65 years or over in the world in 2020. Over the next three decades, the global number of older persons is projected to more than double, reaching over 1.5 billion in 2050 The aim of this study was to assess burden and coping mechanism among care giver for old age with advanced illness. A descriptive design is utilized in this study. A Convenience sample of caregivers was used it composed of 100 of caregivers and their patients who match the criteria: primary caregivers who provide care for the patients for at least one year and accept to participate in the study. Two tools were utilized 1: Interviewing questionnaire composed of 3 parts, Socio-demographic data, medical history of the patients, coping strategies used by the care giver to reduce 2 to assess burden of caregivers. The result the current study revealed (43%) of the studied caregivers reported high level of burden and stress, flowed (32%) reported medium level of burden and (25%) reported low level of burden. This study conducted that caregiver factors as Age, gender, educational level, income status, knowledge of the diseases, and coping., patient factors (Age, clinical symptom, and disability in daily life), and environment factors (Health services and its utilization, and social support.) are major factors that affected caregivers' burden. The present study recommended that Provide guideline as well as clinical training to assist caregivers of chronic disease patients at home This helps them deal with the burden of care and manage the stress associated with it.

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Section: Discussionsupporting

confidence: 92%

Burden and Coping Mechanisms among Caregiver for Old Adult with advanced illness.

Ahmed

Saif

Hamedy

2021

NILES journal for Geriatric and Gerontology

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“…Rural communities can also be important sources of social opportunities and meaningful relationships (Keating et al, 2013). Despite fragmented formal support, family carers and people with dementia may draw on positive aspects of rural environments (Egdell et al, 2010) to develop protective coping strategies even in difficult circumstances (Branger et al, 2016). This may explain the absence of significance on the rural-urban variable in our study.…”

Section: Discussionmentioning

confidence: 76%

An analysis of carer burden among family carers of people with and without dementia in Ireland

Teahan

Lafferty

Cullinan

et al. 2020

Int. Psychogeriatr.

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Objective: Despite the policy relevance of carer burden, limited research focuses on family carers’ experience of carer burden among different disease groups. This study aimed to examine differences in carer burden among family carers of people with and without dementia. Design: Secondary data analysis was conducted on a national cross-sectional dataset. Multivariable ordered logistic regression was used to analyze four levels of carer burden (low, mild, moderate, high). The main independent variable was dementia diagnosis, and controls included variables relating to the care recipient, family carer, and context of care. Setting: The original survey was funded by Irish Health Service Executive and undertaken by the National Centre for the Protection of Older People in Ireland. Participants: The original dataset consisted of 2,311 family carers of older people in Ireland. Approximately, one-fifth of this sample had a diagnosis of dementia. Measurements: Carer burden was measured using the standardized 22-item Zarit Burden Interview. Care-recipient dependency was measured using the Activities for Daily Living Scale. Sociodemographic details and information about the context of caring were collected using self-report scales. Results: In our model, dementia diagnosis and dependency level were significantly associated with carer burden. Family carer and context of care variables including gender, marital status, education, residence, co-residence, and perceived support showed significant relationships with carer burden. Our results highlighted significant differences in carer burden distribution; in particular, family carers of people with dementia were less likely to report low or mild carer burden (−6.95 ppts and −3.64 ppts, respectively) and more likely to report moderate or high carer burden (8.46 ppts and 2.13 ppts, respectively). Conclusion: Our findings suggest that family carers of people with dementia may experience additional challenges associated with caring. Therefore, family carers of people with dementia may require tailored social supports to maintain good health and well-being.

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“…In spite of these challenges, people with dementia and their partners actively negotiate the support required to cope with and care for dementia, drawing on positive aspects of rural environments (Blackstock et al 2006; Egdell et al 2010) and developing adaptive coping strategies to meet the demands of care (Branger et al 2014). More information is needed, however, about the place-specific transitions and trajectories of partners in care to help support them and the person with dementia over the course of the condition (Forbes et al 2012).…”

Section: Introductionmentioning

confidence: 99%

Dementia in rural settings: examining the experiences of former partners in care

Herron

Rosenberg

2017

Ageing and Society

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Informal carers, also referred to as partners in care, provide the bulk of care to people living with dementia across a range of community settings; however, the changing experiences and contexts of providing informal care for people with dementia in rural settings are under-studied. Drawing on 27 semi-structured interviews with former partners in care in Southwestern and Northern Ontario, Canada, we examine experiences of providing and accessing care over the course of the condition and across various settings. Our findings illustrate the challenges associated with navigating the system of care, finding people who understand dementia in the surrounding community, negotiating hours of home support, facing resistance to respite from the person with dementia, and feeling pressured into long-term care. We argue that partners' time, bodies and choices are spatially constrained within rural and small-town settings and the current systems of home, community and long-term care.

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Coping with cognitive impairment and dementia: Rural caregivers’ perspectives

Cited by 13 publications

References 34 publications

Burden and Coping Mechanisms among Caregiver for Old Adult with advanced illness.

Burden and Coping Mechanisms among Caregiver for Old Adult with advanced illness.

An analysis of carer burden among family carers of people with and without dementia in Ireland

Dementia in rural settings: examining the experiences of former partners in care

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