Dementia in rural settings: examining the experiences of former partners in care

Herron, Rachel; Rosenberg, Mark W.

doi:10.1017/s0144686x17000952

Cited by 12 publications

(23 citation statements)

References 21 publications

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“…Northern Norway is characterized by large geographical areas with dispersed populations that may complicate an effective provision of services. Previous studies have demonstrated that the needs of rural families are not met by the community healthcare services due to restricted hours and limited availability (Herron & Rosenberg, 2017; Morgan, Semchuk, Stewart, & D’Arcy, 2002) or inappropriate deliveries of the services (Innes, Blackstock, Mason, Smith, & Cox, 2005). Rural caregivers may receive more support from other family members (Ehrlich, Bostrom, Mazaheri, Heikkila, & Emami, 2015).…”

Section: Discussionmentioning

confidence: 99%

Factors affecting the use of home-based services and out-of-home respite care services: A survey of family caregivers for older persons with dementia in Northern Norway

et al. 2018

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Background: Family caregivers contribute substantially to the care for older home-dwelling people with dementia, although community healthcare services tend to be underutilized. In this /home/dem study, we aimed to explore the use and predictors of use of home-based and out-of-home respite care services available to older home-dwelling persons with dementia, as reported by the family caregivers. Method: A cross-sectional survey was administered to family caregivers (n = 430) in Northern Norway during April to November 2016. The use of healthcare services was categorized into two types according to principal component analysis: home-based services and out-of-home respite care services (R 2 = 44.1%). Predictors of service use were examined with bivariate correlation, multiple linear regression, and Poisson regression analyses. Results: The use of home-based services among persons with dementia was significantly higher for persons with advanced age, persons living in urban areas, persons living in an assisted living facility, persons living alone, and persons able to manage being alone for a short period of time. Among the family caregiver variables, higher age, status as a daughter, son, or other family member, higher educational level, and full-time employment also predicted greater use of home-based services. Same ethnicity was associated with use of fewer home-based services. The use of out-of-home respite care services was significantly higher among male persons with dementia and among those living in urban areas. In addition, fewer out-of-home respite care services were used by male caregivers or daughters of the care recipient, while the use was higher when the caregivers experienced more caregiving demands or had provided care for longer periods of time. Conclusions:These results indicate areas that policymakers and healthcare providers should consider to identify families who underutilize healthcare services and to achieve a more equal and efficient allocation of services in accordance with families' needs.

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Section: Discussionmentioning

confidence: 99%

Factors affecting the use of home-based services and out-of-home respite care services: A survey of family caregivers for older persons with dementia in Northern Norway

et al. 2018

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“…Studies were primarily conducted in Canada (Hawranik & Strain, 2001;Herron & Rosenberg, 2019a, 2019bMorgan et al, 2002), the Netherlands (Boots et al, 2015;Wolfs et al, 2010Wolfs et al, , 2012, the UK (Durand et al, 2009;Herat-Gunaratne et al, 2020;Kaisey et al, 2012), Australia (Low et al, 2015;Macleod et al, 2017;Xiao et al, 2015) and the USA (Gitlin et al, 2010;Jablonski et al, 2019).…”

Section: Study Characteristicsmentioning

confidence: 99%

“…Key themes included the need for care professionals to provide a clear overview of the services available and regularly revisit and review these as individuals' and families' needs changed (Macleod et al, 2017;Morgan et al, 2002;Stephan et al, 2018;Wolfs et al, 2010Wolfs et al, , 2012. Sharing learning from other caregivers (Herron & Rosenberg, 2019a;Morgan et al, 2002;Wolfs et al, 2012), offering advice and anticipating transitions in care (enabling people to plan in advance) were also seen as important (Wolfs et al, 2010(Wolfs et al, , 2012, as was empowering service users and caregivers to make their own decisions (Macleod et al, 2017;Morgan et al, 2002;Stephan et al, 2018;Wolfs et al, 2010Wolfs et al, , 2012. Providing family caregivers with disease-specific knowledge (Boots et al, 2015;Morgan et al, 2002;Stephan et al, 2018;Xiao et al, 2015), and specialist support (including counselling and/or help to overcome their own reluctance to accept assistance) (Herron & Rosenberg, 2019a;Morgan et al, 2002;O'Shea et al, 2019;Rapaport et al, 2020;Stephan et al, 2018;Wolfs et al, 2010) were also perceived to be helpful.…”

Section: Wider Attempts To Increase the Uptake Of Services By Older P...mentioning

confidence: 99%

Enabling older people with mental health needs to engage with community social care: A scoping review to inform a theory of change

Newbould

Tucker

Wilberforce

2021

Health Social Care Comm

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Despite apparent need, many older people with cognitive impairment and/or mental health needs do not fully engage with social care. This can manifest in different ways, including passive or aggressive attempts to avoid or repel care workers. However, little is known about how to support such individuals in their own homes and deliver effective care. Against this background, we undertook a scoping review with a view to developing a preliminary theory of change suggesting how care might be modified to engage this client group. The most recent search was conducted on 21/04/21.Papers were included if they (i) focused on older people (65+) living at home with social care needs and (ii) described difficulties/problems with the provision/receipt of social care associated with individuals' mental health needs. Twenty-six citations were identified through electronic database searches and reference screening, and the results were charted according to key theory of change concepts (long-term outcomes, preconditions, interventions, rationale and assumptions). All the included papers were related to people with dementia. Four subgroups of papers were identified. The first highlights those external conditions that make it more likely an intervention will be successful; the second describes specific interventions to engage older people who by virtue of their mental health needs have not engaged with social care; the third explores what services can be done to increase service uptake by older people with mental health needs and their caregivers more generally; and the fourth details theoretical approaches to explaining the behaviour of people with dementia.Each provides information that could be used to inform care delivery and the development of interventions to improve engagement with health and social care for these individuals. The study concludes that different framing of engagement difficulties, such as that offered through positioning theory, may assist in future service design.

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“…More novel is a perspective that has emerged on seasonality, focused on the challenges of weather for caregivers at different times of the year (Joseph et al., 2013; Skinner et al., 2009) and on the (health) care challenges of seasonal migration (Pickering et al., 2020). On the other hand, the care literature also deals with shorter timeframes and more intimate scales, such as in considerations of quickly changing care pathways and situations (Herron & Rosenberg, 2019; Vrotsou et al., 2017), in considerations of the time–space dimensions of caring practice or ‘carescapes’ (Bowlby, 2012; Herron & Skinner, 2012), and in its specific consideration of the introductory and meaningful experiences of waiting rooms in healthcare facilities, including the importance of design, decorative and interpersonal features (Eggleton et al, 2017; Evans et al., 2009; Kearns et al., 2020). These latter studies complement other research reviewed later on the affective, embodied experience of waiting.…”

Section: Relative/conscious Time (Knowing Time)mentioning

confidence: 99%

Bios and arrows: On time in health geographies

Andrews

2021

Geography Compass

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Time has not often been the subject of dedicated conceptual attention in health geography, but one does not need to dig very deep in the literature to uncover diverse engagements with it across empirical research. Framed by particular theoretical understandings of time, this paper reviews these engagements and how they have helped shape geographical knowledge of disease, health and care. Whilst these engagements are welcomed, the paper also highlights the possibility of going further by focusing on systems fundamental to 21st‐century society. Specifically, it describes the need to develop approaches that might ‘keep time with the trouble’ by capturing and intervening in the timings of the new faster, technologically mediated, affective capitalism in its use, creation and diminishing of health and well‐being.

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Dementia in rural settings: examining the experiences of former partners in care

Cited by 12 publications

References 21 publications

Factors affecting the use of home-based services and out-of-home respite care services: A survey of family caregivers for older persons with dementia in Northern Norway

Factors affecting the use of home-based services and out-of-home respite care services: A survey of family caregivers for older persons with dementia in Northern Norway

Enabling older people with mental health needs to engage with community social care: A scoping review to inform a theory of change

Bios and arrows: On time in health geographies

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