Coping and Resilience of Adolescents With Congenital Heart Disease

Lee, Sunhee; Kim, Sue; Choi, Jae Young

doi:10.1097/jcn.0b013e3182865367

Cited by 31 publications

(35 citation statements)

References 30 publications

(31 reference statements)

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“…In addition, accurate knowledge of CHD is associated with improved resilience and health-related quality of life. 20,21 Patients with knowledge about CHD and treatment have better compliance and feel a stronger sense of responsibility for their own health. 22 However, some adolescents reported that they did not have any opportunity to obtain the necessary information about their disease, because they did not talk about their illness with their family or their healthcare provider.…”

Section: Discussionmentioning

confidence: 99%

School-related adjustment in children and adolescents with CHD

Lee

Yun

et al. 2017

Cardiol Young

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Advancements in medical and surgical treatment have increased the life expectancy of patients with CHD. Many patients with CHD, however, struggle with the medical, psychosocial, and behavioural challenges as they transition from childhood to adulthood. Specifically, the environmental and lifestyle challenges in school are very important factors that affect children and adolescents with CHD. This study aimed to evaluate school-related adjustments depending on school level and disclosure of disease in children and adolescents with CHD. This was a descriptive and exploratory study with 205 children and adolescents, aged 7-18 years, who were recruited from two congenital heart clinics from 5 January to 27 February, 2015. Data were analysed using the Student's t-test, analysis of variance, and a univariate general linear model. School-related adjustment scores were significantly different according to school level and disclosure of disease (p<0.001) when age, religion, experience being bullied, and parents' educational levels were assigned as covariates. The school-related adjustment score of patients who did not disclose their disease dropped significantly in high school. This indicated that it is important for healthcare providers to plan developmentally appropriate educational transition programmes for middle-school students with CHD in order for students to prepare themselves before entering high school.

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Section: Discussionmentioning

confidence: 99%

School-related adjustment in children and adolescents with CHD

Lee

Yun

et al. 2017

Cardiol Young

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“…19 Children using task-oriented coping strategies have higher resilience than those using emotion-and avoidance-oriented coping strategies. 19 Furthermore, among pediatric patients, higher disease knowledge increases the use of task-oriented coping strategies and therefore, resilience. 20 There is conflicting evidence concerning the effect of resilience on health-related quality of life (QOL) after medical trauma.…”

Section: Aspe Cts Of Resilien Cementioning

confidence: 99%

“…Task‐oriented coping focuses on solving a problem by cognitively reconstructing and learning how to manage it. Conversely, emotion‐ and avoidance‐oriented coping focuses on reducing the negative emotions that are associated with the stress . Children using task‐oriented coping strategies have higher resilience than those using emotion‐ and avoidance‐oriented coping strategies .…”

Section: The Social and Psychological Aspects Of Resiliencementioning

confidence: 99%

“…Conversely, emotion‐ and avoidance‐oriented coping focuses on reducing the negative emotions that are associated with the stress . Children using task‐oriented coping strategies have higher resilience than those using emotion‐ and avoidance‐oriented coping strategies . Furthermore, among pediatric patients, higher disease knowledge increases the use of task‐oriented coping strategies and therefore, resilience …”

Section: The Social and Psychological Aspects Of Resiliencementioning

confidence: 99%

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Resilience in children and their parents enduring pediatric medical traumatic stress

Isokääntä

Koivula

Honkalampi

et al. 2019

Pediatric Anesthesia

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Summary Due to the general lack of familiarity with the concept in the medical field, resilience is rarely considered in pediatric medical traumas. Resilience is an ability that enables recovery after adversities such as traumas, surgeries, serious health problems, or social issues. Stress from medical traumas encompasses both the psychological and physical responses of children and their families. Lack of resilience in children with medical traumatic stress may contribute to poor adjustment, slow recovery, disruptive behaviors, and psychiatric disorders. Furthermore, persistent parental distress increases the child's risk of low resilience. Consequently, these patients and their parents require early identification. This is achievable using a common stress measure such as the Perceived Stress Scale. Moreover, health care providers can screen patients’ risks for low resilience, which include few social contacts, poor family functioning, and low cohesion among family members. Findings from the stress scale and screened risks could indicate the need for additional psychosocial support at the time of diagnosis of a serious illness, soon after injuries, and before and after operations. Such interventions can include decreasing distress, counseling children and their parents, and enabling strong connections to health care providers. Health care providers can help parents to minimize distress and adjust to their child's illness, thereby supporting the child's resilience, adjustment, and recovery.

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“…In Korea, awareness of the psychological issues associated with CHD in adults has increased, and research in this field has recently been active [ 3 , 9 – 11 ]. However, research on the development of psychological issues and related factors in adults with CHD in Korea, which differs from other countries in terms of social, economic, and cultural characteristics, is lacking.…”

Section: Introductionmentioning

confidence: 99%

The Center for Epidemiologic Studies Depression Scale is an adequate screening instrument for depression and anxiety disorder in adults with congential heart disease

Moon

Huh

Song

et al. 2017

Health Qual Life Outcomes

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BackgroundThe Center for Epidemiological Studies Depression Scale (CES-D) is an instrument that is commonly used to screen for depression in patients with chronic disease, but the characteristics of the CES-D in adults with congenital heart disease (CHD) have not yet been studied. The aim of this study was to investigate the criterion validities and the predictive powers of the CES-D for depression and anxiety disorders in adults with CHD.MethodsTwo hundred patients were screened with the CES-D and secondarily interviewed with a diagnostic instrument, i.e., the Mini International Neuropsychiatric Instrument. The sensitivity and specificity values of the CES-D were calculated by cross-tabulation at different cutoff scores. Receiver operating characteristic (ROC) curves were used to assess the optimal cutoff point for each disorder and to assess the predictive power of the instrument.ResultsThe CES-D exhibited satisfactory criterion validities for depression and for all combinations of depression and/or anxiety. With a desired sensitivity of at least 80%, the optimal cutoff scores were 18. The predictive power of the CES-D in the patients was best for major depression and dysthymia (area under the ROC curve: 0.92) followed by the score for any combination of depression and/or anxiety (0.88).ConclusionThe use of CES-D to simultaneously screen for both depression and anxiety disorders may be useful in adults with CHD. Trial registration: CESDEP 212. Registered 2 March 2014 (retrospectively registered).

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Coping and Resilience of Adolescents With Congenital Heart Disease

Cited by 31 publications

References 30 publications

School-related adjustment in children and adolescents with CHD

School-related adjustment in children and adolescents with CHD

Resilience in children and their parents enduring pediatric medical traumatic stress

The Center for Epidemiologic Studies Depression Scale is an adequate screening instrument for depression and anxiety disorder in adults with congential heart disease

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