Coping after heart transplantation: a descriptive study of heart transplant recipients’ methods of coping

Kaba, Evridiki; Thompson, David R.; Burnard, Philip

doi:10.1046/j.1365-2648.2000.t01-1-01558.x

Cited by 53 publications

(72 citation statements)

References 19 publications

(16 reference statements)

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“…Compared to other studies with samples including majorities of men, our findings indicate that women and men share some similar perceptions after heart transplant, 6,16 particularly acceptance and optimism, changing life goals and priorities, self-transcendence, and faith. The finding that female transplant recipients report lack of control as a perception of their illness is unique and has not been reported by investigators who included men in their samples.…”

Section: Discussioncontrasting

confidence: 55%

“…Participants in a similar study reported several of the coping mechanisms described by women in our sample, including optimism, acceptance, faith, and altruism. 6 Equating the application of these coping mechanisms with discovering meaning may be a logical explanation that mediates the relationship between meaning and psychological distress. Likewise, feelings of self-transcendence, self-fulfillment and the identification of changing life goals could compare with a realization of life purpose that may also directly or indirectly influence psychological distress.…”

Section: Discussionmentioning

confidence: 99%

“…5 Recently, researchers have suggested that the need to cope with the physical loss of a heart and acceptance of a donor heart may be antecedent to feelings of psychological distress. 6 To date, little research has addressed how recipients perceive their transplant experiences and the impacts on their lives. Furthermore, the majority of studies 6,7 focus on men or have a limited number of women in the sample, restricting the generalizability of findings to women.…”

mentioning

confidence: 99%

“…6 To date, little research has addressed how recipients perceive their transplant experiences and the impacts on their lives. Furthermore, the majority of studies 6,7 focus on men or have a limited number of women in the sample, restricting the generalizability of findings to women. Given the increasing number of women undergoing heart transplant surgery 8 and earlier reports that female gender is an independent risk factor for increased psychological distress after heart transplantation, 9 it is important to characterize the experience of women.…”

mentioning

confidence: 99%

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Meaning and life purpose: the perspectives of post-transplant women

Evangelista¹,

Doering²,

Dracup³

2003

Heart & Lung

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PURPOSE:A descriptive, exploratory study was conducted to examine perceptions and meanings assigned to the experience of end-stage heart failure and transplant surgery in female recipients. METHODS:Data was collected from 33 female heart transplant recipients from a heart transplant clinic using quantitative and qualitative methods. Women completed the Life Attitudes Profile and Multiple Affect Adjective Checklist and participated in a semi-structured interview. RESULTS:Women on average had a meaning score of 30.64 Ϯ 8.32 (range, 10-43) and a life purpose score of 40.12 Ϯ 13.78 (range, 17-63). The participants reported high levels of anxiety, depression, and hostility. Women expressed feelings of fear and lack of control related to their heart disease and transplant; however, they also described optimism, faith, acceptance, altruism, self-transcendence, self-fulfillment, and changing life goals as strong motivators for recovery. CONCLUSION:Women experience emotional distress as much as and beyond 5 years after heart transplantation. Their sense of meaning and life purpose is relatively high and is positively informed by several motivating factors that serve as coping resources throughout the recovery process. (Heart Lung® 2003;32:250-7.)

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Section: Discussioncontrasting

confidence: 55%

Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

mentioning

confidence: 99%

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Meaning and life purpose: the perspectives of post-transplant women

Evangelista¹,

Doering²,

Dracup³

2003

Heart & Lung

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“…Τhe process of transplantation appears to have a considerable emotional impact as the recipients have to cope with a dual challenge: the loss of their own heart and the acceptance of a donor heart (Rogers, 1989;Godfrey, Maylin, & Ross-White, 2012). Kaba, Thompson and Burnard, (2000) have suggested that the need to cope with the physical loss of a heart and acceptance of a donor heart may cause agony and produce feelings of psychological distress.…”

Section: Introductionmentioning

confidence: 99%

“Price to Pay for Being Alive”: Coping with the Post-Operative Demands in Heart Transplantation

Kaba¹,

Kelesi²,

Fasoi³

et al. 2017

GJHS

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Introduction: Understanding the problems experienced and coping strategies used after the heart transplantation, health care providers may help heart transplant recipients' adaptation to the postoperative period and consequently improve their quality of life. However, there is little qualitative evidence on how heart transplant recipients develop coping strategies and adapt to postoperative life. Aim:The aims of the study were a) to identify the physical and psychosocial problems experienced by heart transplant recipients and b) to identify coping strategies used by heart transplant recipients. Methods:A grounded theory research approach was used in data collection and analysis for studying heart transplant recipients' experience. The participants in this study were 42 heart transplant recipients. The data were gathered by taped, unstructured, in-depth interviews. Constant comparison analysis was used to interpret the data. Findings:Four categories developed from the data analysis, namely: "traumatic experience" "that's a small price to pay for being alive" "somebody else's heart inside me" and "coping". The central or core category, "That's a small price for being alive Vs Too big a price to pay for being alive" emerged and was the main theme around which other categories were integrated. Further interpretation of findings led to the development of a theory entitled "Price to pay for being alive: Coping with the post-operative demands in Heart Transplantation". Conclusion:The theory developed within the frame of this study offers an extension of Moos' Crisis Theory, and applies his basic concepts of major life crises and transitions with adaptations, to heart transplant patients. One such adaptation is the assertion that the factors that influence how adaptively an individual copes with a heart transplant crisis are different from any other health crisis.

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Palliative care in cardiac transplantation: an evolving model

2017

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It is currently estimated that 5.7 million Americans live with heart failure. Of these, less than 3000 will receive a heart transplant this year, according to the US Department of Health and Human Services Organ Procurement and Transplantation Network. With successful transplantation can come significant emotional and physical symptoms that are not always addressed. Although palliative care is an interdisciplinary subspecialty designed to alleviate multiple domains of suffering in serious illness, many mistakenly associate it solely with the end of life. Traditionally associated with cancer, research into the role of palliative care in other chronic illnesses and complex life-changing therapies such as solid organ transplantation remains scarce but is nonetheless developing. Here, we try to investigate a potential role for palliative care for heart transplant recipients. Early research thus far has demonstrated importance of early involvement of palliative care teams and the significant improvement of physical and emotional symptoms in the pre- and post-transplant period. Nevertheless, more research is warranted to determine the ideal timing of palliative care integration, the effects on health care resource utilization, and whether improving quality of life can affect morbidity and mortality. By understanding these critical elements and others we may be able to develop a model for the role of palliative care for heart transplant patients.

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Coping after heart transplantation: a descriptive study of heart transplant recipients’ methods of coping

Cited by 53 publications

References 19 publications

Meaning and life purpose: the perspectives of post-transplant women

Meaning and life purpose: the perspectives of post-transplant women

“Price to Pay for Being Alive”: Coping with the Post-Operative Demands in Heart Transplantation

Palliative care in cardiac transplantation: an evolving model

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