Conocimiento sobre cuidados paliativos pediátricos de los pediatras de atención primaria del Principado de Asturias, España

Abstract

Introducción: Es importante conocer y evaluar la experiencia y el conocimiento de los pediatras de atención primaria del Principado de Asturias (España) sobre los cuidados paliativos pediátricos. Métodos: Se llevó a cabo un estudio descriptivo y transversal mediante un cuestionario dirigido a los pediatras de atención primaria del Principado de Asturias entre mayo y junio de 2018. Resultados: El 77% de los participantes no poseía formación previa y el 100% consideró que sus conocimientos en cuanto al tema no eran adecuados, a pesar de que el 37% había atendido en alguna ocasión a pacientes subsidiarios de este tipo de cuidados. Casi la totalidad de los encuestados (97%) consideraron necesaria la creación de una unidad de cuidados paliativos pediátricos. Conclusiones: El conocimiento del pediatra de atención primaria del Principado de Asturias con respecto a los cuidados paliativos pediátricos es muy escaso en una región en la que no se dispone de una unidad pediátrica exclusiva. Sería interesante aprovechar la gran disposición de este grupo de profesionales para mejorar su formación, además de incorporar la materia en facultades y en la formación del médico interno residente.

Knowledge about Palliative Care and Attitudes toward Care of the Dying among Primary Care Nurses in Spain

“…Thus, PC is considered an integral part of the health care system and an inalienable element of the rights of citizens; this care must be guided by the needs of the patient and their family, taking into account their values, preferences, dignity, and autonomy [ 8 ]. According to the WHO, PC must rely on adequate health policies, the availability and knowledge in the management of opioids, the adequate training of health workers, and the implementation of palliative care services at all levels [ 9 , 10 ]. These aspects have been addressed in Spain when preparing recommendations for the basic training of professionals and the development of specific programs and clinical practice guides that enable intervention at all levels of care, favoring a critical evolution in the programs in the last few decades of PC [ 2 , 8 , 11 , 12 , 13 , 14 ].…”

Quality of Care in Pediatric Palliative Care: A Scoping Review

“…Most studies point to a lack of professional training [20,23,[27][28][29][30][31]33,38,[41][42][43]45]. Among the training topics that professionals consider necessary to implement PPC are the use of opioids and pain management [27], the limitation of therapeutic effort (LTE) [41], emotional management [21,26,29,43], the improvement of communication [23,29,31,43,47], and the improvement of the treatment given to families and patients [23,27,47].…”

“…Most studies point to a lack of professional training [20,23,[27][28][29][30][31]33,38,[41][42][43]45]. Among the training topics that professionals consider necessary to implement PPC are the use of opioids and pain management [27], the limitation of therapeutic effort (LTE) [41], emotional management [21,26,29,43], the improvement of communication [23,29,31,43,47], and the improvement of the treatment given to families and patients [23,27,47]. Families, for their part, indicate that professionals would need training on LTE [38] and emotional management [26,38,40], as well as training to improve communication [23,47], and to improve the treatment given to families and patients [23,38,47].…”

“…Lastly, 23 studies integrate variables related to patient care at the end of life [20,[23][24][25]27,[29][30][31][33][34][35][36][37][38][39][40]43,[46][47][48][49][50]54].…”

Measuring Knowledge of Healthcare Providers on Pediatric Palliative Care with an Online Questionnaire Based on the National Core Curriculum in Italy

“…In Italy, et al estimate that 34–54 children per 100,000 inhabitants (of any age) require PPC, of which 18 require specialized PPC [ 4 ]. However, there is a lack of knowledge among healthcare workers about palliative care and training is often not appropriate, even in high income countries [ 5 , 6 , 7 , 8 , 9 , 10 ]. To ensure appropriate and high-quality care for patients and families, specific education and training must be provided to all professionals involved in healthcare sectors in all settings [ 11 ].…”