Connecting Youth and Young Adults With Autism Spectrum Disorders to Community Life

Carter, Erik W.; Harvey, Michelle N.; Taylor, Julie Lounds; Gotham, Katherine

doi:10.1002/pits.21716

Cited by 36 publications

(27 citation statements)

References 42 publications

(40 reference statements)

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“…Similarly, we did not measure desired levels of community participation, which may also differ according to individual preference (Carter et al . ; Cummins & Lau ). Future research exploring an individual's subjective experience, in addition to the individual's desired outcome, may provide a more comprehensive understanding of participation among youth and young adults with ASD and ID (Henninger & Taylor ; Ruble & Dalrymple ).…”

Section: Discussionmentioning

confidence: 99%

Community participation of youth with intellectual disability and autism spectrum disorder

Tint

Maughan

Weiss

2016

J intellect Disabil Res

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Section: Discussionmentioning

confidence: 99%

Community participation of youth with intellectual disability and autism spectrum disorder

Tint

Maughan

Weiss

2016

J intellect Disabil Res

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“…Simultaneously, our results regarding “objective” QoL highlight the importance of establishing an individualized context where autistic adults feel they can contribute to society. Earlier research has pointed in a similar direction: creating a professional context focusing on strengths and interests of autistic individuals boosts self‐esteem and social engagement [Diener et al, ; Carter et al, ], which, in turn, might help individuals to reach their full potential in meaningful work.…”

Section: Discussionmentioning

confidence: 99%

Sleep determines quality of life in autistic adults: A longitudinal study

et al. 2019

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Many individuals with autism report generally low quality of life (QoL). Identifying predictors for pathways underlying this outcome is an urgent priority. We aim to examine multivariate patterns that predict later subjective and objective QoL in autistic individuals. Autistic characteristics, comorbid complaints, aspects of daily functioning, and demographics were assessed online in a 2‐year longitudinal study with 598 autistic adults. Regression trees were fitted to baseline data to identify factors that could predict QoL at follow‐up. We found that sleep problems are an important predictor of later subjective QoL, while the subjective experience of a person's societal contribution is important when it comes to predicting the level of daily activities. Sleep problems are the most important predictor of QoL in autistic adults and may offer an important treatment target for improving QoL. Our results additionally suggest that social satisfaction can buffer this association. Autism Research 2019, 12: 794–801. © 2019 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary Many individuals with autism report generally low quality of life (QoL). In this study, we looked at factors that predict long‐term QoL and found that sleep problems are highly influential. Our results additionally suggest that social satisfaction can buffer this influence. These findings suggest that sleep and social satisfaction could be monitored to increase QoL in autistic adults.

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“…In this vein, it is important to carry out studies with adolescents and adults with ASD. Besides, recently, Carter, Harvey, Taylor & Gotham (2013) are highlighting the promotion of a successful transition to community participation from educative con-anales de psicología, 2015, vol. 31, nº 1 (enero) texts.…”

Section: Discussionmentioning

confidence: 99%

Supporting people with Autism Spectrum Dis. in leisure time: Impact of an Univ. Vol. Program, and rel. factors. [Apoyos en ocio para personas con Trastorno de Espectro Autista: Impacto de un programa de voluntariado universitario y factores relacionados]

et al. 2015

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Título: Apoyos en ocio para personas con Trastorno de Espectro Autista: Impacto de un Programa de Voluntariado y factores relacionados. Resumen: La participación social tiene efectos positivos en salud mental y física, y puede tomarse como un indicador de calidad de vida. Sin embargo, la participación de personas con discapacidad en su comunidad es aún escasa, especialmente para las personas con autismo. En este trabajo evaluamos el grado de satisfacción con un programa de voluntariado universitario dirigido a personas con autismo para apoyar actividades de ocio y tiempo libre (APUNTATE). Un total de 159 familias de usuarios y 230 voluntarios cumplimentaron un cuestionario de satisfacción que identificó las áreas en las que el programa tenía más impacto. Los resultados mostraron una alta satisfacción general tanto en usuarios como en voluntarios, aunque algunas características personales de los usuarios generaron leves diferencias. Los aspectos más valorados fueron la organización del programa, la formación y tutorización continua que se ofrecía a los voluntarios. Otra característica del programa, ampliamente valorada, fue la capacidad de éste de adaptar los apoyos a las necesidades individuales de usuarios y voluntarios. Este trabajo pone de manifiesto que la universidad pública puede implementar con éxito programas de apoyos para promover la participación social. Estos programas pueden favorecen el desarrollo personal, favorecer el cambio de actitudes hacia las personas con discapacidad y mejorar las perspectivas de empleo de los estudiantes. Palabras clave: Autismo; voluntariado; ocio y tiempo libre; evaluación de programas.Abstract: Social participation has positive effects on mental and physical health, and it can be taken as an indicator of quality of life. However, the participation of people with disabilities in their communities is still scarce, especially for people with autism. The impact on individual satisfaction produced by a university volunteer program (APUNTATE) aimed at supporting people with autism in leisure activities was evaluated. A questionnaire of impact assessment, that identifies those areas where the impact is greater, was completed by 159 families of users and 230 volunteers. Users and volunteers reported a very high level of satisfaction with the program, but personal characteristics of users slightly influenced the scores. The structured organization of the program, and the continued training and support received by volunteers were the highest valued aspects. The adaptation of supports to the individual needs of users and volunteers was another relevant factor to explain the results. The evaluation obtained shows that volunteering programs to promote the participation of people with ASD can be successfully implemented in public universities. These programs can increase the personal development, facilitate a change of attitude towards people with disabilities and can improve future employment prospects of students.

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Connecting Youth and Young Adults With Autism Spectrum Disorders to Community Life

Cited by 36 publications

References 42 publications

Community participation of youth with intellectual disability and autism spectrum disorder

Community participation of youth with intellectual disability and autism spectrum disorder

Sleep determines quality of life in autistic adults: A longitudinal study

Supporting people with Autism Spectrum Dis. in leisure time: Impact of an Univ. Vol. Program, and rel. factors. [Apoyos en ocio para personas con Trastorno de Espectro Autista: Impacto de un programa de voluntariado universitario y factores relacionados]

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