Community participation of youth with intellectual disability and autism spectrum disorder

Tint, Ami; Maughan, Andrea; Weiss, Jonathan A.

doi:10.1111/jir.12311

Cited by 46 publications

(35 citation statements)

References 69 publications

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“…Three studies showed a mixed relationship between PA and SF, such as Obrusnikova and Cavalier (2011), who found that PA was associated with social advantages (e.g., opportunity to gain social skills) and disadvantages (e.g., bullying) in youth (M age = 10.64 years) with ASD (↑PA∞ ↓↑ SF). Similarly, it was highlighted by Tint et al (2017) that social demands were both a barrier to and facilitator of PA for youth (M age = 16.63 years) with ASD and intellectual disability (↑SF ∞ ↑↓ PA). Taken together, these 14 studies demonstrated the importance of considering both PA and SF for people with ASD, as some social factors were positively associated with PA and others were negatively associated.…”

Section: Resultsmentioning

confidence: 80%

Scoping Review: Physical Activity and Social Functioning in Young People With Autism Spectrum Disorder

et al. 2019

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Autism Spectrum Disorder (ASD) affects ~1 in 59 people in North America and diagnoses continue to rise (Center for Disease Control and Prevention, 2018 ). Unfortunately, the exact cause of ASD is unknown and therapy remains the primary means of intervention. People with ASD experience social and behavioral deficits associated with the disorder, which affect all aspects of life such as academics, relationships, and physical activity. Research has shown a relationship between physical activity and social skills in typically developing individuals; however, this relationship is less understood in people with ASD. The purpose of this scoping review was to uncover what is known about ASD, physical activity, and social functioning. The authors searched four databases and included 40 primary research articles in the review, most of which demonstrated a relationship between physical activity and social functioning for people with ASD. The relationship appears bidirectional: social functioning influences physical activity (to a lesser extent) and physical activity influences social functioning (to a greater extent). Regrettably, there were many limitations in these articles, such as small sample sizes and the under-representation of females and adults. Therefore, the review highlights several directions for future research.

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Section: Resultsmentioning

confidence: 80%

Scoping Review: Physical Activity and Social Functioning in Young People With Autism Spectrum Disorder

et al. 2019

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“…This is not particularly surprising given that there are limited costs to enrolment in SO, which is a not‐for‐profit largely implemented by volunteers, and thus finances would not pose a considerable challenge to register. The presence of enabling factors beyond finance suggests that even within this context, programmes should pay attention to potential barriers, including those that may be present in social settings, in the environment, in transportation, in scheduling or in activity demands (Anaby et al ., 2013; Tint, Maughan, & Weiss, 2017).…”

Section: Discussionmentioning

confidence: 99%

Individual and contextual predictors of retention in Special Olympics for youth with intellectual disability: who stays involved?

Weiss

Robinson

Harlow

et al. 2020

J intellect Disabil Res

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Background Despite the recognised benefits of sport, participation is often reported to be low for youth with intellectual disability (ID). The current study was the first to longitudinally examine sport retention in this population, a critical aspect of ensuring participation. Methods Study participants were parents/caregivers of athletes with ID involved in community Special Olympics (SO), 11–22 years of age (N = 345). Participants completed an online survey in 2012 that included caregiver demographic and athlete intrapersonal, interpersonal and broader contextual variables. Retention rates for 2019 were determined using the SO provincial registration lists. Results Of the 345 survey participants, 81.7% remained active athletes in 2019. Caregiver demographic and athlete intrapersonal factors were largely unrelated to retention. In contrast, retention was associated with the frequency and number of sports athletes participated in, the perceived psychosocial gains of SO involvement and the environmental supports that were available to facilitate participation; frequency of sport participation was the strongest predictor of remaining a registered athlete. Conclusions This study has implications for future initiatives aimed at increasing sport retention in a population that struggles to be engaged in sport. Efforts should focus on the athlete experience and sport‐specific factors. Coaches and caregivers can foster positive experiences and play an important role in continued sport participation.

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“…Informed by results of qualitative interviews with parents [19], the PEM-CY was tested primarily with 576 parents of children with and without disability from Canada and the USA [18] and was found to have moderate to good reliability and validity. The PEM-CY has been used to measure participation of children with specific diagnoses, such as unilateral cerebral palsy [20] and autism spectrum disorder [21], to compare participation of children with different disabilities [22] and between different settings such as home, school and community [23]. The PEM-CY has been translated and culturally adapted into a number of languages, including Korean [16], Chinese [24], Icelandic [21], Hindi (Roopa Srinivasan, personal communication), Dutch (Eftje Kern, personal communication), and Flemish (Mareike Coussens, personal communications).…”

Section: Introductionmentioning

confidence: 99%

Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

et al. 2020

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Background Concepts such as participation and environment may differ across cultures. Consequently, to use a measure like the Participation and Environment Measure for Children and Youth (PEM-CY) in other than the original English-speaking contexts, cultural adaptation needs to be assured. The aim of this study was to cross-culturally translate and adapt the PEM-CY into German as it is used in Germany, Austria and Switzerland. Methods Fifteen parents of children and adolescents with disabilities from three German speaking countries participated in three rounds of think-aloud interviews. We followed the procedure of cultural equivalence guidelines including two additional steps. Data was analyzed by content analysis using semantic, idiomatic, experiential and conceptual equivalence. Results Results show adaptations mainly focused on experiential and conceptual equivalence, with conceptual equivalence being the most challenging to reach. Examples of experiential equivalence included adapting the examples of activities in the PEM-CY to reflect those typical in German speaking countries. Conceptual equivalence mainly addressed aspects of “involvement” and “environment” of children and adolescents and was reached through adaptations such as enhanced instructions and structures, and additional definitions. Conclusions This study presents a cross-cultural translation and adaptation process to develop a German version of the PEM-CY that is suitable for Germany, Austria and Switzerland. Using a modified cultural adaptation process, a culturally adapted version of PEM-CY (German) is now available for research, practice and further validation.

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Community participation of youth with intellectual disability and autism spectrum disorder

Abstract: The current study highlights individual and environmental factors amenable to intervention that may foster successful community participation among youth with ASD and ID.

Cited by 46 publications

References 69 publications

Scoping Review: Physical Activity and Social Functioning in Young People With Autism Spectrum Disorder

Scoping Review: Physical Activity and Social Functioning in Young People With Autism Spectrum Disorder

Individual and contextual predictors of retention in Special Olympics for youth with intellectual disability: who stays involved?

Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

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