Congenital cardiovascular nursing: Preparing for the next decade

Moons, Philip; Hilderson, Deborah; Deyk, Kristien Van

doi:10.1017/s1047951109991703

Cited by 11 publications

(8 citation statements)

References 39 publications

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“…30 This is substantially less than percentages reported for other countries. 32 Our previous study can serve as a basis for future follow-up studies endeavoring to elaborate on the impact of loss to follow-up on patient outcomes.…”

Section: Moons Et Al Survival In Congenital Heart Disease 2269mentioning

confidence: 99%

Temporal Trends in Survival to Adulthood Among Patients Born With Congenital Heart Disease From 1970 to 1992 in Belgium

et al. 2010

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Background-Over the past decades, the life expectancy of individuals with congenital heart disease (CHD) has increased significantly. However, precise estimates for survival to adulthood are scarce for patients with CHD. We investigated the proportion of CHD patients born between 1990 and 1992 who survived into adulthood. We also compared their survival with that of CHD patients born in earlier eras and evaluated survival as a function of the type of heart defect.

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Section: Moons Et Al Survival In Congenital Heart Disease 2269mentioning

confidence: 99%

Temporal Trends in Survival to Adulthood Among Patients Born With Congenital Heart Disease From 1970 to 1992 in Belgium

et al. 2010

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“…1,8,15 -17 Furthermore, centres are improving their structure in order to provide optimal care. 10 Indeed, the role that nurses play in ACHD patient care is expanding; 18,19 nurses are performing interventions that contribute to better follow-up and fewer complications. 20 Furthermore, they play an essential role in the implementation of transition programmes, which prepare adolescents with congenital heart disease for the transfer to adult-focused care.…”

Section: Comparison With the Literaturementioning

confidence: 99%

Structure and activities of adult congenital heart disease programmes in Europe

Moons¹,

Meijboom

Baumgartner³

et al. 2009

European Heart Journal

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“…18,19 The questionnaire was subsequently verified through a literature review. 7,15,16,20,21 This questionnaire was aimed at exploring the healthcare needs of adolescents and young adults with CHD, including eight dimensions with 64 needs: health (23 needs) entailed assembling individualized disease information; family (3 needs) entailed promoting the dynamic balance within patients' families; individual (10 needs) entailed maintaining individual self-confidence and abilities; social interaction (6 needs) entailed fostering a friendly and empathetic environment; employment (1 need) entailed providing employment recommendations and assistance; economics (1 need) entailed assessing burden and providing usable resources; spiritual (2 needs) entailed satisfying needs for spiritual well-being; and policy (18 needs) entailed improving social welfare policies. The scores ranged from 1 to 7: a high score indicated that a need was crucial, whereas a low score indicated a need of low importance.…”

Section: Methodsmentioning

confidence: 99%

“…12,13 An integrative transition program may assist CHD patients to improve their self-management knowledge, establish lifelong health-related behaviors, preclude the possibility of loss to follow-up, prevent any inappropriate use of medical resources, integrate schooling and a career into their lives, and also improve their psychological health and quality of life. 8,[13][14][15] Although several studies on CHD transitional care have been conducted, 7,13,16 most of these studies have been based on literature reviews, in addition to lacking a common consensus from the perspectives of patients, parents, and healthcare providers.…”

Section: Introductionmentioning

confidence: 99%

Healthcare needs of adolescents with congenital heart disease transitioning into adulthood: a Delphi survey of patients, parents, and healthcare providers

Chen

Chiang

et al. 2016

European Journal of Cardiovascular Nursing

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Background: The increasing survival of children with congenital heart disease (CHD) challenges healthcare systems regarding how to manage the many health needs of patients undergoing transitional care. A comprehensive understanding of the perspectives of patients, parents, and healthcare providers is required. Objective: This study systematically identified the healthcare needs of adolescents with CHD transitioning into young adults by collecting the perspectives of patients, parents, and healthcare providers. Methods: A sample of CHD patients (n = 29), parents of children with CHD (n = 29), and healthcare providers (n = 16) completed the two-round Delphi study, and 64 healthcare needs were identified. The central tendency and the level of dispersion were computed in order to establish a consensus. Results: A consensus was reached on 25 healthcare needs including health, family, individual, interpersonal interaction, and policy dimensions, which were classified as important with a moderate to high level of agreement by all three groups. The three groups were strongly agreed that "encouraging the patient to learn health self-management" and "cultivating a positive attitude toward the illness" were very important. The opinions of the three groups differed significantly on 12 needs (p < 0.05) related to health, family, and policy dimensions. Conclusion: A consensus was reached on the needs that were identified as being potentially valid measures of the healthcare needs of adolescents with CHD transitioning into young adults. The identified needs can serve as the basis for establishing a transitional health passport and developing a clinical intervention for adolescents with CHD transitioning into young adults.

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Congenital cardiovascular nursing: Preparing for the next decade

Cited by 11 publications

References 39 publications

Temporal Trends in Survival to Adulthood Among Patients Born With Congenital Heart Disease From 1970 to 1992 in Belgium

Temporal Trends in Survival to Adulthood Among Patients Born With Congenital Heart Disease From 1970 to 1992 in Belgium

Structure and activities of adult congenital heart disease programmes in Europe

Healthcare needs of adolescents with congenital heart disease transitioning into adulthood: a Delphi survey of patients, parents, and healthcare providers

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