Structure and activities of adult congenital heart disease programmes in Europe

Moons, Philip; Meijboom, Folkert J.; Baumgartner, Helmut; Trindade, Pedro T.; Huyghe, É.; Kaemmerer, Harald

doi:10.1093/eurheartj/ehp551

Cited by 74 publications

(53 citation statements)

References 20 publications

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“…Extrapolating recently published data [16], the estimated number of adults with congenital heart disease in the Ribeirão Preto city is 1920 patients. In our recently published outpatient data [17] only 23% of 413 patients lived in the city, showing that the great majority of them were not followed in a specialized unity, a finding already reported [18].…”

Section: Discussionmentioning

confidence: 79%

Adult congenital heart disease: experience with the surgical approach

Amaral

Rodrigues

Manso

et al. 2013

Revista Brasileira De Cirurgia Cardiovascular

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Objective: To report the institution experience with the surgical treatment of adults with congenital heart disease due to the increasing number of these patients and the need for a better discussion of the subject.Methods: Retrospective analysis describing demographic data, risk factors and results.Results: 191 patients between 16 and 74 years old were operated on. Primary correction was done in 171 cases, 93 (55%) for atrial septal defect repair. Among 20 (12%) reoperations, pulmonary valve replacement was done in six cases. The mean intensive care and hospital stay were 2.7 and 8.5 days respectively, significantly greater for the reoperated cases (P=0.001). The mean bypass and clamping times were 68.6 and 44.7 minutes respectively, greater for the reoperated cases (P<0.0001 and P=0.0003 respectively). Hospital mortality was 4.2% and male sex, functional class III-IV and older age at operation were predictive risk factors. Significant complications were more frequent in the reoperated cases (P<0.003), mainly atrial flutter and fibrillation. Among 183 patients discharged, 149 (82%) are being followed and atrial flutter and fibrillation are common. The mean functional class value improved significantly after operation (1.66 to 1.11; P<0.0001). The estimated survival was 96.2% in six years. Conclusion:Heart surgery in adults with congenital heart disease can be accomplished with low mortality and functional class improvement. Immediate and late complications are frequent. Multicenter studies are important to better characterize this patient population in the country.Descriptors: Heart defects, congenital. Adult. Cardiac surgical procedures.Resumo Objetivo: Relatar a experiência da instituição com o tratamento cirúrgico de adultos com cardiopatia congênita devido ao crescente aumento no número desses pacientes e consequentes necessidades de maior discussão do tema.Métodos: Análise retrospectiva dos pacientes operados, com análise de dados demográficos, fatores de risco e resultados.Resultados: Cento e noventa e um pacientes, com idade entre 16 e 74 anos, foram operados. Cirurgia primária foi realizada em 171 pacientes, 93 (55%) com comunicação interatrial. Dentre 20 (12%) reoperações, substituição de valva pulmonar ocorreu em seis casos. Os tempos médios de unidade de terapia intensiva e hospitalar foram 2,7 e 8,5 dias, respectivamente, maiores nas reoperações (P=0,001). Os tempos médios de cir- 372Rev Bras Cir Cardiovasc | Braz J Cardiovasc Surg Rev Bras Cir Cardiovasc 2013;28(3):371-9Amaral FTV, et al. -Adult congenital heart disease: experience with the surgical approach city area (n=40, 20%) or in the region (n=133, 70%) while 17 (10%) were referred from other states. An Excel data base was created containing general information of the patients, possible preoperative risk factors such as diabetes, cyanosis, smoking, systemic hypertension, obesity and chronic lung disease, detailed information regarding the surgical procedure, hospital complications and follow up information.The preoperative data collec...

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Section: Discussionmentioning

confidence: 79%

Adult congenital heart disease: experience with the surgical approach

Amaral

Rodrigues

Manso

et al. 2013

Revista Brasileira De Cirurgia Cardiovascular

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“…These patients are by and large not cured and most require specialized life-long follow-up [4]. The rising importance of the ACHD field is reflected not only by the increasing number of tertiary centers in Europe, North America and the rest of the world [5,6], but also by the establishment and endorsement of ACHD training curricula by national and international cardiology societies [7]. Furthermore, this relatively young branch of cardiology requires constant research efforts to keep pace with the aging and evolving patient population, to improve our knowledge and ultimately to enable ACHD patients to achieve their full life potential.…”

Section: Introductionmentioning

confidence: 99%

The importance of national and international collaboration in adult congenital heart disease: A network analysis of research output

Orwat

Kempny

Bauer

et al. 2015

International Journal of Cardiology

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“…We surveyed a wide range of facilities throughout the nation as candidates for potential regional ACHD centers, and the response rate was higher than in 2 previous studies. 18, 25 Hence, we believe that the results of the current study are representative of ACHD care in adult cardiology departments in Japan and that they cover most of the facilities with the potential to become regional ACHD centers.…”

Section: Discussionmentioning

confidence: 85%

“…Because the purpose of this study was to assess the potential of each facility to provide multidisciplinary care as a regional ACHD center, we did not include the presence of an ACHD cardiologist in our definition (although it was included in the definition established by previous studies). 18, 25 Instead, we considered the presence of either an adult cardiologist planning to treat all ACHD patients or a pediatric cardiologist as a candidate future ACHD cardiologist. Another difference between the criteria adopted in this study and those in our previous study is that we substituted the criterion of either the presence of an ACHD-specialized outpatient clinic or a plan to have one in the near future for the number of annual ACHD outpatient visits.…”

Section: Definition Of Facilities With the Potential To Become Regionmentioning

confidence: 99%