Conflicting agendas between consumers and carers: The perspectives of carers and nurses

Goodwin, Val; Happell, Brenda

doi:10.1111/j.1447-0349.2006.00413.x

Cited by 56 publications

(67 citation statements)

References 27 publications

(38 reference statements)

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“…It was interesting to note that the information sought by carers differed from that sought by consumers; this was generally not acknowledged or acted upon by nurses. A similar finding regarding the different needs and issues for consumers and carers was identified by Goodwin and Happell (2006).…”

Section: Discussionsupporting

confidence: 78%

Consumer and Carer Participation in Mental Health Care: The Carer's Perspective: Part 2—barriers to Effective and Genuine Participation

Goodwin

Happell

2007

Issues in Mental Health Nursing

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Family members and significant others provide significant proportions of unpaid care for people experiencing a mental illness. Although the carer role is pivotal to contemporary mental health service delivery, the role of carers and the issues they face have received only scant attention in the literature. This paper presents the second part of the findings of an exploratory, qualitative inquiry, which sought greater understanding of carers' experiences of, and attitudes to opportunities for participation in care and treatment at an individual or systemic level, with particular emphasis on the role of psychiatric nurses in encouraging or discouraging participation. This paper explores the theme of systemic barriers to participation. These findings demonstrate the variable experiences of carers in their opportunities to participate and the important role nurses can assume in supporting carers' increased participation in the mental health care for their relative or significant other.

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Section: Discussionsupporting

confidence: 78%

Consumer and Carer Participation in Mental Health Care: The Carer's Perspective: Part 2—barriers to Effective and Genuine Participation

Goodwin

Happell

2007

Issues in Mental Health Nursing

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“…Even when knowledge of the availability of health care services is present, the attitudes of social groups and clinicians, and communication barriers between clients and health care practitioners can mitigate against effective utilisation of services (Goodwin and Happell 2006;Kennedy et al 2004;Kerkorian et al 2006). The stigma associated with substance abuse is much greater for women than for men, especially if they are pregnant or have young children (Cowan et al 2003;Goldberg 1995;Grant 1997;Green et al 2002;Jessup et al 2003).…”

Section: Acceptability and Appropriatenessmentioning

confidence: 95%

Intrinsic and Extrinsic Barriers to Health Care: Implications for Problem Gambling

Clarke

2007

Int J Ment Health Addiction

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To establish guidelines for research into help for problem gambling, this paper reviews literature on barriers to access and utilisation of health care for alcohol abuse, substance abuse and mental health problems. Research findings from international and New Zealand studies are examined, highlighting gender differences and cultural aspects. Intrinsic factors are presented within the transtheoretical model of change (TTM). Extrinsic barriers consist of predisposing, enabling and need factors, according to the socio-behavioral model (SBM). The dynamic interaction between intrinsic and extrinsic factors is explained by the network-episode model (NEM) which emphasises the importance of social networks and events. Personal, socio-cultural and institutional reasons for delays in seeking help are presented. The greatest barriers to seeking health care are intrinsic. Specific research questions regarding the implications for barriers to help for problem gamblers and their families are proposed. In conclusion, the SBM and the NEM seem to explain barriers to health care access and utilisation for addictive disorders and mental health problems better than the TTM. Barriers to health care access and utilisation for substance abuse and mental health problems may have some relevance to similar barriers for problem gamblers and their families.

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“…Many published papers discuss the challenges associated with professional / carer relationships and which impact upon the extent to which carers are involved in practice. The theme of 'conflicting agendas' has been used, for example, in relation to the communication observed between informal caregivers and mental health staff in Australia [18,19]. Carers in their study discussed limited opportunities for them to participate in planning support for the person that they supported.…”

Section: Discussionmentioning

confidence: 99%

Carer-centred care: general practice support to family caregivers

Pyer

Campbell

Ward

2014

EJPCH

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Rationale, aims and objectives: In February 2009, the UK's Department of Health invited bids for funding to host demonstrator sites in order to test new approaches to working with and for carers within the National Carers' Strategy [1,2]. This paper discusses some of the findings of the local level evaluation of one of the host sites, situated in Northamptonshire, England, UK. Methods: A mixed-method approach was used to gather data from a range of participant groups. This paper presents the findings of 2 of those methods; a postal survey of carers and an audit of support offered by general practices. Results:The findings of the evaluation show a considerable improvement in the extent to which carers' roles were identified by their surgeries. However, there is a need to ensure that this information is recorded and used in ways which benefit carers. Carers noted challenges in dealing with practice staff, particularly administrative staff who were not aware of their needs. Practices noted a range of services which were offered to carers; however, carers were not always aware that these were available, suggesting that further publication of these opportunities is needed. Conclusions: The paper argues the importance of the role undertaken by carers and signals the range of ways in which primary care can support or inhibit these activities.

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Conflicting agendas between consumers and carers: The perspectives of carers and nurses

Cited by 56 publications

References 27 publications

Consumer and Carer Participation in Mental Health Care: The Carer's Perspective: Part 2—barriers to Effective and Genuine Participation

Consumer and Carer Participation in Mental Health Care: The Carer's Perspective: Part 2—barriers to Effective and Genuine Participation

Intrinsic and Extrinsic Barriers to Health Care: Implications for Problem Gambling

Carer-centred care: general practice support to family caregivers

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