Concept Analysis of Health Care Transition in Adolescents with Chronic Conditions

Ladores, Sigrid

doi:10.1016/j.pedn.2015.06.003

Cited by 19 publications

(6 citation statements)

References 51 publications

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“…It is a time when the adolescent with CF encounters more difficulties in incorporating the chronic illness into daily life, while trying to become independent and needing to feel in control of their disease. [6,7] It is a time when compliance can become a problem and when the whole family needs extra support. [8] As with many chronic illnesses, the severity of CF progresses from mild to moderate to severe as time passes.…”

Section: Top Health Concernsmentioning

confidence: 99%

“…[6] It is defined as a "potentially stressful and emotional process in which flexibility, and negotiation between the patient, parents, pediatric health care providers and adult health care providers are necessary in order to facilitate achievement of autonomous health-related decision-making and self-care within the adult health care setting". [6] The transition period is a time of vulnerability for adolescents with CF because of the impending change in care providers while they face the challenge of taking responsibility for their own health care decisions. [4,5] Navigating the complex health care system can be overwhelming to the adolescent, and can lead to non-adherence in their medical regimens.…”

Section: Transition To Adult Health Carementioning

confidence: 99%

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A day in the life of an adolescent female with cystic fibrosis and the role of the advanced practice nurse: A case study

Ladores

Bray

2016

JNEP

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Cystic fibrosis (CF) is no longer considered a disease of childhood as life expectancy is continuously increasing. It is still a chronic life-limiting disease that presents unique physiological and psychological challenges to the adolescent who has it. Adolescence is a period of turbulence for teens with CF who face the primary issues of pulmonary exacerbations, complex medication and nutritional regimens, altered growth and development, and transition to adult health care. A pseudo-case study of a young adolescent girl with CF is presented to provide insight into the daily struggles that adolescents with CF undertake. The roles of the advanced practice nurse (APN) as clinician, case manager, and educator are highlighted in the provision of age-appropriate care.

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Section: Top Health Concernsmentioning

confidence: 99%

Section: Transition To Adult Health Carementioning

confidence: 99%

A day in the life of an adolescent female with cystic fibrosis and the role of the advanced practice nurse: A case study

Ladores

Bray

2016

JNEP

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“…Transition of care is very different from transfer of care. Synonyms for transition include “change,” “development,” and “evolution.” Transition is a process that requires careful planning and ultimately results in the transfer of care . Adult providers are learning more about POCC such as type 1 diabetes, cystic fibrosis, congenital heart defects, specific childhood cancers, solid organ transplants, sickle cell disease, spina bifida, and inflammatory bowel disease (IBD) so they can adequately care for adults with these conditions .…”

Section: Introductionmentioning

confidence: 99%

Graduation Day: Healthcare Transition From Pediatric to Adult

et al. 2018

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Because more patients with pediatric-onset chronic conditions are surviving into adulthood, they are graduating from pediatric healthcare to self-management and adult healthcare. This transfer of care needs to be a process of transitioning medical and nutrition care. Despite having position statements from professional organizations and several proposed models, issues in the transition process have been well described, and gaps in transition care persist. Healthcare providers need to be aware of special needs of emerging adults related to education on chronic condition and self-management skills, emotional support before and after transition, and legal rights for both the patient and the parent if the emerging adult is not developmentally appropriate to make his or her own healthcare decisions. Both pediatric and adult providers need to be in active communication with each other and the patient to develop trusting relationships and actively support the transition of care. This review of literature describes several models for transitioning, measureable outcomes, insurance provider issues, and legal issues pertaining to healthcare transition.

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“…The concept of transition includes a gradual, purposeful process of empowerment that equips young people with the skills necessary to manage their own health (Blum et al, 1993). Ladores (2015: 126), as a result of a concept analysis, offers the following definition of transition:a potentially stressful and emotional process in which flexibility and negotiation between the patient, parents, paediatric healthcare providers, and adult healthcare providers are necessary in order to facilitate achievement of autonomous health-related decision-making and self-care within the adult healthcare setting.…”

Section: Introductionmentioning

confidence: 99%

Gathering expert opinion to inform benchmarks to support transitional care

Aldiss

Rose

McCutcheon

et al. 2018

J Child Health Care

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This study aimed to (1) explore views of known experts leading on transition, (2) gather insights on the essential features of transitional care models and (3) highlight opportunities for and barriers to change: to inform core elements of benchmarks for transitional care. We held three workshops ( n = 20) and used a telephone interview ( n = 1) with health and social care professionals with expertise working with young people with a range of health conditions and disabilities. The workshops included individual brainstorming and group discussion. Data were analysed using qualitative content analysis. The general consensus from stakeholders' discussions about transition was that 'things have become stuck'. Themes included: professionals' attitudes towards and knowledge about young people and transition, organizational barriers and 'lack of joined-up thinking' between services. Our work offers further insight into experts' perceptions of transition services within the United Kingdom. It is clear that there is still much to be done to improve transition, to better meet the needs of young people and parents and begin to offer equitable access to transitional care programmes. The benchmarks offer a starting point for professionals seeking to improve transition through enabling the identification of gaps in services and providing a platform to share successful practice initiatives.

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Concept Analysis of Health Care Transition in Adolescents with Chronic Conditions

Cited by 19 publications

References 51 publications

A day in the life of an adolescent female with cystic fibrosis and the role of the advanced practice nurse: A case study

A day in the life of an adolescent female with cystic fibrosis and the role of the advanced practice nurse: A case study

Graduation Day: Healthcare Transition From Pediatric to Adult

Gathering expert opinion to inform benchmarks to support transitional care

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