Comprehensive grief care for children and families: Policy and practice implications.

Griese, Brook; Burns, Michaeleen; Farro, Samantha; Silvern, Louise; Talmi, Ayelet

doi:10.1037/ort0000265

Cited by 20 publications

(60 citation statements)

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“…The UK palliative care service is acknowledged as one of the most comprehensive, along with services in Australia, Belgium, France, Germany, Ireland, the Netherlands, New Zealand, Singapore and Spain 18. However, there are still relatively few well-developed national palliative care strategies: continued evidence across countries indicates that bereavement support in palliative care services is typically generic and that the individual needs of affected families, especially children, are not being met 18–20…”

Section: Introductionmentioning

confidence: 99%

The dying parent and dependent children: a nationwide survey of hospice and community palliative care support services

Cockle-Hearne

Reed

Todd

et al. 2020

BMJ Support Palliat Care

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background Annually, across the world a substantial number of dependent children experience the death of a parent through lifelimiting illness. Without support, this has longterm implications for children's emotional, social and physical well-being, impacting on health and social care services globally. Limited information exists on how service providers are meeting family needs when a parent with dependent children is dying. Aim To determine the bereavement support provided to families with dependent children by UK hospices before and after a parent's death. Design A 23-item, cross-sectional, web-based survey of adult UK hospices. Closed and openended questions were asked about the features of support provided; open-ended response was sought to a question about the challenges faced by hospices in delivering support. Descriptive and non-parametric statistics and framework analysis were used to analyse the data. results 197 hospices were invited to participate. Response rate was 66% (130/197). More types of support were provided after, than before, parental death (mean 6.36/5.64, z=−5.767, p<0001). Twenty-two per cent of hospices reported no formal processes for asking or documenting the presence of dependent children. Volunteers were an underused resource before parental death. Four themes characterised challenges in delivering support for families: emotional difficulties for families; practical and social difficulties for families; funding/resources; and staff training/numbers. conclusions Family needs are not consistently being met when a parent is dying. Areas for development include: enhanced systems to record when patients have dependent children; flexible approaches to support vulnerable families; staff training to help communication with families and management of their own fears of making the situation worse. Effective educational interventions and service developments to better support staff, parents and children are needed.on July 10, 2020 by guest. Protected by copyright.

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Section: Introductionmentioning

confidence: 99%

The dying parent and dependent children: a nationwide survey of hospice and community palliative care support services

Cockle-Hearne

Reed

Todd

et al. 2020

BMJ Support Palliat Care

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“…Most were married and many had young children -some of them had their eldest child just as old as 6 years and youngest merely 1 year, indicating increased psychological and social needs. Parenthood is one of the major concerns when diagnosed with an advanced illness [56], however, the needs speci c to dying patients and their dependent children are not well met even in the developed countries with comprehensive PC [57][58][59].…”

Section: Discussionmentioning

confidence: 99%

Palliative Care Needs among Patients with Advanced Illnesses in Bhutan

Laabar

Saunders

Auret

et al. 2020

Preprint

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Background Palliative care improves the quality of lives of patients and families affected by life-limiting illnesses through the prevention and relief of suffering. While palliative care is well established in developed countries, it is inadequate or non-existent in most developing countries. Palliative care is an emerging concept in Bhutan, a tiny Himalayan Kingdom. A small community palliative care service is available in the national referral hospital with three dedicated inpatient palliative care beds. This study explored the needs for palliative care among patients diagnosed with advanced illnesses and is a component of a larger project aimed to inform a suitable palliative care model for the country.Methods This is a cross-sectional descriptive study. A survey, using a structured questionnaire including the EORTC QLQ-C30, was carried out among patients with advanced illness in hospitals, primary care units and communities across the country. Purposeful and snowball sampling strategies were used to recruit study participants.Results Seventy (76%), out of 93 eligible patients, agreed to participate in the survey. Participants reported low to moderate scores on physical, role, emotional, cognitive and social functioning, a moderate score for the global health/ quality of life scale and moderately high (worse) scores in symptoms including fatigue, pain, insomnia, loss of appetite and the financial impact from the disease.Conclusions The symptom burden experienced by patients affected by terminal and advanced illnesses demonstrates the need for palliative care in Bhutan. These findings will help inform the development of a public health-focused palliative care model, modified to the Bhutanese context, as recommended by the World Health Organization.

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“…None of the articles included state that a financial contribution is required from families, and seven explicitly state that families attend for free. 19,21,25,35,[37][38][39]…”

Section: Participating Children and Adolescentsmentioning

confidence: 99%

“…Some bereavement services (n = 8, 34%) 25,29,32,35,36,[38][39][40] provided follow-up assessment after intervention. This can be as simple as an informal gathering or social event (n = 3), 25,35,36 an on-going discussion group (n = 2), 38,39 or a formal meeting with a therapist (n = 3). 29,32,40…”

Section: (See Table Of Included Articles In Appendix a Of The Online mentioning

confidence: 99%

Bereavement care interventions for children under the age of 18 following the death of a sibling: a systematic review

Ridley

Frache

2020

Palliat Med

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Background: Childhood bereavement after sibling death is common, but often unrecognized. The psychosomatic and socioeconomic outcomes of bereaved children can be compromised if appropriate care is unavailable during the formative years leading into adulthood. Aim: This review aims to describe the methods, structures and procedures of bereavement care for children and adolescents after the loss of a sibling, and the impact on the families benefiting from these interventions. Design: A systematic review without restriction on study design was conducted. Data sources: Four databases (MEDLINE, PsycINFO, EMBASE, Cochrane Library) were searched for articles published from 2000 to 2019. The search was conducted according to PRISMA guidelines and the protocol is registered on PROSPERO under number CRD42019124675. Articles were assessed against eligibility criteria by both authors, and quality was appraised using CASP checklists and NHMRC grading guidelines. Results: Twenty-three studies met inclusion criteria. Bereavement care was most often accessed by children ages 6–18 who lost a sibling to cancer 6–12 months prior. The interventions were typically group sessions or weekend camps, run predominantly by unpaid staff from a variety of backgrounds. Some staff members received priori specific training. Grief education is taught through mediated discussion and bereavement-centered activities balanced with playful and relaxed activities. Several services have effectuated evaluations of their interventions, and preliminary results show a positive effect for families. Conclusion: Existing literature most likely gives an incomplete picture of appropriate childhood bereavement care, and many interventions possibly remain unpublished or published in other non-scientific sources. An effective response to childhood grief would involve collaboration between medical resources and community services, reinforced through the development of outreach and training programs.

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Comprehensive grief care for children and families: Policy and practice implications.

Cited by 20 publications

References 0 publications

The dying parent and dependent children: a nationwide survey of hospice and community palliative care support services

The dying parent and dependent children: a nationwide survey of hospice and community palliative care support services

Palliative Care Needs among Patients with Advanced Illnesses in Bhutan

Bereavement care interventions for children under the age of 18 following the death of a sibling: a systematic review

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