Comparison of patient- and physician-based descriptions of symptoms of endometriosis: a qualitative study

Abstract

Not applicable.

A self-administered questionnaire to measure the painful symptoms of endometriosis: Results of a modified DELPHI survey of patients and physicians

“…First round questionnaire statements were developed from previous qualitative research [7]: The statements were based on the fully-comprehensive descriptions of painful symptoms obtained by qualitative, interview-based study and analyzed using Colaizzi's method [15], with endometriosis patients selected to represent different types of endometriosis (i.e. superficial endometriosis, ovarian endometriosis, or deeply infiltrating endometriosis [DIE]).…”

“…Although these scales are appropriate for the measurement of the individual pain symptoms [6], they do not take into account the heterogeneity of the painful symptoms of endometriosis. Furthermore, each of the pain symptoms that may relate to endometriosis involves numerous distinct descriptors and there was considerable variability in symptom description and interpretation by patients and by physicians [7].…”

“…In a previous study, by analyzing in-depth interviews with endometriosis patients, we identified numerous verbal descriptors representing the patients' experience [7]. Here, we describe a firststep questionnaire development based on these verbal descriptors to measure the chronic pain symptoms of endometriosis using a PRO's approach.…”

Polymorphisms in VEGF and KDR genes in the development of endometriosis: a systematic review

“…8,21,23,24,26,[31][32][33]36,37 It has been described in the literature that about 11% of the women with endometriosis have no symptoms of the disease. 6,7 In addition, the average time between the onset of the symptoms and the diagnosis of endometriosis is extensively long, ranging between 7 to 12 years. 58 We emphasize that 4 articles were excluded from this review, 22,25,29,30 because they did not use adequate control to evaluate the magnitude of SNPs association to VEGF gene and the development of endometriosis.…”

“…5 Women with endometriosis may be asymptomatic (10.7%), however, most of them present symptoms in different intensities, the main ones are: dysmenorrhoea (52-97%), chronic pelvic pain (22-69%), infertility (25-59%), dyspareunia (44-71%) and intestinal symptoms (71%) and cyclic urinary (60%). [6][7][8] Endometriosis causes physical, mental and social consequences to women, bearing in mind that their psyche, interpersonal and martial relationships are affected by the problems of the symptoms, in particularly, by the difficulty of bearing children. 9 There are several theories explaining about the appearance of endometriosis; however its etiology is still not clear.…”