Comparing reliability and validity of pediatric instruments for measuring health and well‐being of children with spastic cerebral palsy

Abstract

This study sought to examine the reliability and validity of three generic instruments for measuring the health of children with cerebral palsy (CP) and to compare them with a disease-specific measure, the Gross Motor Function Measure (GMFM). The Pediatric Evaluation and Disability Inventory (PEDI), the Pediatric Outcomes Data Collection Instrument (PODCI), and the Child Health Questionnaire (CHQ) were completed by the primary caregivers of 115 young children with spastic CP. The GMFM was administered to the children. The mean age of the sample was 5 years 8 months (range 3:1 to 10:4) and consisted of more males (58%) than females. The PEDI scales demonstrated higher internal consistency than the PODCI and CHQ scales. In comparison with the GMFM, the PODCI transfer and mobility scale (relative validity, 62%) and the PEDI mobility scale (relative validity, 53%) detected the most significant health differences between children with hemiplegia, diplegia, and quadriplegia. The PEDI social function scale detected the largest differences in cognitive function between children with an IQ of less than 70 compared with those with an IQ of 70 or greater. The reliability and validity of these different instruments varied significantly in this patient population.

Adaptação cultural e validação do Questionário KINDL no Brasil para adolescentes entre 12 e 16 anos

“…The percentage of lost data in the scales was low, as observed in other studies 20,21,22,23 . This information, along with a small loss in the given sample, displays good acceptability and performance of individuals, when participating in the survey and when they answered the questionnaires.…”

Quality of life of children with neurological impairment who receive a fundoplication for gastroesophageal reflux disease

“…However, these mean bodily pain scores were significantly lower than those of children with cerebral palsy (mean score, 73.9; P Ͻ .001). 34,35 After adjusting for functional status, scores were improved for role/socialphysical limitations (mean baseline score, 30.6; 1-month follow-up score, 56.6; P ϭ .01), mental health (mean baseline score, 62.7; 1-month followup score, 70.6; P ϭ .01), family limitation of activities (mean baseline score, 43.3; 1-month follow-up score, 55.1; P ϭ .03), and parental time (mean baseline score, 43.0; 1-month follow-up score, 55.3; P ϭ .03). Scores were unchanged for physical function, global health, general health perception, physical summary, role/social-emotional, mental health, self-esteem, and psychological summary (see Table 3).…”

“…34 This instrument has been tested for validity and reliability in children with cerebral palsy. 35 The SF-36 is a widely accepted measure of health status that measures 8 domains of health: physical functioning, role limitations due to physical problems, bodily pain, general health, vitality, social functioning, role limitations due to emotional problems, and mental health. The SF-36 has been well studied and has been used to measure the effect on a caregiver's quality of life associated with caring for a chronically ill child with significant medical problems.…”

Relationships among functional outcome measures used for assessing children with ambulatory CP

“…All subscales and measures selected for analysis were previously validated for use in English-speaking children with CP. 3,[7][8][9][10][11][12][13][14] Each data collection session consisted of administration of the FAQ, PedsQL, PODCI, WeeFIM, and GMFM Dimensions D (standing) and E (walking, running, and jumping). The 37 questions from Dimensions D and E of the GMFM are included on both the GMFM-88 and the more recent GMFM-66.…”