Comparing Families and Staff in Nursing Homes and Assisted Living: Implications for Social Work Practice

Zimmerman, Sheryl; Cohen, Lauren W.; Reed, David; Gwyther, Lisa P.; Washington, Tiffany; Cagle, John G.; Beeber, Anna; Sloane, Philip D.

doi:10.1080/01634372.2013.811145

Cited by 26 publications

(26 citation statements)

References 40 publications

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“…Even though families in LTRC are typically conceptualized as “visitors,” research has suggested that they often engage in a broad range of activities while “visiting,” such as advocating for their relatives; providing, organizing, and managing personal and instrumental care; and keeping their relatives engaged in emotional and social activities (Gladstone et al, 2006; Port et al, 2005; Zimmerman et al, 2013). Such activities extend well beyond “visiting,” and yet, the “visitor” role has rarely been problematized in the literature, and there are few formal policies addressing this kind of family involvement in care work (Levine, Halper, Peist, & Gould, 2010).…”

Section: Literature Reviewmentioning

confidence: 99%

Invisible Hands

Baumbusch

Phinney

2013

J Fam Nurs

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Care work by family and friends is recognized as a cornerstone of community-based care for older adults; however, the role of families in institutional-based care work has been less well understood and researched. Drawing on findings from a critical ethnographic study, this article aims to examine the unique role of highly involved family members within long-term residential care. The study took place between October 2006 and April 2008 in two facilities in British Columbia, Canada. A purposive sample of 11 highly involved family members participated in in-depth interviews and participant observations. The main themes were "Hands-On," "Hands-Off," "Surveillance," and "Interlopers." These themes illuminate the ways in which highly involved family members engaged in care work, including how they positioned themselves and were positioned by staff and administrators. Implications of the study focus on the need to include families in philosophies of care and policies that shape care work in long-term residential care.

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Section: Literature Reviewmentioning

confidence: 99%

Invisible Hands

Baumbusch

Phinney

2013

J Fam Nurs

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“…Just over one fifth of the family carers 1 assisting someone in a facility gave over 10 hours of care per week, with more hours provided when a resident was older and had more severe health conditions such as dementia (Turcotte & Sawaya, 2015). These unpaid carers, most of whom are women, provide and manage body care, offer emotional support, promote social engagement, advocate for relatives, oversee the care that staff provide, and contribute resources and ideas to the LTRC community (Davies & Nolan, 2006; Gaugler, 2005; Gladstone, Dupuis, & Wexler, 2006; Keefe & Fancey, 2000; Stadnyk, Chamberlain, Warner, Marie Earl, & Nickerson Rak, 2017; Zimmerman et al, 2013).…”

Section: Introductionmentioning

confidence: 99%

Supporting Family Involvement in Long-Term Residential Care: Promising Practices for Relational Care

Barken

Lowndes

2017

Qual Health Res

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Family members and friends provide significant support for older relatives in long-term residential care (LTRC). Yet, they occupy ambiguous positions in these settings, and their relationships with LTRC staff can involve conflicts and challenges. Based on an ethnographic project carried out in North America and Europe, this article identifies practices that promote meaningful family participation in care home life. We consider instances of rewarding family involvement upon admission to LTRC, throughout the time a relative is living in a care home, and during the final stages of life. Furthermore, we identify working conditions needed to support the well-being of family/friend carers as well as residents and staff. These include greater appreciation of relational care work, time for effective communication, teamwork, and appropriate, inclusive physical spaces. Findings make visible the importance of relational care and have implications for improving living and working conditions in LTRC.

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“…(13) A study conducted in North Carolina (USA) with 488 families showed that family involvement in the care of relatives with dependency resulted in physical burden and depressive symptoms. (14) Family members of hospitalized children revealed that remaining as a companion in the hospital impairs sleep and rest, bringing physical consequences that can compromise one's health. They reported feeling fatigue and lack of time for self-care.…”

Section: Discussionmentioning

confidence: 99%

Cotidiano do familiar acompanhante durante a hospitalização de um membro da família

2015

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Objective: To understand the changes in the routine of the family companion during the hospitalization of a family member. Methods: Qualitative research carried out with 16 family companions of people with self-care dependency in a public hospital. The recorded interviews were conducted individually using a semi-structured script. We used the thematic analysis for data organization and analysis, and discussed in light of theoretical assumptions and the sensitivity proposed by Maffesoli. Results: Four categories emerged, namely: break of substantial bonds with the children; the abdication of labor activity in favor of being together; hospital rituals in the routine of the family companion; and, self-care and the power of being together. Conclusion: Staying in the accompanying process overlaps all the daily life activities of the family companions. ResumoObjetivo: Compreender as alterações no cotidiano do familiar acompanhante durante a hospitalização de um membro da família Métodos: Pesquisa qualitativa realizado com 16 familiares acompanhantes de pessoas com dependência para o autocuidado num hospital público. As entrevistas gravadas foram realizadas individualmente, utilizando um roteiro semiestruturado. Para a organização e analise dos dados utilizamos a Análise Temática e discutimos à luz dos pressupostos teóricos e da sensibilidade propostos por Maffesoli. Resultados: Emergiram quatro categorias: a ruptura do laço substancial com os filhos; a abdicação da atividade laboral para favorecer o estar-junto; os rituais do hospital no cotidiano do familiar acompanhante; o cuidado de si e a potência do estar-junto. Conclusão: Permanecer em processo de acompanhamento se sobrepõe a todas as atividades da vida cotidiana dos familiares acompanhantes.

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Comparing Families and Staff in Nursing Homes and Assisted Living: Implications for Social Work Practice

Cited by 26 publications

References 40 publications

Invisible Hands

Invisible Hands

Supporting Family Involvement in Long-Term Residential Care: Promising Practices for Relational Care

Cotidiano do familiar acompanhante durante a hospitalização de um membro da família

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