Comparative Study of Children's Self-Concepts and Parenting Stress Between Families of Children With Epilepsy and Asthma

Chiou, Hua-Huei; Hsieh, Liang-Po

doi:10.1097/01.jnr.0000387291.61183.41

Cited by 23 publications

(23 citation statements)

References 24 publications

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“…This study compared the PSI scores only between parents in the epilepsy and CP groups, as these data do not exist for the general population sample. The raw scores were compared using a one‐way ANOVA and subsequently explored using supporting literature that had previously documented PSI differences across varying chronic disorders …”

Section: Methodsmentioning

confidence: 99%

Quality of life in adolescents with epilepsy, cerebral palsy, and population norms

Boldyreva

Streiner

Rosenbaum

et al. 2020

Develop Med Child Neuro

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Aim To compare: (1) self‐ and proxy‐reported quality of life (QoL) in adolescents with epilepsy, cerebral palsy (CP), both epilepsy and CP, and a representative general population sample; and (2) parental stress between parents of adolescents with epilepsy, CP, or both epilepsy and CP. Method This was a cross‐sectional observational study with 496 adolescents with epilepsy, 699 with CP, 192 with both CP and epilepsy, and 15 396 from the general population, assessed with the KIDSCREEN‐52 and Parenting Stress Index (PSI). Results All KIDSCREEN‐52 domains showed statistically significant differences across groups. The epilepsy population showed clinically better scores for ‘school environment’ than the general population (Cohen’s d=0.62). Parents scored adolescents with CP lower than adolescents with epilepsy or general populations on ‘physical health’ (d=0.57, d=0.55) and ‘social‐support and peers’ (d=0.82, d=0.91). Parents of adolescents with CP scored them lower than parents of the epilepsy group on ‘autonomy’ (d=0.62). Parents of adolescents with epilepsy scored them lower on ‘mood and emotions’ (d=0.52) and ‘social acceptance’ (d=0.66) than the general population. PSI scores were better for parents of adolescents with CP than for parents of adolescents with epilepsy (d=2.12, d=2.70, d=3.35, d=1.67). Interpretation Adolescents with epilepsy or CP self‐report equal or better QoL than the general adolescent population, which should comfort families and allow clinicians to address parental concerns. What this paper adds Adolescents with epilepsy, with or without cerebral palsy (CP), self‐reported better school environment than adolescents in the general population. Proxy quality of life (QoL) results showed clinically important differences across groups in 6 out of 10 domains of the KIDSCREEN‐52. Proxy‐reported results showed poorer QoL scores for adolescents with epilepsy or CP than the general population. Parental stress level was lower in parents of children with CP or both CP and epilepsy, than in those with only epilepsy.

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Section: Methodsmentioning

confidence: 99%

Quality of life in adolescents with epilepsy, cerebral palsy, and population norms

Boldyreva

Streiner

Rosenbaum

et al. 2020

Develop Med Child Neuro

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“…Kopp et al (2008) and Wood, Sherman, Hamiwka, Blackman, and Wirrell (2008) also reported that depression in parents of children with epilepsy was directly related to and increase in behavior problems for the child. Chiou and Hsieh (2008) found that a higher level of parental depression was associated with a poor selfconcept in the child with epilepsy. Mu (2005) surveyed 210 fathers of children with epilepsy in Taiwan.…”

Section: Depressionmentioning

confidence: 97%

Parental Coping and Childhood Epilepsy

Duffy

2011

Journal of Neuroscience Nursing

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Parents of children with epilepsy, like parents of children with many other chronic conditions, are faced with a constant feeling of uncertainty about their child's condition. This uncertainty can lead to a decreased ability to cope as evidenced by increased stress levels, negative mood states, and impaired family functioning. Because altered coping in the parent may have a profound negative impact on the child's psychosocial adjustment to living with a chronic condition, it is important to identify ways to facilitate positive coping skills in the parent. The purpose of this review was to critically analyze the existing literature related to the challenges associated with parenting a child who has epilepsy. Interventions geared toward facilitating coping in parents will also be reviewed, and gaps in the literature will be identified. Lastly, future implications for nursing research will be discussed.

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“…Besides the finding that a larger AROM was associated with a lower physical appearance, no associations were found between joint status (pain and range of motion) and perceived competence. In addition, a high perceived impact of (7)(8)(9)(10)(11)(12)(13)(14)(15)(16)(17)(18)(19)(20) 16.6 (2.9) Global self-worth 18.9 (4.0)* Range (11)(12)(13)(14)(15)(16)(17)(18)(19)(20)(21)(22)(23)(24) 20.0 (3.0) 15.7 (2.8) Range (9)(10)(11)(12)(13)(14)(15)(16)(17)(18)(19)(20) 16.0 (2.7) SD, standard deviation; SPPC, Self Perception Profile for Children; SPPA, Self Perception Profile for Adolescents. *P < 0.05, comparisons based on confidence interval analysis.…”

Section: Impact Of Diseasementioning

confidence: 98%

Perceived competence in children and adolescents with haemophilia: an explorative study

Hegeman¹,

Genderen²,

Meijer³

et al. 2010

Haemophilia

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With the introduction of prophylaxis, restricting children with haemophilia to participate in physical activities was no longer necessary. Subsequently, many studies report on improved physical functioning in children and adolescents with haemophilia. However, little is known about psychological aspects such as perceived competence and impact of disease. Therefore, the aims of this study were to explore: (i) perceived competence, (ii) perceived impact of illness, and (iii) analyse associations between perceived competence and demographic factors, disease-related factors and joint status in young haemophiliacs in the Netherlands. Fifty-four children (age 8-12 years) and 72 adolescents (12-18 years) with haemophilia participated in this cross-sectional, multi-centre, explorative study. Measurements included perceived competence (Self Perception Profile for Children/Adolescents; range 6-24/5-20), impact of disease (Revised Perception Illness Experience; range 1-5), demographic factors, disease-related factors, joint status and functional status. Mean (SD) scores for perceived competence in the children ranged from 17.3 (±4.0) to 19.6 (±4.0), and for adolescents from 13.3 (±2.4) to 15.7 (±2.8) points. In general, scores were comparable with those of healthy peers, but children with haemophilia had a lower global self-worth score and competence in close friendship was lower for adolescents when compared with those of healthy peers. Mean (SD) scores for impact of disease ranged from 1.2 (±0.4) to 2.3 (±0.8) in children and from 1.3 (±0.4) to 2.0 (±0.8) in adolescents. Severe haemophilia, prophylactic medication, high impact of disease and a shorter walking distance showed a weak to moderate association with perceived competence. Children and adolescents with haemophilia in general have a perceived competence that is nearly comparable with that of healthy peers, with the exception of a lower global self-worth in children and a lower competence for close friendship in adolescents. Haemophiliacs seem to perceive their disease as having relatively low impact on their life. Severe disease, prophylactic treatment and low functional status seemed to be associated with lower perceived competence.

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Comparative Study of Children's Self-Concepts and Parenting Stress Between Families of Children With Epilepsy and Asthma

Cited by 23 publications

References 24 publications

Quality of life in adolescents with epilepsy, cerebral palsy, and population norms

Quality of life in adolescents with epilepsy, cerebral palsy, and population norms

Parental Coping and Childhood Epilepsy

Perceived competence in children and adolescents with haemophilia: an explorative study

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