Community participation for individuals with spinal cord injury living in Queensland, Australia

Carr, Jennifer J.; Kendall, Melissa; Amsters, Delena; Pershouse, Kiley; Kuipers, Pim; Buettner, Petra G.; Barker, Ruth

doi:10.1038/sc.2016.169

Cited by 23 publications

(38 citation statements)

References 22 publications

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“…To explore the needs of people living with an SCI receiving formal caregiver and hospital services in Victoria, Australia. Carr et al 33 8…”

Section: Enforced Passivitymentioning

confidence: 99%

“…51 Frustrating environmental and service barriers Vulnerability was exacerbated by limited access to their workplace, home, or transport. 38,42 If modifications were done poorly or ramps not available, choices were diminished for accessing the community, 28,33,42,46 performing roles at home, 38 and going to work or socializing. 27,47,49 Those participants living rurally were particularly affected by access issues, which resulted in having to work harder 50 or even leaving support networks to seek marginal improvements in community mobility in the city.…”

Section: Enforced Passivitymentioning

confidence: 99%

“…40,47,48,51,53 Finding purpose Participants expressed a desire to contribute to a greater purpose, feel useful, and give to others. 31,41 There was general agreement that the motivation to act needed to be intrinsic 33,34,41 and their choices of activities were expressions of their identity. 30,31,50,53 They were careful to pursue challenges that gave them feelings of success 31 and tested their abilities.…”

Section: Reconciling Lossmentioning

confidence: 99%

“…28 Paid work was valued for financial outcomes and self-esteem but was often difficult to find and maintain 28,34,38 creating compromises in their work choices. 33,34,38,48,50 Participants reported difficulty consistently attending work, 41 only committing to 2 to 4 hours of work a day due to fatigue, 38 predicting early retirement due to changing function, opting for their second choice as this was easier on their body, experiencing chronic pain, 34,48 and acute and chronic health problems due to work. 34 Expressing self There were stories of self-expression through wheelchair sports, 30,50,53 writing, painting, 41 and music.…”

Section: Reconciling Lossmentioning

confidence: 99%

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Exercising Choice and Control: A Qualitative Meta-synthesis of Perspectives of People With a Spinal Cord Injury

Murray

Kessel

Guerin

et al. 2019

Archives of Physical Medicine and Rehabilitation

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Objective: To systematically search the literature and construct a meta-synthesis of how choice and control are perceived by people with spinal cord injury (SCI). Data Sources: Medline, Academic Search Premier, CINAHL, Cochrane, EMBASE, HealthSource, ProQuest, PsychInfo, SAGE, and SCOPUS were searched from 1980 until September 2018 including all languages. Reference lists of selected studies were also reviewed. Study Selection: Eligible qualitative studies included perspectives about choice of control as reported by people with an SCI. Studies were excluded if they included perspectives from other stakeholder groups. A total of 6706 studies were screened for title and abstract and full text of 127 studies were reviewed resulting in a final selection of 29. Data Extraction: Characteristics of the studies were extracted along with any data (author interpretations and quotes) relating to perspectives on choice and control. Data Synthesis: First-order analysis involved coding the data in each study and second-order analysis involved translating each segment of coded data into broader categories with third-order analysis condensing categories to 2 broad overarching themes. These themes were experiencing vulnerability or security and adapting to bounded abilities. Conclusions: Perspectives of choice and control are influenced by interrelated environmental, interpersonal, and personal contexts. From a personal perspective, participants reported a readiness for adaptation that included turning points where emotional and cognitive capacity to make choices and take control changed. Health professionals need to be responsive to this readiness, promote empowerment and foster, rather than remove, hope.

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“…To explore the needs of people living with an SCI receiving formal caregiver and hospital services in Victoria, Australia. Carr et al 33 8…”

Section: Enforced Passivitymentioning

confidence: 99%

Section: Enforced Passivitymentioning

confidence: 99%

Section: Reconciling Lossmentioning

confidence: 99%

Section: Reconciling Lossmentioning

confidence: 99%

See 2 more Smart Citations

Exercising Choice and Control: A Qualitative Meta-synthesis of Perspectives of People With a Spinal Cord Injury

Murray

Kessel

Guerin

et al. 2019

Archives of Physical Medicine and Rehabilitation

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“…Community participation 7 Carr JJ, 2017 49) Impairments of body functions and structures associated with community participation include level and severity of injury and the number of secondary conditions, whereas activity limitations include mobility and functional independence.…”

Section: 精神疾患オーストラリアmentioning

confidence: 99%

Definitions and Evaluation Indexes of Social Participation in Rehabilitation: A Qualitative Systematic Literature Review

Komukai¹,

Fujimoto

Sugita³

et al. 2017

Rigakuryoho kagaku

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[Purpose] The aim of this study was to investigate the definition of social participation and its evaluation indices in the context of rehabilitation. [Subjects and Methods] A qualitative systematic literature review was performed according to the Preferred Reporting Items for Systematic Review and Meta-Analyses of studies that reported the definition of and evaluated social participation. The search terms chosen were "rehabilitation", "social participation," and related words. To interpret and characterize the content of social participation in each study, similar definitions and evaluation indices were integrated using a text analysis. [Results] In previous studies, "activities in terms of work, household, and leisure" and "have a role at work or in the family" have been defined as social participation. The evaluation indices were different depending on the definitions of social participation. [Conclusion] The present study showed that the definitions of social participation vary, and that it is necessary to choose evaluation indices according to these definitions.

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Spinal cord injury rehabilitation: Linking service delivery and community integration

Barclay

Hilton²

2022

Diagnosis and Treatment of Spinal Cord Injury

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Community participation for individuals with spinal cord injury living in Queensland, Australia

Abstract: Rehabilitation services need to support individuals with SCI to find meaningful employment and to engage in activities that provide them with a strong reason to participate.

Cited by 23 publications

References 22 publications

Exercising Choice and Control: A Qualitative Meta-synthesis of Perspectives of People With a Spinal Cord Injury

Exercising Choice and Control: A Qualitative Meta-synthesis of Perspectives of People With a Spinal Cord Injury

Definitions and Evaluation Indexes of Social Participation in Rehabilitation: A Qualitative Systematic Literature Review

Spinal cord injury rehabilitation: Linking service delivery and community integration

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