Communicatively Exploring Uncertainty Management of Parents of Children with Type 1 Diabetes

Pérez, L. Fajardo; Romo, Lynsey K.; Bell, Trevor

doi:10.1080/10410236.2018.1446249

Cited by 22 publications

(17 citation statements)

References 33 publications

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“…There was no relationship between perceived OHSS and QOL in the present study, unlike the findings of a previous study [9]. Parents of children with T1D reduced uncertainty by joining a support group [41]. Social support for emotional, instrumental, and informational aspects showed a linear relationship with QOL in stressful situations; however, social support was not related to QOL in stress-free situations [42].…”

Section: Discussioncontrasting

confidence: 86%

Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes

Uhm

Kim

2020

Children

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Quality of life of parents of children with chronic disease is important for disease self-management. This study aimed to identify predictors of quality of life among mothers of children with type 1 diabetes. A cross-sectional study was conducted. A total of 208 mothers of children with type 1 diabetes were recruited from an online health community. Online health community collective empowerment and social support, diabetes self-efficacy, diabetes-related burden, and quality of life were measured. A multiple regression analysis was conducted to determine predictive factors for quality of life. Multiple regression analysis showed that diabetes-related burden and the child’s age were predictors of quality of life, and total variance explained by the model was 64.1% using two factors. In mothers of younger children, it is important to reduce the diabetes-related burden. Factors that increase the diabetes-related burden should be identified, and strategies to reduce the diabetes-related burden must be established.

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Section: Discussioncontrasting

confidence: 86%

Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes

Uhm

Kim

2020

Children

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“…The 14 included papers reported the views and experiences of 274 parents in seven countries: Canada [22], United States [23][24][25][26][27], United Kingdom [28][29][30], Sweden [31,32], Norway [33], Iran [34] and Palestine [35]. Four papers reported exclusively on the experiences of parents of children aged ≤8 years (n = 80) [23,25,26,33].…”

Section: Study Characteristicsmentioning

confidence: 99%

Parents’ experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence

et al. 2021

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Aims To synthesise the qualitative evidence on parents’ experiences of caring for a child aged ≤8 years with type 1 diabetes to identify: the challenges they encounter; their views about support received; ways in which support could be improved; and, directions for future research. Methods We searched Medline, EMBASE, CINAHL, PsycINFO and Web of Science databases to identify qualitative studies reporting parents’ views and experiences of caring for a child with type 1 diabetes aged ≤8 years. Key analytical themes were identified using thematic synthesis. Results Fourteen studies were included. The synthesis resulted in the generation of two overarching themes. Monopolisation of life describes the all-encompassing impact diabetes could have on parents due to the constant worry they experienced and the perceived need for vigilance. It describes how parents’ caring responsibilities could affect their wellbeing, relationships and finances, and how a lack of trusted sources of childcare and a desire to enable a ‘normal’ childhood constrained personal choices and activities. However, use of diabetes technologies could lessen some of these burdens. Experiences of professional and informal support describes how encounters with healthcare professionals, while generally perceived as helpful, could lead to frustration and anxiety, and how connecting with other parents caring for a child with type 1 diabetes provided valued emotional and practical support. Conclusions This synthesis outlines the challenges parents encounter, their views about support received and ways in which support might be improved. It also highlights significant limitations in the current literature and points to important areas for future research, including how sociodemographic factors and use of newer diabetes technologies influence parents’ diabetes management practices and experiences. PROSPERO: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42019128710

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“…It's all the people that are struggling the most that seem to post in some of those forums. 27 (Type 1 diabetes, interview study)…”

Section: (Various Conditions Including Cystic Fibrosis Metabolic Conmentioning

confidence: 99%

Parents and carers’ experiences of seeking health information and support online for long-term physical childhood conditions: a systematic review and thematic synthesis of qualitative research

et al. 2020

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ObjectiveTo systematically review and synthesise qualitative research exploring parents/carers’ experiences of seeking online information and support for long-term physical childhood conditions.DesignSystematic review and thematic synthesis of qualitative research.Data sourcesMedline, CINAHL, Embase, PsycINFO and the International Bibliography of the Social Sciences were searched from inception to September 2019. We used thematic synthesis to analyse findings.Eligibility criteriaPrimary research papers presenting qualitative data collection and analysis, focusing on parents/carers’ experiences of seeking health information and support from online resources for long-term physical childhood health conditions. No language restrictions were placed.Results23 studies from seven countries met inclusion criteria and were included in the synthesis. Included studies presented data collected through interviews/focus groups with 559 parents/carers; free-text surveys and essays with 26 parents/carers and 2407 messages from online support groups. Parents/carers developed a variety of strategies to obtain information and support online, based on personal preferences, appraisal of trustworthiness, perceived needs and previous experiences online. Many parents sought the benefits of online information and support, which included reassurance and validation from online communities, and feeling they had greater knowledge about their children’s conditions. Some concerns and perceived risks were discussed, which often stemmed from prior unsatisfactory experiences of seeking information and support online, consultations with health professionals and seeing distressing stories online.ConclusionMost parents/carers were successful in obtaining information and support online. Many continued to share experiences with other parents/carers online. The need for information was particularly apparent early after diagnosis of the condition, whereas the need for peer support continued. The potential concerns and perceived risks with information and support online were especially apparent among parents/carers of children with life-limiting long-term conditions. Findings may be useful for health professionals to facilitate discussions regarding use of online resources, and researchers designing online health resources for parents/carers.PROSPERO registration numberCRD42018096009.

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Communicatively Exploring Uncertainty Management of Parents of Children with Type 1 Diabetes

Cited by 22 publications

References 33 publications

Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes

Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes

Parents’ experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence

Parents and carers’ experiences of seeking health information and support online for long-term physical childhood conditions: a systematic review and thematic synthesis of qualitative research

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