Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes

Uhm, Ju-Yeon; Kim, Myoung Soo

doi:10.3390/children7110235

Cited by 5 publications

(4 citation statements)

References 49 publications

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“…T1D is among the diseases with the highest caregiver burden [ 24 ]. Numerous studies have shown that the burden of caring for mothers with a child with diabetes drastically reduces their quality of life [ 25 – 28 ]. Even the sleep of the parents of a child with diabetes is severely affected [ 29 – 32 ].…”

Section: Discussionmentioning

confidence: 99%

How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study

2022

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Introduction Caregiver burden is a complex construct that depends heavily on the context and culture of the community in which care takes place. This study aimed to explore the lived experience of being mothers of a child with type 1 diabetes aged 6 to 18 years. Materials and methods We used a qualitative methodology utilizing conventional content analysis. We conducted 24 interviews with 20 mothers who had a child with type 1 diabetes aged 6 to 17 years. Results The mean age of mothers and children were 36.3 and 12.3 years, respectively. The mean of years with the disease was 4.3 years. Thirteen children were girls. The essential theme was coping with the burden of care through personalized coping and active acquisition of social support. The main theme consists of four sub-themes including Crisis in the family and burden of care, Losing the family equilibrium, Personalized coping strategies, and Active acquisition of social support. Mothers used personalized strategies and every support they could get to reach their aim. Conclusions Families of children with type 1 diabetes need extensive and personalized care plans.

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Section: Discussionmentioning

confidence: 99%

How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study

2022

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“…Globally, by 2050, 600,000 children and adolescents under 20 will have type 1 diabetes [9]. Uhm and Kim [10] identified factors that influence a mother's quality of life while she has type 1 diabetes and developed novel diabetes management strategies. Dumas et al [11] discovered no effect on mothers' nutritional intake, food-related behaviors, or body weight at 6 months when they received one post each week.…”

Section: Introductionmentioning

confidence: 99%

The Impact of a Self-Management Program Based on the 5 A’s Model on Type 1 Diabetes in School-Aged Children

Elsobky

Darweesh

Alzahrani³

et al. 2022

Ann Nutr Metab

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Introduction: Diabetes is a chronic metabolic condition characterized by abnormally high blood glucose levels that eventually results in catastrophic damage to the heart, blood vessels, eyes, kidneys, and nerves. The available data from previous studies on the application of the 5 A’s model-based self-management program to increase knowledge and self-care practices in children are insufficient. Therefore, the purpose of this study was to determine the effect of a self-management program based on the 5 A’s paradigm on school-aged children with type 1 diabetes. Methods: The research design was quasi-experimental. The investigation was conducted at EL Mogamma EL Teby AL Shamal diabetes facility. This study enrolled a convenience sample of 90 children who were accompanied by their moms. Five tools were utilized to collect the data: questionnaire for children’s examination; questionnaire for diabetic knowledge; a questionnaire on diabetes self-care; Diabetic Attitude Scale; and self-care practices for diabetics. Results: A total of 72.2%, 90.0%, 91.1%, 93.3%, and 96.7% of youngsters, respectively, lacked knowledge, engaged in ineffective self-care activities, had a negative attitude, and practiced incompetently. Differences between pre- and post-program implementation are statistically significant when a self-management program based on the 5 A’s model is implemented. Discussion/Conclusions: Self-management and self-care models, particularly the 5 A model, are helpful at improving the control of these symptoms, reducing associated problems, enhancing nursing care, and enhancing patients’ quality of life. Increasing the duration of a self-management program based on the 5 A’s model for children with type 1 diabetes reduces negative attitudes and improves quality of life but requires follow-up.

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“…2 Most qualitative studies on parents’ experiences of caring for children with T1D have been conducted with mothers, which relates to mothers shouldering the main caring responsibilities in diabetes care. 3 Similarly, in South Korea, mothers are mainly in charge of daily diabetes management, 4 and they are more actively involved in school health care (SHC) for their children’s chronic disease than fathers. 5 Mothers reported higher parental burden and emotional stress than fathers did.…”

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confidence: 99%

School Health Teachers as Partners in Diabetes Caring: Maternal Perspectives

Uhm,

Choi

2023

West J Nurs Res

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Background: The absence of primary care providers’ participation in school health care may require close collaboration between school health teachers and parents. This study explores maternal perspectives on obstacles and improvements in partnerships with school health teachers of children with type 1 diabetes. Methods: Participants were recruited using purposive sampling through an online type 1 diabetes self-help group in South Korea. Twenty-two mothers whose children were aged between 7 and 13 and had been diagnosed with type 1 diabetes at least 1 year ago were included. Individual interviews were conducted based on a semi-structured interview guide from February to June 2019. Qualitative data were analyzed using inductive content analysis comprising open coding, coding sheets, grouping, categorization, and abstraction. Results: Mothers recognized obstacles in eight categories and improvements in nine categories under institutional, interpersonal, and intrapersonal aspects of the partnership with school health teachers. Respondents recognized insufficient legal coverage and guidelines, and also health teacher shortage and workload as obstacles in the institutional dimension. Mothers perceived building trust, compromising to balance responsibilities, and constant and open communication as improvements in the interpersonal dimension. They recognized practical competency and tailored care for ordinary school life as school health teacher-related improvements. Conclusions: The findings indicate that school health teachers should compromise to balance responsibilities to improve partnerships with parents in the school health care setting. Institutional improvements, such as establishing robust laws and clear guidelines and increasing the number of school health teachers, should be prioritized.

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Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes

Cited by 5 publications

References 49 publications

How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study

How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study

The Impact of a Self-Management Program Based on the 5 A’s Model on Type 1 Diabetes in School-Aged Children

School Health Teachers as Partners in Diabetes Caring: Maternal Perspectives

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